How I Beat Recurrent Urinary Tract Infections

By Melissa Kramer

11 mins

If I could start this process again I would do it differently… Obviously, I would choose a body that had a magical force field against recurrent urinary tract infections.

And maybe one that was a little more tolerant of food, and also possibly one that wasn’t prone to being in between clothing sizes for every brand that ever existed.

But you know what they say… Hindsight is 20/20.

As it turns out, I was really good at getting UTIs. If getting UTIs was a desirable skill, I nailed that skill for almost five years, with barely a break.

“When I look back at my experience with recurrent urinary tract infections, I have flashbacks of traumatic moments followed by lingering anxiety about when the next one would hit me.”

I had my first UTI at 23. The after-hours doctor asked, ‘Are you sure you don’t have your period?’ – clearly unaware of the danger created by patronising a female in the midst of a UTI.

I managed to stay calm and suppress the urge to retort, ‘You think I can’t tell the difference between my period and blood coming out of my urethra??’ (But seriously, really?).

All I wanted was something to fix the pain, and for them to leave my sight immediately. They delivered in both respects.

The antibiotics worked within a few hours and I never thought about it again… Until nine years later.

 

Recurrent Urinary Tract Infections Hit Hard

I was going through a stressful relationship breakup, and selling my business, and was completely run down.

The UTI hit me fast. The pain was just as intense as I remembered, but I didn’t panic quite as much as the first time. I knew I’d get antibiotics when I showed up at the emergency room.

Plus, I didn’t have time to think about it. Life was way too hectic for me to put any energy towards my health.

Again, the antibiotics worked and I dismissed it. But the symptoms crept back. A month later I was at a friend’s farm when it got so bad I had to make a run for the hospital.

Driving more than an hour was too much for me and I ended up squatting on the side of a dangerous road in the dark more than once.

“Recurrent urinary tract infections had officially become a part of my life, though I had no idea of this at time.”

The thing is, when it first hits you, it’s out of the blue, and you never imagine this is going to be your life now. You take antibiotics, it goes away, you’re generally healthy, so chances are it was just an anomaly.

Even the second or third time can seem like a bit of a coincidence. The words ‘recurrent urinary tract infections’ don’t really register at this stage. You figure you just haven’t been sleeping enough, or maybe you’ve been fighting a virus and your immune system is just having a rough time.

Denial is probably the most accurate word for this phase. I was just so certain the antibiotics would work every time. Even though they didn’t.

Selling my business and packing up my life for a move overseas was my priority, and the frequent trips to the doctor for antibiotics were more of a nuisance than cause for concern.

“I thought I was being responsible when I asked my doctor for antibiotics to take abroad with me ‘in case I got another UTI’. That optimism is almost laughable now.”

 

Recurrent Urinary Tract Infections In Every Port

A trip to the UK (from Australia) resulted in a UTI the day before my 30 hour flight home. I managed to get a single dose antibiotic from a walk-in clinic, but was still cracking sweats by the time I got to the airport.

I armed myself with water, demanded an aisle seat, and proceeded to drink water nonstop. I was using the bathroom every 20 minutes, like clockwork, and by the time I landed for my stopover in Hong Kong 13 hours later, I really thought I was on top of it.

How wrong I was. I boarded my flight for Sydney, and over the next 10 hours descended into fevers, chills, shakes and a little delirium.

At Sydney airport I missed my onward flight to Melbourne and broke down at the customer service desk. I barely remember stowing my bag in a locker and wandering around looking for help.

Fortunately, I was able to find the airport doctor, who prescribed antibiotics and anti-nausea pills.

I had forfeited my flight, but I didn’t care. I eventually made it home to Melbourne, a full 35 hours after the start of my journey, where I passed out for 20 hours. My body was defeated.

“Here’s where my life started to become broken into modules, based on UTIs.”

Like, ‘Which trip was that? Oh the one where I had the UTI when we were camping and I had to keep going outside in the cold to pee near that weird herd of sheep.’

Or, ‘Was that March or April? It must have been March, because I had that UTI at the same time as my period and food poisoning and it was my sister’s birthday and I had to call her between vomiting and peeing blood.’

I know it’s gruesome, but that’s exactly what I want to illustrate. Just how recurrent urinary tract infections can become an everyday thing. Even though they hurt just as much, every single time.

So three or four UTIs later I was living in a village in Greece. And when I say village, imagine a handful of houses on a hillside by the sea, hours from the nearest hospital.

And when I say houses, imagine a tiny, lovely, concrete box, with an outdoor bathroom beside an olive tree. It was a truly amazing, traditional experience, and I loved every minute of it  – between UTIs.

I sat on the toilet in that outdoor bathroom for a few hours at a time, debating whether to take the antibiotics I had brought with me and wondering whether my kidneys were actually disintegrating and coming out through my urethra.

Maybe my body needed to fight this on its own to get better? Maybe I would die in a remote village and my parents would have to expatriate my body.

The internet told me if there was blood in my urine, my kidneys were affected and I HAD to take antibiotics. So I took them. I didn’t die in a little village in the middle of nowhere and I didn’t even tell my parents how close they had come to organising an international funeral.

I was alive, but I wasn’t well.

 

Recurrent Urinary Tract Infections & Lifestyle Changes

My symptoms seemed to hang around. I took drastic action and cut all sugar and processed carbs from my diet. I was running and swimming every day. I felt amazing aside from the constant threat of the next UTI.

After three months in Greece it was time to move to Berlin. I packed my bags, making sure to take those UTIs with me…

I became acquainted with the German healthcare system pretty quickly. I found a doctor who was willing to give me antibiotics whenever I got a UTI, and an extra prescription so I could self-administer them next time.

He also sent my urine to a lab a number of times. Every time we’d get the results it would show raised leukocyte levels, and ‘insignificant’ levels of bacteria, but generally nothing to report.

“So, according to the lab, I didn’t have a UTI. According to what I knew about my own body, I did, and it would not go away.”

I started researching and bringing information to my doctor about other organisms I wanted to get tested for. He was happy to comply. He didn’t know what else to do to help me.

Still the results were inconclusive.

By this time, I was around 18 months in. I was really starting to lose my patience and my sanity. I tried different doctors. Same deal. They did tests. And while they were sure I had an infection, they didn’t know what was causing it.

I was completely uninformed about testing, and why it wasn’t helping me figure this out.

On another trip home to Australia, I got a UTI between Berlin and London and missed my flight from London to Singapore. Instead I spent some quality time at a London hospital.

I’m eternally grateful to the amazing British Airways staff member who managed to get me a new flight without penalty. But I was completely fed up.

 

I Refused To Accept UTIs As My Future

It’s not in my nature to learn to deal with something that I know shouldn’t be. There is no way my body is built to crumble at the first hint of sex, or fatigue, or dehydration. I’ve always been stronger than that.

I’m pretty good at knowing exactly what is happening in my body and when. I’ve accurately diagnosed myself with injuries that have taken years to show up in scans. I’m my very own body whisperer.

So when something like this happens, it’s a virtual kick in the guts, or more specifically, the bladder.

“Getting a UTI every few weeks or months doesn’t give you much breathing room to feel human. To get things done.”

There is a constant shadow hanging over you. Restaurant and bar reconnaissance isn’t about people anymore. It’s about toilets. You learn to scope out any venue for its bathrooms. At any given moment, I could tell you where the nearest public toilet was.

I never went anywhere without a remedy in my bag. For me, that meant carrying antibiotics 24 hours a day.

Holiday planning came with underlying anxiety, and relationships – don’t even get me started on how recurrent urinary tract infections impact those.

Too late… I’m on a roll.

Sex becomes a source of anxiety. You’re constantly calculating the probability of getting a UTI each time. Talk about a buzz kill.

Then afterwards, you do your best to leave it a respectable amount of time before you jump up and head to bathroom to flush your urinary tract. Sexy. Post-sex contented snuggling is NOT a thing when you have recurrent UTIs.

I’m terrified now to think how close I came to giving up. I’m not even sure what that would have meant. UTIs forever? With each episode a little sooner than last time?

“One doctor suggested I ‘might just have irritable bladder or interstitial cystitis’. Such a throwaway comment, like it’s a minor nuisance or just one of those things.”

I knew that in their mind that was a life sentence, and I refused to accept it. It was a wake up call.

 

Recurrent UTIs: The Final Frontier

All the remedies and regimens I had tried weren’t committed enough. So I tried harder. I took more of everything.

I’d been fighting this for 3.5 years. Keeping my life together and keeping up appearances. I even managed to travel to the Balkans to volunteer for a few months. Sarajevo was the turning point.

I like to think of it as the final frontier. I got a UTI that never went away. The symptoms stayed with me despite taking a longer course of two different types of antibiotics. Antibiotics were done for me.

“Without finding out what was causing my UTI, I knew there was little chance of finding the right antibiotic and I wasn’t willing to continue taking them without being better informed.”

My body was suffering. It had become sensitive to everything.

I would get itchy daily, have yeast infections constantly, my digestion was shot and my contraceptive pill had ceased to control my cycle. I felt like a complete mess.

So I stopped taking antibiotics.

For me this was like taking a deep breath and jumping from a cliff into the sea, without knowing if I could really swim.

Being a pragmatic type of person, I got a range of blood tests to check my general health and discovered I was quite low in a few essential nutrients.

I also stopped taking the contraceptive pill, forever.

I emphasize this because quitting the pill felt momentous at the time. I had been on the pill since I was 16. Not for contraception then, but because I had periods so heavy I ended up severely anemic and required treatment.

Later, the pill became convenient for other reasons. I didn’t want to worry about irregular, heavy periods, but I also didn’t want to get pregnant, so the pill allowed me to live a life fairly free from those concerns.

My problems with the pill started around the same time as my recurrent urinary tract infections. The antibiotics I was taking meant my gut flora took a serious hit. I was getting yeast infections all the time and my periods started breaking through mid-cycle.

A gynecologist I saw suggested the pill I was on just wasn’t right for me and prescribed me another, then another. They didn’t help, and my unpredictable cycles continued.

Soon, I also broke out in a fairly controlled rash on my leg. More like a small patch of excruciating itchiness.

By some miracle, I was given an appointment with a trainee doctor in Berlin who identified the rash as part of a bigger problem – a possible candida overgrowth – aggravated by my frequent antibiotic use and the estrogen in my contraceptive pill.

She managed to convince me, by sharing her own experiences, to go off the pill. This was terrifying to me at the time. I imagined the heavy periods returning, and all that came with that, including the possibility of babies.

“But I was done making excuses for myself. I was ready to take control of my health.”

I created a regimen of strong herbal anti-fungals and antibacterials based on the advice of that doctor, then teamed them up with specific probiotics, and vitamins and minerals targeting my deficiencies.

I had tried all of these separately (minus the vitamins and minerals) after reading studies about each of them. But I had never tried them together, or with a plan and a timeframe in mind.

I started my new regimen.

 

The UTI Treatment Regimen

Now, I don’t know about you, but I love a good spreadsheet. And it’s amazing how much more fulfilling a health regimen can be when you plot it out, then mark off your progress daily. Feels so goooood.

I also downloaded a counter on my phone to track how many days since my last UTI – at the very least I would see how long I could last between episodes.

Every morning I woke up and looked at my counter. After 30 days I started to feel my first glimmer of hope. I was still getting twinges and minor symptoms, but nothing I couldn’t handle.

My first milestone came around that time, when I went hiking with my partner. Without a map, without a compass, and without enough water. We got lost. We were out there for 10 hours and I was dehydrated.

But I didn’t get a UTI. And I didn’t even think about it until I was home safe again. That alone blew my mind. This thing that had been on my mind for almost four years had somehow become an afterthought.

The counter kept going up. 45 days, 60 days, 90 days since a UTI. I suddenly felt like declaring myself officially healed of recurrent UTIs at the six month point might not be so far-fetched.

Sometime, around three months in, I had a relapse of symptoms and upped my regimen in response. That UTI never happened and my count remained intact.

Six months came and went and I set my sights on a year UTI free.

In case you’re curious, the process of correcting my gut flora, changing my diet and addressing my deficiencies had resulted in a super regular and almost symptom-free menstrual cycle.

Oh, and as another side note, the process also cleared up my yeast infections, and 90% healed my long term digestive issues. But that’s another story!

Now back to the UTIs…

Out of fear, leftover antibiotics had become a permanent feature in my bag. If I changed bags, the antibiotics came with me. I never opened them, but they were my psychological backup.

“Around the nine month mark I made the momentous decision to leave the antibiotics behind. It might sound overly dramatic, but tearing up your safety blanket and tossing it to the wind IS huge.”

When I embarked on my healing regimen, I envisioned massive celebrations at the one year mark, for I would then be officially free of recurrent urinary tract infections. In reality, I had put UTIs so far behind me that it was almost a non-event.

I did have some celebratory drinks, with an emphasis on the fact I COULD drink alcohol without fearing a UTI.

Which reminds me. I still have that counter. At the time of publication, I am 625 days UTI free. But it’s no longer important. I keep it as a memento of what I went through, and what it took to get past it.

 

Recurrent Urinary Tract Infections Are More Common Than You Think

Even after I broke the cycle of recurrent urinary tract infections, I never stopped researching. I’d been full circle through wondering what was wrong with me, to wondering what was wrong with doctors, to being furious at yet another female health issue overlooked by the healthcare industry, to wanting to do something about it.

And here we are.

Every study I read led me to another study. I gained a much clearer picture of recurrent urinary tract infections and chronic cystitis and why there is no standard approach to diagnosis and treatment.

I learned that although my tests kept coming back negative, I did in fact have an infection – it was the test that was flawed. The standard UTI test has always been flawed, and has been proven over and over again to be inadequate in diagnosing UTIs.

I reached out to others who know what recurrent urinary tract infections feel like. They have had me in hysterics as they recounted their now funny UTI stories in an interview.

Catching the train for 45 minutes in UTI-induced agony only to then resort to peeing in the front garden with the key in the door. So close!

Or getting approached by the police for suspicious behaviour resembling a drug deal, when all that was really happening was frantic clawing at a box of antibiotics. It turns out the police will back off quickly if they know a UTI is involved.

Then of course there is the infuriating side of this. The side that has left so many females feeling helpless.

The urologist whose best advice was that his own wife drinks aloe vera juice to help with her recurrent urinary tract infections. What the?

The many doctors and specialists who have said there’s nothing we can do about it, ‘some women just get recurrent urinary tract infections,’ and ‘it’s just your plumbing.’

Inspired and frustrated by the similarities I heard from all these stories, I gathered a team around me so we could speak to even more people.Then we started speaking to doctors, and researchers, and pieced together what we found.

The rest of my story exists within this website.

Our aim is to provide the most complete source of recurrent UTI and chronic cystitis information available. We’re only part of the way there, but we’ll continue adding new research as we find it.

We hope to lift others out of the murky waters of misinformation and empower them towards their own recovery.

You can help us by sharing your story.

 

Share your questions and comments below, or get in touch with your own story.

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Comments

Erin says:

Hello! I’ve had Recurrent UTIs for about 4 years now and I’m only 19☹️ I’ve today only just given up on my doctor who gets frustrated when he sees me in the clinic because of another uti. I’m willing to try anything if you can give me specifics of your program. I’ve just started my nursing course and I don’t have time to be bed ridden from utis anymore

Hi Erin, sorry to hear you’re experiencing that. If you send us a direct message we can share more info that way. Susy

Renee says:

This has been an interesting read. Can you send me more information on the changes you made with your diet, etc?

Hi Renee, if you send us a direct message, we can share more info that way. Susy

Halona says:

I have been suffering from chronic UTI since I was 17. I am currently 25 and have no idea how to control this. Ive tried water. And bathroom breaks. Everyone tells me its my fault i dont take care of myself. I feel rather hopeless. As you said above my urologist said its normal to ahve UTIs up to 4 times a year and they cant find anything wrong. My tests come back negative and they fight with me for antibiotics. Ive tried cranberry and craberry pills. Daily even. I cant catch a break! What can I do?

Hi Halona, I’m sorry to hear you’re experiencing this. I saw you sent an email so I’ve replied there. Susy

Cassandra says:

I am on my 2nd UTI in less than 3 months and desperate for answers. The 2nd time I have blood in my urine and scared to death. Please give me advice on what to do.

Hi Cassandra, I see you also sent us an email so I’ve replied there. Susy

Corinne says:

Hi! I’m desperate. Completely feeling like giving up. Two babies to care for and my health-deteriorating. After months of testing, ultrasounds blah blah, I have received the ‘you tested positive for this.’ But my body refuses to accept antibiotics. I’ve been, likewise, on a similar journey doing massive amounts of research and implementing herbs, probiotics, dietary changes etc.. I need to do better. I need help. You would be changing my life.
Please, what can you teach me to help myself? I would be eternally grateful escaping these dark clouds.

HI Corinne, sorry to hear you’re experiencing that. If you have specific questions you can reach out to us directly, and we can share more info. Susy

Cher says:

UTIs for me always stress-related! The Older I get the more stress, mostly because I think about things. I belong to a NE sensual oil business and just need to figure out what to do with them. Can you help me?

Hi Cher, we haven’t come across any evidence-based information regarding the use of oils for UTI, so I can’t share any insights there. If you have any other questions though, feel free to send us a direct message. Melissa

Grace says:

Thanks for making me feel like I’m not alone.

What specifically was wrong with and how did you readjust your gut flora?

Hi Grace, you’re definitely not alone! As I mentioned in my story, standard UTI testing was unable to identify the specific cause or causes of infection. The only confirmed results I received were for Candida, but not via UTI testing. I can share more info about the diet I adopted via email, if you send me a direct message. Melissa

Daisy says:

Hi, I have had chronic UTIs for 3 years, only now it’s massively affecting my relationship! I would love to know more about your regime and he correct questions to pose to doctors. I also wondered if you could tell me more about giving up sugar ? Was hat difficult. Thank you.

Hi Daisy, I didn’t personally find giving up sugar too difficult, but it was made easier by the fact that my digestive symptoms started to improve quickly. I can share more info about my experience via email, if you send me a direct message. Melissa

Deedee says:

Please let me know the regime! i would greatly appreciate it <3

Hi Deedee, if you send me a direct message, I can share more info via email. Melissa

Maria says:

Hi, I have also been experiencing chronic UTI symptoms for the past nine months. I’ve had 5 UTIs and I am tired of constantly taking antibiotics. I was wondering if you could give me some more information about your regimen so that I can maybe fix this recurring issue!

Hi Maria, I can share more detail via email, if you send me a direct message. Melissa

kinvara hubbard says:

Hi, I have been experiencing chronic UTI symptoms for the last 9 months and was wondering if you could give me more information about your regimen? It would be hugely appreciated!

Hi Kinvara, we also got your email, so we’ve replied to that with more info. Melissa

Veronica says:

Hi, I have been having UTI’s every few months and was wondering if you could give me more information about your regimen? It would be greatly appreciated! Thank you!

Hi Veronica, can you please contact us directly, and we can share more info that way. Susy

Mandy says:

I have been suffering with recurring UTI’s for years.
My GYN suggested it could be kidney stones (tho lab tests say otherwise). But she also suggested I could be getting very small vaginal tears during sex with my husband. Her solution was prescribing a vaginal cream that contains estrogen to help thicken the walls. I have been through “the change” but my UTI issue started long before. There is always the fear that I am going to feel that horrible burn and pulling sensation with every pee I take. I would love to know what you are doing that has put the dreaded UTI wayside. Please share!! I am desperate.

Hi Mandy, sorry to hear that. If you could send us a direct message we can share more that way. Susy

Lottie says:

Hi,

I would love to know the regime you used! Had recurrent UTI’s for 6 years and finally had urethral surgery in January, haven’t had a UTI since then but today I’ve had my first one (whilst on holiday) and tbh all I want to do is go home!! 🙁
Obviously got my trusty antibiotics on me but the mental side (like you say in the article) is what I’m struggling with.

Thanks
Lottie xx

Hi Lottie, sorry to hear that. If you send us a direct message we can share more that way. Susy

jo lawrence says:

I could have wrote this myself, 13 yrs ive suffered and tried everything, every guru, doctor, herb, drug. I cannot have sex without getting a UTI, i have been on antibiotics for 6 moths straight. I have sex around my work hours as I know I cant have sex day before a big meeting. Its crippiling, chronic pain and yep when they say Ural I just cringe. 🙁

Hi Jo, so sorry to hear that. If we can share any specific info with you, send us a direct message and we’ll get back right away. Susy

Vicky says:

Great post! Can you please send me more information regarding your regimen?

Kara Dalisay says:

I was also hoping to hear more about your routine as I also am dealing with recurrent UTIs that don’t always test positive. Thanks

Hi Kara, if you get in touch directly we can share more info. Susy

Hi Vicky, thanks. I can share more info privately, if you get in touch via direct message. Melissa

Silvia says:

Hi, would you kindly tell me more about your regimen and treatment as well. I have been suffering with UTIs for about 15 years. I have done my research and nothing has worked. I have tried everything in the books and I have given up. I go to antibiotics now but I don’t want them to be my life. Please help.

Silvia

Hi Silvia, I can share more insight via email, if you send us a direct message. Melissa

Becka says:

I just had a baby a few month’s ago and for a whole month on and off I’ve been dealing with UTI and yeast infections. Please more tips on treatment I’ll do anything!!!

Hi Becka, can you send us a direct message with a little more info? Melissa

Tasya says:

Dear Melissa, Please could you kindly email me with some more detail about your regimen and treatment? I am so interested and willing to find a solution for my uti symptoms. I’ve had my first UTI since last year and it keeps reccuring til now. I am currently experiencing dysuria, and thankfully no hematuria but it annoys me that I have to go to the restroom like every 30 minutes, currently taking levofloxacins but to no avail with high leukocyte esterase in my urine. Have been taking cranberry supplements too but not really helping. I’m planning to visit an urologist soon and have my urine cultured for bacterias and the antibiotic suspectibility test done. Thank you in advance.

Hi Tasya, I responded to your email with more info. Melissa

Kerry says:

i’ve been getting mysterious “UTI” symptoms once every month but tests are always negative. Doctors just grasp at straws when it comes to diagnoses. Its going on for a year. I would endure it on my own for about a week and it would go away on its own. Then the following month the viscous cycle begins. Finally last month i went to the ER for and out of sheer luck I guess you could say my urine test tested positive for UTI. I thought finally after all these months it’s finally over, I’m going to have relief and be cured of this thing. I took Macrobid for 10 days, which BTW raised my alt and ast (liver levels) in my blood labs after being on it. Well not two weeks after being off of Macrobid the viscous cycle begins. It’s started happening again!!! HELP!

Hi Kerry, we hear stories like this all the time. You might like to read our info about chronic vs recurrent UTI, that helps explain what may be happening. Learning about the shortcomings of standard UTI testing is also helpful. If you have specific questions, you can send us a message. Melissa

Dhanya says:

Hi I am suffering from recurrent uti for past 4 years and it sucks..I am not on the pill.I hav taken cranberry extracts,macrobid and what not..i still live in fear of when it will strike next..in fact i am in the middle of another.losin hope here..the list of antibiotics i am sensitive to is growing shorter

Hi Dhanya, we hear many similar stories – you’re not alone. If you have any questions, you can always get in touch directly. Melissa

Mari says:

I googled ‘living in fear of next UTI’ and found your website. I’ve been requesting antibiotics to have on ‘standby’ for the last year but have been taking one every time I have sex. My doctor won’t officially prescribe me them to use this way but it’s the only way to keep the UTIs at bay. Im so sick and tired of poisoning my body though, I’m at loss!
Having read your story, I’m however staring to wonder if I should also come off the pill too. I’m reading Dr Jolene Brighten’s book ‘Beyond the pill’ at the moment and seeing some similarities with her theories on gut bacteria and the pill.
For everyone suffering out there, you’re not alone! Keep questioning your doctors and don’t let them get away with telling you to simply wipe front to back!!

Kym says:

I have IC and just recently started getting chronic UTIs. I know antibiotics are not good for IC and my anxiety over getting another UTI is insane. Do you have natural alternatives? Please help as I am so lost right now!

Hi Kym, can you send us a direct message with more info about your experience so we can share any resources that may be helpful? Melissa

Jonna Farner says:

Your story sounds similar to mine, aside from the fact that my tests do show bacteria. I have suspected a gut flora issue, and I’m taking a probiotic. I just don’t know enough about probiotics to know what all i need to take. The antibiotics help, but i 4 days out from ending a round of macrobid and my symptoms are returning. I am so frustrated, and kind of feel hopeless.

Hi Jonna, sorry to hear about that. Have you read the info our site about UTI testing and treatment? If you have questions, you’re welcome to send us a direct message so we can share information via email. Melissa

Celina says:

Please tell me the remedy you use. I’ve been having frequent UTIs especially a day or two before my periods begin. Its so stressing

Hi Celina, can you send us a direct message so I can provide more insight via email? Melissa

Hanna says:

It sounds like you had a fungal UTI from the start. They have the same symptoms as bacterial UTIs although fungal ones, based on candida/yeast, can add genital pain and wouldn’t be detected using the regular Western urine tests. Antibiotics worsen the overgrowth of candida. Glad to hear you found out what works for you – but please be careful advocating that people who experience UTIs should ditch antibiotics. If they do have an actual bacteria, they should consider antibiotics once natural supplements like D-mannose and oil of oregano don’t work (D-mannose kept me free from E. Coli UTIs for nearly a year).

Hi Hanna, while it’s possible I experienced fungal UTI (and my doctor did request tests specifically looking for this), it is very uncommon. There was some evidence of bacterial infection. The biggest problem here is a lack of accurate UTI testing, for bacteria or fungi. The only treatment option I advocate for is one that the individual is comfortable with and that is based on the best information available. For many people, that may be antibiotics. You mentioned D-mannose. I’m sure you know that while there is some evidence that it may be helpful in preventing E. coli UTI, there is not yet any strong evidence linking it to successful treatment. We’ve covered D-mannose here. Melissa

Veronica Castillo says:

I seem to have recurring UTI’s after my cycle. I have tried antibiotics that help when I take them but every month dealing with the pain is not fun. And not to mention that the antibiotics affect my already troubled digestive system. I want to thank you for sharing your story so that it can help.

Hi Veronica, sorry to hear you’re experiencing that. I’m glad you’ve found our site helpful. If you have any questions you can always reach out to us directly. Melissa

geraldine dalumpines says:

I’m now post menopausal and its a year now that i have my recurrent UTI. just like the rest been to anti bionics. Lately was the worst after a trip that the antibiotics has to be in dextrose for seven days in the ER. Its now back to normal but I hope and pray it won’t be back. Thanks for sharing me your experience and please share to me how you ended it.

Hi Geraldine, I also hope that’s the end of it for you. If you’d like more info about my own experience, you can send us a direct message. Melissa

Joanna Smith says:

Used to have recurrent utis and have one now after a year, we’ve had a lot of change in our life recently that has messed with my cycles and now this. I’m exhausted and am desperate to avoid more antibiotics – they clear up my infection but the side affects make me feel worse

Hi Joanna, we received your email, so we’ve sent you some info there. Melissa

Amy says:

I have recurring utis and it has progressed to 3 kidney infections in my life what did you use to stop it from coming back

Hi Amy, I can provide more insight into my own experience via email, if you send us a direct message. Melissa

Lisa says:

Hi Melissa, thank you so much for sharing your story! I can so relate. I’ve had recurring UTIs for at least the past 8 years, but much more frequent over the past few years. I always have AZO pills with me. Currently I’m on my 4th consecutive round of antibiotics. This has been the most stubborn episode ever. Just learned that e-coli is present. It could be I’ve been dealing with this a long time but follow up was never done after feeling better. I don’t like taking antibiotics but will finish this round and repeat testing in hopes to be clear. I’ve heard good things about probiotics but I’m not sure how or what to take. I’d like to take one now with this course of antibiotics (macrobid). I’m very interested in your opinion. Thank you, Lisa

Hi Lisa, I saw you sent us an email, so I’ve just replied to that with more info. Melissa

Deborah Grimes says:

Can you please share the herbal meds that helped you. I get a UTi every other month now. I’ve tried essentials oil and take TONS of vitamins and herbs. I obviously am not taking the correct combination. So sick of this and desperate. Thank you, Deborah

Hi Deborah, I saw you also emailed us, so I’ve replied there with more information. Melissa

Amy says:

Hi my name is Amy and I’ve been suffering from reoccurring uti’s for about a year and a half now. I’m at my wits end with doctors not taking me seriously and charging me ridiculous amounts of money for absolutely no help. I have been to a urologist who basically said my last 7 uti’s were not sent in for testing at his lab so there’s no way to be sure that they were actually uti’s. I am so frustrated and discouraged the thoughts I have when I come down with yet another uti are just generally not good at all. Please if you could please tell me what sort of herbal remedies might help I’d be forever grateful. I also have irregular cycles, gut issues and skin problems which makes me think this problem is much more common. Thank you for your story it’s given me hope.

Hi Amy, I can share more insight into my own experience via email, if you send me a direct message. Melissa

Melissa says:

Hi Melissa. My name is Melissa as well and I am extremely stressed and anxious as I’ve been having this issue for about 15 years. I can relate to a lot of what you shared and I do work with a urologist but I’d really love to get some insight into the regimen you started on that helped you personally. I know you told Amy above who was seeking the same information to directly email you. Do I just email you through that link? I’m sure that what worked for you may not necessarily work for me but I’m desperate for help. Please let me know how I can email you directly to gather more information. Anything would be so greatly appreciated. Thank you so much.

Hi Melissa, yes that’s the correct link. I see you already sent us a message, so I’ve replied by email. Melissa

Rex Ferguson says:

My daughter who is now almost 18 has had UTI’s her whole life, recently we have been to the ER 4 times in the last 6 months each time they give her nausea meds, cats scan, Urinalysis, and once they fond a kidney infection but most of the time its call a UTI and we are sent home and referred to yet another specialist??? Her biggest issue lately is Nausea along with the burning, so they prescribed her Ondansetron and long term Nitrofurantoin, when I read the side effects they both produce the nausea and dizziness and lack of energy. This has become chronic and we are lost in the pharmaceutical nightmare. Any advise you have would be greatly appreciated, we are getting desperate. ..its just not fair. !!

Hi Rex, I’m so sorry to hear your daughter is experiencing that. It’s a truly awful thing to go through. Can you send me a direct message with more info on where you’re based so I can share any resources that may be helpful? Melissa

Xandra says:

Hello, I am a 20 year old struggling with reoccouring UTIs and I would love to be sent the most recent updates on info on how to help UTIs if possible. This has really taken over my life as I know everyone here understands.

Hi Xandra, if you’d like to join our mailing list, you can do so above, or send us a direct message and I will provide a link. Melissa

Mandy Wells says:

Hi can you send me some information how you cured your uti I’ve been suffering since June 2018 on antibiotics at present still no difference my urologist says it’s an embedded infection. So would appreciate your thoughts thank you mandy

Hi Mandy, I can share more insight via email, if you send me a direct message. Melissa

Steve says:

My wife frequently suffers from UTI. it’s amazing to read your story. Would you mind emailing me your herbal regimen that worked for you?

Hi Steve, if you send me a direct message I can provide more insight via email. Melissa

Aparna says:

Hi Melissa, I have had many episodes of uti before. But I recently go one which keeps on recurring as soon as I stop antibiotics. I would like to know if you faced an issue like this and cured it

Hi Aparna, I got your email and sent some info to you. Feel free to send me any further questions via email too. Melissa

Jane says:

Hi Melissa, I have a recurrent UTI for last 3-4 months. I’ve undergone 4 rounds of antibiotics and find after a day or two after the antibiotics, UTI returns. Can you share any cure or advice. I’ve already seen two doctors and a Uriologist, but this seems never ending. Thanks!

Hi Jane, I can share more resources via email, if you send me a direct message with more detail. Melissa

Abby Mendez says:

Please help me. I have a six year old and fighting anxiety and neck pain. I want to be a better mom and be health2 for my family. I get recurring UTI s and is not getting better. What do I take?. I’m healthy besides this! What’s your regimen??? Please help

Hi Abby, can you send me a direct message and let me know where you’re based, so I can share any resources that may be helpful? Melissa

Nancy Davis says:

Hi Melissa,
It truly helps to know there are others out there, going thru this horrible cycle! I and post menopausal. I’ve had UTI’s since I was a child, but never this persistent. Would love to know your regimen.
Thanks,
Nancy

Hi Nancy, I’m happy to share more about my experience via email, if you send me a direct message. Melissa

Sheila says:

Hi ! Finally this website is the only one that I feel understands what it’s like, I really want my life to be back to normal when I didn’t have them! Please could you share specifically how you cured your UTIs ??

Hi Sheila, I can share more insight into my own experience via email, if you send us a direct message. Melissa

Patricia webb says:

Please tell me what you take. I’m miserable 😩

Hi Patricia, the regimen I created for myself was specific to the period during which I experienced recurrent UTIs. I’m no longer on that same regimen. If you’d like to know more about my experience, I can share some insights via email, just send me a direct message. Melissa

Kathleen Fidelia says:

Dear Melissa,

Thank God I am not alone.. I’m 22 years old and I have a reccurent UTI for about 4 years. It repeats every months and it bother me physicology that I have to go to ER mostly at midnight with my parents and I am ashamed of it, because I have to skip classes.I drank water like 4-5 L everyday and pee every 30 minutes because I am afraid of UTI. But recently, I went to genecologist and found out that I have vaginosis bacterialisis, high growth of bacteria in vagina, and prescribe me Lactobacillus vitamins to maintain the good bacteria. Because the good bacteria got killed when you eat antibiotics. Thank God, I am free from UTI since January, and I hope that my anxiety will disappear too! :’) . Thank you melissa for writing this so I know that I too can get free from UTI!

Hi Kathleen, I’m so happy to hear you’ve managed to overcome your UTIs and I hope you stay well! Melissa

Lauren says:

Hi, I have chronic kidney disease, kidney reflux and had my bladder reconstructed for the 2nd time last year. Since then I have been plagued with more kidney infections and bladder infections. I constantly feel like a donkey has kicked me and I hold my bladder like I’m cradling a pregnancy bump. I’ve had countless antibiotics. My consultant says I’m
“Just one of those people” that get it bad. Sorry for rambling on but I would be so grateful if you could email me your routine I’m willing to try anything.
Thankyou so much
Lauren C

Hi Lauren, can you send me a direct message, and I can share more about my experience via email? Melissa

Hannah says:

Hi!! This post was exactly what I needed, after days and days of research, no real help from doctors…. I have had 3 recurring UTIs in the past 8 months and nothing has seemed to keep them away, antibiotics don’t work, lots of water, and dmannose don’t do the trick either. I would love to know what you did to heal yours !? I am 20 and I feel like my life is taking a big pause because I have to sit and think about and fight my UTI symptoms daily!!!

Hi Hannah, if you send me a direct message, I can share more about my experience via email. Melissa

renee says:

Please help me with you regimen!!! I as well have recurrent UTI 🙁

Hi Renee, can you send us a direct message, with more info, so I can share via email? Melissa

Lauren says:

Dear Melissa, I apologise if I’m duplicating a comment – I don’t know if my original message sent or not. Your story filled me with hope and you described it all so accurately and I related to parts of your story so strongly! Please could you kindly email me with some more detail about your regimen? I am so interested and willing to find a solution for my uti symptoms. Thank you in advance. P.S. This website is a godsend for those of us who feel they are just hitting a brick wall and have no other help! 🙂

Hi Lauren, it seems as though your original comment didn’t send, so it’s good you tried again! I sent you an email with more info. Melissa

Lyn says:

Can you please share me your ways of curing recurrent UTI? I have been getting recurrent UTI 3 times in a row.

Hi Lyn, can you send us a direct message so I can share more via email? Melissa

Valerie says:

Both my daughter and I have been suffering from recurrent UTIs for years! We both have some horrific horror stories! We’ve tried everything! Right now, I use high PAC cranberry supplements in conjunction with probiotic pills/foods and a no sugar (as much as possible) diet. It has reduced the recurrences, but I don’t think it has completely rid me of them. My daughter still gets them even with the supplement regimen I spoke of. We are open to any ideas you have! 🙂 Thank you!

Hi Valerie, it sounds as though you’ve also tried many things! Can you send me a direct message with more info, and let me know where you’re based, so I can share any resources that may be helpful? Melissa

Dan Taylor says:

Hi Melissa,
Could you post or send me your regimen. It is for my 46 yr old handicapped daughter, who has been fighting UTI’s for years.

Hi Dan, I responded to one of your previous emails with more information. Melissa

Natasha says:

I have been suffering from recurrent UTIs and IC for 17 years. Cannot break the antibiotics/infection cycle for longer than 3 weeks lately. Any advice will help. I am desperate at this point. Thank you

Hi Natasha, I received your email as well, so I’ve replied to that with some more information. Melissa

Ania Komorowski says:

In May of 2018 my UTIs began. I went to urgent care, tests showed e. coli, took Macrobid. I still felt burning & urgency & went to urgent care but got no help. I got another UTI weeks later. I went to my vulvodynia specialist who said it was IC. In June another UTI, in July yet another – all e.coli. Urgent care said to take daily preventative antibiotics. Having chronic digestive issues, I said no. I managed with d-mannose as a preventative. I found a functional medicine doctor to try to figure it all out & was diagnosed with SIBO. I began treatment in November & was ok until December when I got lax with d-mannose & got another UTI. I have been strict with d-mannose & have not had another UTI, but my bladder still bothers me. Is there hope for a life without pain & daily d-mannose?

Hi Ania, I know it can be a rough journey and I feel for anyone who has to experience it. The short answer is yes, there is hope. We have heard from people who have recovered from recurrent UTI after 5, 10 or 20 years of terrible symptoms. For others, the battle to find answers continues. There are some great researchers working on the problem, and we hope this work will result in more treatment options for sufferers. If there is anything you think we can help with, you can always get in touch directly. Melissa

Elana says:

I have never related to something so much in my life. I love how it never stopped you from traveling and doing what you were passionate about. I feel like I’m getting to the point where I can’t leave the house and doctors are no help. What do you take to stop it?

Hi Elana, I often look back at the really symptomatic times and wonder how I did much at all. I definitely had my fair share of being glued to the toilet, and ER visits. I can share more insight into my own process by email, if you send me a direct message. Melissa

Josephine says:

Hello Melissa. Thank you for sharing for your story. I frequently experience the excruciating symptoms of UTIs (I’m currently going through it right now). I would love to learn more about the methods/treatments that are currently working for you. Could you please share?

Hi Josephine, I hope the worst of it is over. I got your email and have sent you some more info about what I went through to find my way out of recurrent UTI. Melissa

Mae says:

I would like to know more about your approach on chronic UTI. Please send me information. Thank you

Hi Mae, I got your email too, so I’ll reply there with more info. Melissa

Karen says:

Help! Need info on how you stopped your chronic UTI. I have recurrent hemmoragic cystitis, and having a difficult time dealing with this!

Hi Karen, we sent you an email with more info back in February. If you didn’t get it, can you send us a direct message so we can check your email address re-send it? Melissa

Pearl says:

My new urogynecologist has me using an estrogen cream and taking macrobid daily. I had a course of Mactobid twice daily and after 3 weeks it was reduced to once daily. Yesterday, I stopped taking the Macrobid because I was having shortness of breath and trouble breathing when I went up steps etc. Today, one day after stopping the Macrobid, I have the symptoms of a UTI. This doctor said I have persistent UTIs. I have been taking cranberry pills and drinking Kiefer yogurt for several years. Nothing works. Right now, one day after stopping the Macrobid I have all the symptoms of a UTI back. I have met with a urologist (for years) and recently with an infectious disease doctor (twice). I am allergic to sulfa drugs and penicillin.

Hi Pearl, if there are any resources we can share, or if you have any questions, feel free to send us a direct message, and we can get back to you by email. If you provide some info on where you’re based, that can also be helpful. Melissa

Meghan Middleton says:

Melissa, I have suffered throughout my life with UTIs. I have been experiencing one as of now for over a month. I have been taking raw probiotic and watching my sugar intake and funneling lots of water but can’t seem to get rid of my symptoms . Antibiotics kill me. What is your secret? What herbs do you use?

Hi Meghan, I can share more via email about how I came up with my own approach, if you send me a direct message. Melissa

Claire says:

Hi Melissa! Please help I’m 23 and have constant UTIs (also without sex). The more antibiotics I take the most I get.

Hi Claire, can you send me a message with more info about where you’re based so I can share some info via email? Melissa

Moran says:

I am speaking on behalf of my mother , she has been suffering from URI for 3 years and keep having a high fever with that , the doctors keep giving her antibiotics and nothing helping ,it is coming back every couple of weeks, can I get more info to help my mom?

Hi Moran, sorry to hear your mother is experiencing that. Are you able to send me a direct message with more info about where you/your mother are based, so I can share more detail via email? Melissa

Dani says:

Hi,

I’m glad I came across this since I relate to your story. I’ve been suffering from recurrent UTIs for nearly eight months now. I’ve tried drinking cranberry and taking D-Manose tablets but I constantly get them. I’m just wondering, how did you manage to get rid of yours?

Hi Dani, I’m happy to share more by email about the process I went through to find an approach that was right for me. Can you send me a direct message so I can reply? Melissa

Linda says:

Thank you for sharing your story. I’m so glad you no longer suffer from this. To do all the research to help your self and now others is wonderful. I actually had an UTI 1 time when I was around 19. I drank cranberry juice and it went away. Fast forward about 34 years. I had a pretty big problem with leakage. I had surgery for a sling. Not mesh.
Fast forward about 6 months.
The 1st UTI of many. I’ve been off and on antibiotics for 2.5 years. I have had all the test. The scope and CT scan.
I tell my Dr that I don’t think it goes away. The day after I finish the antibiotics it’s back. They do another culture. I will add, that each test cost around $108 and as many as 3 a month and always at least 1. I do not think it is good to to take antibiotics all the time.

Hi Linda, I can sympathise with at least some of what you’ve experienced. It’s extremely frustrating! I hope you find answers very soon. If you have any questions or if we can help in any way, feel free to message me directly. Melissa

Mary Kay says:

I would love to learn how you stopped having UTIs since I struggle with them too. Thanks for your help! Mary Kay Henley

Hi Mary Kay, can you send me a direct message so I can email you some more information? Melissa

Tom says:

Hi melisa
I read your story and it was really touched and then at last how you solved the problem.
I too have recurring uti which have tried to treat with antibiotics but failed to cure.Please tell me also the herbs you used to cure yours
Thank you

Hi Tom, can you send us a direct message with more info about where you’re based etc? I can share further details via email. Melissa

Cami K says:

What was the regimen you took to get over your chronic UTIS? I have the same exact problem.. had it for 3 years, they come and go and doctors have no answers.

Hi Cami, I received your separate email, so I’ve just sent more info to you that way. Melissa

Kirsty savage says:

Hi Melissa, your story resonated with me so much ! I have suffered with chronic UTIs and kidney infections for 24 years now ( I am 26 nearly 27 years old ) I have got to a point of despair, researching to try and find a miracle cure, when I have taken a course of antibiotics I get another UTI the same week, Could you please give me more info on your regime I am desperate, thank you

Hi Kirsty, it’s amazing how many people relate to my story. I can share more details about my own experience via email, if you send me a direct message. Melissa

Tina says:

I cannot tell you how many times I have sat on the toilet searching online for relief of my UTI symptons or laying in the tub searching for why ME? Why do I constantly get horrible UTIs that seem to come on in a matter of hours. Reading your story I have found so many similarities, carrying antibiotics in my purse, visits with Urologists that have no clue and think I’m over reacting, Urine cultures that say there is no bacteria present but I have blood and protien and everything present. I’m currently dealing with my second UTI of the year. Just went in and got my UA done and now waiting to hear back from my urologist. I’m so discouraged, please help, any more in-depth info about your regimen or what I should be looking for to see what my body is lacking.

Hi Tina, I got your email too, so I’ve replied there with more information. Melissa

Linden says:

Hi Melissa, reading your story was honestly terrifying and refreshing. I’m on month four of my recurrent UTI’s. I’ve been prescribed antibiotics around 10 times during that time period. I’ve been trying dmannose, probiotics, a new post-sex drink by uqora but things are only getting worse. I got a UTI on the past two flights I was on and basically lived in the bathroom. If you could share any specific recommendations with me I would appreciate it so much. I have my first specialist appointment with a urologist Friday but I imagine it will be classic western medicine bs. Anything helps — you know how emotionally taxing this can be and I’m losing hope.

Hi Linden, I’ve sent you an email with a couple of questions and some more information. If you have other questions, you can get back to me there. Melissa

Karen says:

Hi Melissa,
I read your story and im so happy that you have recovered. Also, im happy i found your article and got to read it. I have been suffering from recurrent UTI for the past 3 months now. I keep getting 1 each month and still don’t know the cause of it. I think you can imagine how i have been feeling. I’d really like to know your experience and how you recovered from it. Thanks for sharing your story.

Jidske says:

Hi Melissa, I recognized a lot in your story and I really would like to know what your regime was that solved your UTI’s. I have recurrent UTI’s since over 5 years now and I often feel like this is something I have to live with..but maybe not!

Hi Jidske, I truly hope it’s not something you always have to live with. I’m happy to share more about the process I went through, via email. Feel free to drop me a direct message so I can respond. Melissa

Hi Karen, I’m happy to hear you found reading my experience helpful. I can share further details via email, if you send me a direct message. Melissa

Christine Hill says:

This is so helpful. How can I start my own regimen?

Hi Christine, I can’t recommend anything specific, given everyone’s symptoms and causes are different, but I can share more about my own experience via email, if you send me a direct message. Melissa

Manisha says:

I’m suffering the same way. Recurrent uti is my horrible fate. I would love to know how you conquered it

Hi Manisha, if you send me a direct message, I can share more information about my own experience, via email. Melissa

June says:

I am also very interested in your regimen. As a life long sufferer I have turned to supplements with some success. I would love to know what worked for you!

Hi June, I see you also sent me a direct message so I’ve replied with more information via email. Melissa

Norma says:

I am suffering the same way you have ! I would love to hear how you healed ! I am on preventative anti biotic and hate taking them ! I started drinking celery juice in the morning on an empty stomach because I’ve read it helps. Please help me!

Hi Norma, I can share more about my own approach via email, if you send me a direct message. Melissa

Brooke Tucker says:

I would love to hear about your approach to living uti free. What is your personal email?

Hi Brooke, all messages via our contact form come directly to me, so you can get in touch that way with any questions. Melissa

Penelope says:

Have you ever tried D Mannose? I have heard it is great for treating and preventing UTIs.

Hi Penelope, we’ve covered the research on D-mannose on our site, here, if you’d like to read it. We hear from many people who have found it helpful, but probably just as many who haven’t. So far, it has only been shown to interact in a potentially beneficial way with E. coli, but it’s possible it provides similar benefits where other bacteria are involved – we just don’t know yet. Melissa

Mel says:

Hi,
I am in the middle of a 3 week bout of a UTI and i am having a really horrible time. I have been through 2 rounds of antibiotics and also started a course of preventative antibiotics. I have had samples sent away and they have been coming back clear but i have been on the toilet non-stop and in a world of pain.
I have read all of your helpful pages but am wondering how you went about even starting/researching and implementing your own regimen?

Thanks!

Hi Mel, I’ll answer both your comments in one response. Melissa

Shannon monck says:

What was your regimen

Hi Shannon, I got your email as well, so I’ll send you some more information there. Melissa

Mel says:

Hi there,
I loved reading this as I could relate so much. I have suffered chronic and recurrent UTI’s for years also. I have one currently that has hung around for close to 3 weeks which led me to find your story. I have had doctors visits, antibiotics, preventative antibiotics and an ultrasound, and nothing is working. This is the worst one I have had yet and I am feeling quite depressed over it as it is interfering so much with my day to day life.
May I ask how and where you started in coming up with your own regimen? Thanks you

Hi Mel, I can understand your frustration. I know you said you’ve read most of our site, but can I ask if that includes our information about testing? As for how I came up with my own approach, that’s a good question. For me it was a progression from antibiotics alone, to antibiotics plus non-antibiotic remedies, to no antibiotics – I tested many different remedies as most people tend to, and I documented my symptoms 3 times a day to monitor any changes. I can tell you more about my approach via email, if you send me a direct message. Not enough room here! Melissa

Patience says:

I liked yo story but how did you cure the recurrent UTI?

Sharon says:

Hi Melissa! I have been having recurrence of UTIs going on 6 months. Please share how you overcame it. I am struggling…

Hi Sharon, can you send us a direct message so I can share more insight via email? Melissa

Hi Patience, as I mentioned in my story, it’s unlikely my exact approach will work for the next person, so I don’t publish details online. I’m happy to share more about my experience via email, if you’d like to get in touch that way. Melissa

Alex says:

I went from no UTIs for years to the longest UTI (for me) lasting 3 months now. No wine, no coffee, and terrified of sex. My three favorite things are being sacrificed and no doctor to help!

Would love to know more on how you solved this issue, bc my doctor seems to think I am fine but I really am in pain and I know my body doesn’t feel right!

Hi Alex, can you send me a direct message so I can share more via email? I can give you more info about the process I went through to find my own solution. Melissa

Kate says:

I’ve been dealing with UTI and loved your story but would like to hear how you got cured

Hi Kate, if you could send a direct message, we can share more information that way. Susy

Alyssa says:

I became sexually active 5 months ago and have had 2 UTI’s since then. Last weekend I took an at-home test that was positive for leukocytes. The clinic said my urine was clean, but I still have symptoms. They had no answers. What are your thoughts?

Hi Alyssa, standard urine culture and dipstick testing methods have numerous issues and are unreliable in detecting infection. Because of their inaccuracy, it is possible to receive negative test results even when an infection is present and you are experiencing symptoms. If you haven’t already read about this, you can learn more here. If you have further questions, feel free to get in touch directly. Susy

Dale says:

Hi! I’d also like to know the regimen described above. Can you send please?

Dale

Hi Dale, if you’d like to send a direct message, we can share more information that way. Susy

Sierra says:

What exactly did you start taking to make them stop, I’m 23 years old and I’ve been getting them for about 2 years symptoms will go away when I’m on antibiotics but I can’t keep taking them.

Hi Sierra, if you’d like to get in touch directly, we can share more information. Susy

Laura says:

I’ve had 3 this month alone, the 4th one this weekend! I keep taking the sachets from the pharmacist. It’s so disheartening when it comes back, I’m worried it’ll come again. This isn’t over for me yet 🙁

Hi Laura, I know that feeling. If there’s anything you think we can help with, feel free to send us a direct message with your questions. Melissa

Bertina Sleppy says:

I have had recurrent UTI’s since I was 18 I am now 54. They did go away for a while but for the last 6 months have come back with a vegence.

Hi Bertina, that’s very frustrating I’m sure. If you have any questions, or would like specific resources, you can send me a direct message. I’m happy to help however I can. Melissa

Tiffany says:

I had never had a UTI until the last year and now I’m on my third one! I can feel the symptoms, i have already started a diet to help heal my gut but am i going to have to get antibiotics atleast this one last time? Please help.

Hi Tiffany, it’s always best to see a practitioner when you have symptoms. You can discuss with your doctor whether they think antibiotics are necessary. If you have any questions, I’m always happy to answer via direct message. Melissa

Katie says:

I’m almost one year in having recurring uti’s. Never had them much at all until this past year. Now it’s 1-2 times a month. I’m not getting any answers from my doctor about why.

Hi Katie, I can sympathize with your frustration. If you have any questions, you can email me, and I’ll share any resources that may help. Melissa

Cathye Michaelson says:

I, too, have basically the same story. I’m 73 and have had this for more than 40 years. Mine has been diagnosed as E. coli. I’ll be glad to give details thru email and would appreciate the vitamin and mineral regimen. I do take probiotics and like others have replied, I take a low dose antibiotic daily. Appreciate any help please.

Hi Cathye, if you can send me an email via our contact form, that would be great. I can share further resources that way. Melissa

Taylar says:

Wow! amazing story and quite similar to mine I’ve tried almost everything with no luck! I would greatly appreciate if you shared your vitami regimen with me please! Thank you.

Hi Taylar, I’m still surprised by how many people have shared similar experiences. At the time, I had no idea it was so common! I can provide more detail about my own experience via email, if you send me a direct message. Melissa

Sarah says:

Kindly let me know the regimen you went through to get yourself cured completely. Specifics please, of the minerals and probiotics.
TIA

Hi Sarah, I can share more information via email, if you send me a direct message. Melissa

Betty says:

I am elderly and have had UTI for years. I take low dose antibiotic (macrodantin)
almost every day. I also take probiotics. Are they all destroyed by antibiotic?

Hi Betty, that’s a great question, and one that research is still yet to answer in enough detail. It is generally believed that some probiotics can be inhibited by antibiotics and should be taken at least 2–4 h after the antibiotic dose. This would imply that the potential positive impact of probiotics is not completely negated by antibiotic use. We hope to see more research into probiotic use for UTI prevention and treatment. We’ve covered probiotics in more detail here. I hope this helps! Melissa

Alisa Santiago says:

I am also interested in learning about the minerals, and probiotics you used to cure your chronic UTI’s

Hi Alisa, I received your direct message, so I’ll share more information via email. Melissa

Madyson says:

I’m on my 3rd UTI in 6 months. I’m 22 and have never had them before the end of this year and I don’t know what to do. The doctors give me a different antibiotic each time, but they keep coming back. Usually right after my period. I don’t know why this is. I take a cranberry supplement, probiotics, drink water, do everything i can possibly think of to keep another UTI from happening. I’m interested in regimen you used to help them stop. Please, I’m looking for any help I can get. I’m so stressed and depressed and just want to be able to be intimate with my partner again without fear of another UTI.

Hi Madyson, I understand how you feel. Recurrent UTIs impact so much more than just your bladder. I can share more information about my own experience via email. Just send me a direct message so I can reply. Melissa

Meaghan says:

Could you please also share your dietary changes and combination of supplements you used.
Thank you so much

Hi Meaghan, I see you also sent me a direct message, so I’ll share more information that way. Melissa

Devon Wilkinson says:

Hey! I thought recurrent uti’s were just me..I’m glad I’m not the only one. I’m curious though, what change did you make in your diet? Ive been having digestive problems recently as well and maybe changing my diet can help with both the digestive problems and my recurrent uti’s.

Hi Devon, you are definitely not the only one who experiences this! I tested a number of changes to my diet to find what worked best for me. If you’d like more information, you can send me a message and I can share more via email. Melissa

Felicia cook says:

What is your diet or plan to prevent UTI’s? What types of foods do you eat or stay away from? Please reply.

Hi Felicia, I can share more detail about the process I went through if you get in touch by email via our contact form. Melissa

Reina says:

I would love to know more about the diet changes you made. I am currently at, what I hope is anyway, the tail end of my tri-monthly UTI. I am so careful and this time I tested positive for EColi. Most of the time it was high leuketones or whatever and nothing else. I also carry my prescription around with me and get panicky when it gets low. Please drop me an email and THANK YOU for your story!!! Everything I find was posted in like 2006, 2011 so your recent post was a breath of fresh air!!

Hi Reina, sorry for the delayed response, we’ve been getting a lot of messages! I can share more information about the dietary changes I tested via email, if you’d like to send me a direct message. Melissa

Suzanne says:

Hi, I found your article today after coming home from another urologist who told me that I do not drink enough water. I’ve had constant UTI s without a break for the past 3 years. My last “big one” landed me in the hospital bc it had made its way to my kidneys. They released me but with 2 Pic lines bc this infection was antibiotic resistant. After over a month of IV antibiotics, it came back clear. I was so happy, but by the third day of what I assumed was freedom, I had another one. Again with another 21 day antibiotic. I stopped 3 days ago and I just found out I have another one. I feel like giving up.

Hi Suzanne, that’s so frustrating. You’re not alone in that experience, we hear from many people with similar stories. If you’d like more information about anything you can always send me a direct message. You also might like to read a study published earlier this year, that talks about why longer term treatment may be needed where chronic infection is involved: https://link.springer.com/article/10.1007/s00192-018-3569-7. Melissa

Giovanna says:

Hi! Thank you so much for your article. I have tears in my eyes after this last uti that lasted a month. I’m still with symptoms and my test came back clear. I’m terrified, I carry antibiotics for years, take dmanose, cranberry… you name it. Would please share with me what have helped you? I have on and off have utis for the past 20 years! I’m losing my mind, hope and so tired of not feeling better. Thank you so much!!!! Gio

Hi Giovanna, I can sympathise with how you feel. I see you also sent me a direct message, so I’ve replied by email with more information. I hope you find some answers soon! Melissa

Celene says:

Can recurreny yeast and bv infection be cured?

Hi Celene, cured might not be the right word given it’s possible to experience these in the future, even if you recover from symptoms now. In my case, I suffered from recurrent yeast infections at different stages throughout my life, and as per my story above, went through of phase of constant symptoms for multiple years. I managed to rebalance my microbiota and have not had any yeast related issues for more than 3 years. Many people have reached out to let us know they have also recovered from yeast infection or BV, but it has often been after adopting a different approach to treatment. If you’d like more info or have other questions, you can send me a direct message. Melissa

Inmaculada Ortiz Montiel says:

Hey! I am so relieved that i have found this website… i am now living in berlin. Three utis in a year… how can i learn more about what worked for you?

Hi Inmaculada, I saw you sent me an email too, so I’ve just replied to that with more information. Melissa

Jessica says:

Hi Melissa! What was your regimen when you finally kicked UTI’s? What probiotics were you taking and what antifungal herbs were you taking? I’d like to compare it to my list 🙂

Hi Jessica, you’re welcome to send me a direct message if you’d like more detail about my approach. We don’t publish specifics online as it’s very unlikely my own regimen will work the same way for the next person. Melissa

Merissa says:

Hello i left my email if you could let me know what regimen worked for you? I have recently been getting very painful uti that is effecting my everyday life. And as you may have experienced its difficult to put all your faith in western medicine, i am planning on seeing a doctor but was just in antibiotics not very long Ago.I would like to know a more naturalway to help long term effects since I’m worried this might be a big issue for me.
Thanks

Hi Merissa, as you requested, I’ve sent you more information via email. Melissa

Meghan joyce says:

Hi Melissa – thanks so much for writing this. I’m hoping to learn more about your regimen for minerals and probiotics. I am approaching the year 2 mark of recurrent uti’s and experiencing the hopelessness that comes with it all. I am tearing up while writing this. I’ve even had a cystoscopy surgery done by a urologist. Wasted so much time and money in and out of doctors offices and all I want is to have a normal sex life with my boyfriend. I have thought about cutting out carbs and sugar so you have inspired me to start that but I would love to learn more about which probiotics, vitamin c and other supplements you have added in. Please help!! Thank you <3

Hi Meghan, I can understand how you feel. I’ve definitely been there! I don’t share my regimen publicly as it certainly doesn’t apply to everyone. If you’d like more info, you can send me a direct message. Melissa

Teddy Williamson says:

I am a 78 year old retired female and have been dealing with UTIs and Interstitial Cystitis for the last 5 years. 2 years ago l went to a urogynacologist who diagnosed me with Bladder Ulcers. When he did the first cystoscopy it looked as if the catheter had been inserted into a bag of blood. He took me to surgery and did an ablation of the ulcers. A Physical Therapist taught me how to relax the bladder muscles to avoid the muscle spasms. This help me get the painful spasms under control.
The spasms had been the worse part of my IC diagnoses.There have been times that I have seriously considered a cystectomy.

Hi Teddy, I’m so sorry to hear you’ve been dealing with this. If there are any resources you think may be helpful, or references we can provide, please feel free to get in touch with me directly via email, and I’ll get back to you asap. Melissa

Ceira says:

I have suffered with recurrent UTIs for the best part of half my life. I’m 32 next month and in the last 4 weeks alone I have had 2 UTIs, one of which ended up as a kidney infection as the antibiotics didn’t work. Can you give me any advice on what herbal remedies to take to help me with my gut flora and to boost “good” bacteria.
Like you I am desperate to just lead a normal life where I’m not dictated to by the dreaded onset of a UTI.
Regards Ceira

Hi Ceira, we’ve covered some natural remedies here. If you’re interested in the process I went through, you can send me a direct message. I don’t share my specific regimen publicly as it’s very unlikely to apply to the next person. It’s always best to try and get to the root cause of your own symptoms first. Melissa

Precious says:

I want to ask this embarrassing question,I am lady 42 years of age,i have three children,I’m taking a depo shot as my birth control.its been 7 years now.So my problem is I did not have a boyfriend for the past year until now,l have a boyfriend,we have been dating for 6 months now.
Our problem is one he is not big at all,but the problem is whenever we have sex there blood coming out from my Virgina,and it’s a lot.I just want to know what could be the cause and how do I prevent that from happening,because he is worried he probably hitting the wrong spots.Please help.
Precious

Hi Precious, it’s a good idea to speak with a specialist about unusual symptoms – a gynecologist or urogynecologist may be able to help you pinpoint why this is happening. If there’s any information you think we can help with, please feel free to send me a direct message. Melissa

Carri Gustin says:

What was your regimen that kept the UTI’s away. I’ve had one every other week since July.

Hi Carri, because the cause of each person’s urinary symptoms is different from the next, we don’t share specific recommendations on our site, as they tend to be unhelpful. If you have questions about my regimen, I’m happy to answer what I can via a direct message. Melissa

Kat says:

I am so glad I found this site. I thought I was alone in this. I have been suffering with both recurring UTIs and yeast infections for years! I’m getting married in a few months and I really don’t want this to be my normal.

Hi Kat, I’m glad you’ve found our site helpful so far. If you have any questions, you can always get in touch. Melissa

sharon hancock says:

what is your answer

Hi Sharon, if you have specific questions I’m happy to answer them by email, just send me a direct message. Melissa

Amanda says:

The worst thing about recurrent UTIs is that I stopped wanting to have sex, and of course that affected my relationships and probably factored into my recent divorce. It’s really awful being afraid that every single time you have sex, you’re about to once again cause yourself an intense week of pain, anxiety, and wasted time at the urgent care center.

Hi Amanda, I know exactly how that feels! So much time, money and emotional energy is consumed by this, for so many people. If you have any questions or would like further resources, feel free to send me a message directly. Melissa

Andrea says:

Omg – thank you, thank you, thank you so much for creating this site. I’m off this afternoon to see my GP AGAIN. Urine culture test result negative AGAIN – but still have UTI symptoms AGAIN – despite antibiotics AGAIN. Only this time thanks to this site I have lots more information and knowledge to take with me!! Thanks guys!

Hi Andrea, I’m glad we could help. If you need specific references to take with you, you can send us a message. Melissa

taylor p says:

Hi, I’ve been dealing with chronic UTI’s since I was about 7 years old and I’m now 20. Unfortunately it’s just gotten words through the years and I can’t do it anymore. I hate going to the doctor for it to just get a yeast infection after antibiotics so I try cranberry and cranberry juice. I’ve just started probiotics and AZO is an every other day thing that basically doesn’t even work anymore. I wear cotton underwear and use all hypoallergenic. I have now missed work the second day in 2 weeks and need answers and I do not know where to begin. Please help!

Hi Taylor, many people say the thing that helped them the most was finding a practitioner with experience diagnosing and treating recurrent UTI. If you send me a direct message, I may be able to share some useful info. Melissa

maegan diefenderfer says:

Hi, i’ve just turned 19 years old and I’ve suffered from 3 utis in the last 2 months i am completely miserable and constantly living with the fear and anxiety of another one coming. I’m so nervous i will have to live with this for the rest of my life or atleast for a few more years and the pain is so bad it effects my schoolwork, makes me call out of work sick, and is effecting my relationship. I’m really hoping it will get better soon but i’m worried it won’t.

Hi Maegan, many people say finding the right practitioner was the key to finding an answer to their ongoing symptoms. If you’d like more information on this or anything else, you can get in touch directly. It may also help to learn more about the limitations of standard testing, and alternative testing options. Melissa

Kim says:

Is there any brand of toilet paper you would recommend or other things I can try to do to help try to prevent recurrent UTI’s. I have them all the time and when they come on they hit me hard and take me down fast. The pain is excruciating and in most cases it is always a long wait at Urgent care to get treatment of antibiotics.

Hi Kim, we have covered some UTI prevention strategies here, but the truth is, you can have ‘perfect’ hygiene and still get UTIs, and in that case, our article about how UTIs can become chronic might be a more useful place to start. Melissa

Neha says:

Please help , my UTI caused by e-coli is as frequent as 5 days ,as soon as I get off antibiotics it starts again . Every time I have sex I get a UTI within 10 hours. I have tried everything from d-mannose, probiotics, Olive leaf ,but it’s not going away. I had temporary relief in summers when I started taking d- mannose powder but it seems to be not working now. My urologist is also not able to help.

Hi Neha, it’s possible E. coli is not the only culprit for your symptoms. It is certainly the most likely to show in standard testing. If you haven’t already, I’d suggest reading our info on why you shouldn’t rely on standard testing, alternative testing methods that are available, and different approaches to chronic UTI treatment. You can also send me a message directly if you have other questions. Melissa

Marielle says:

I have had them on and off for years but this year (2018) it seems like the worst yet! I had one in the spring and then got a bad one in May but I take D-Mannose bc I know taking too many antibiotics is counter productive in the long run. It ended up being a staph infection in my bladder. Then that one came back in July! Now I have a UTI again. Its not a bad one but the D-Mannose isn’t being as effective as it normally is.

I got an ultrasound done and I do not eliminate completely so I am seeing a PT to strengthen my pelvic floor muscles which is supposed to help.

Other than that, I eat paleo most of the time. Im a Health Coach for women with autoimmune and gut issues since I myself have MS (no issues with it though). I was wondering what diet you are on now? Did you do AIP?

Hi Marielle, I didn’t follow a specific, documented diet, but I had transitioned from vegetarian to vegan, and I avoided processed sugar plus foods naturally high in sugar. As I mentioned in my story, I did this in an effort to improve my gut issues, rather than to directly impact my UTI symptoms. For me, it took a great deal of trial and error to find what worked for me, and it’s unlikely my final regimen would work in the same way for the next person. I’m no longer on such a restrictive diet, but I more or less stick to the healthy eating principles I picked up then. I hope you find what works for you too. Melissa

Debra says:

Thank you for sharing your story. I am searching for answers as I am currently struggling with an UTI. I have been struggling with immune issues since 2009. I was diagnosed with chronic fatigue in 2010 and tried many types of treatments with no success. In 2017 I was diagnosed with Lyme and co-infections which completed the puzzle for me. I have been treating holistically and doing better except for the lingering UTI symptoms. The UTI seems to relate so much to what I am experiencing with the Lyme (which is really an immune dysfunction caused by stealth microbes hiding in biofilms!). You described something very similar regarding biofilms…and got my attention! How can I look into this further and get more information?

Hi Debra, it sounds like you’ve made some great progress. I’m not sure how much of our site you’ve read, but a good place to go next is our content on chronic UTI, then why UTI tests may be negative or inaccurate and therefore be an obstacle to full resolution of the issue. Feel free to get in touch if you have questions about those. Melissa

Phyllis K Pecar says:

I am having recurrent UTI’S. WHAT CAN I DO antibiotics are way too much. I get about every 3 months so I don’t think I get rid of them. Not many antibiotics left I can take please help me.

Hi Phyllis, sorry to hear that. Can you send me a direct message with some info about where you’re located so I can share any resources that may be useful? Melissa

Phyllis K Pecar says:

I live in the midwest. Indiana. Please help me

Hi Phyllis, I saw you sent us an email too, so I’ll send you some more info in response to that later today. Melissa

Kate Safford says:

UTIs since I was 16, now 71. Now have chronic UTIs, IC diagnosis, Primary Immune Deficiency-CVID, survived a rare Middle Colic Artery Aneurysm, lost my spleen, Transverse and Ascending Colon. I have just read about DNA testing. My son, a microbiologist, so we have lately been discussing remnant bacteria that is possibly dismissed due to a count lower than 5,000 when the traditional culture plate testing is used. All that shows up on my “final” culture testing is the bacteria that grows the fastest and at the highest count. What you know about DNA testing? When a UTl hits, due to the immune deficiency, that means the hospital stay for me and now in the past two months have tested for E-Coli ESBL (a superbug, a termed coined by the media). Help!

Hi Kate, we have some information on our site about alternative testing methods, including DNA sequencing. We’ll also soon be publishing some more in depth articles about two types of DNA sequencing available in the USA (so I know quite a bit about what’s currently available). I’m happy to share more information via email if you can send me a message. Melissa

pauline says:

having utis since before 2012 i am atmy wits end. my llast sample from lab is negative and i know it is not- i have a full bladder feeling that has no output,as soon as i ‘go’ a dribble comes out,and then i need to go again about 10 miutes later but nothing! i have had e coli and no end of infections but not told the other infections, just that i have blood or white cells in urine sample,
i am worn out and never feel well and i can no longer stay out for long as i cant walk with my psuedo full up bladder,i am in uk and at my wits end i cant keep taking antibiotics and now told i have no infection when i know i do, i wanted to read how you best it melissa but your story ended and icant find the rest.

Hi Pauline, I can understand how you feel, it’s exhausting and frustrating, and emotionally traumatic. I didn’t share the exact products I used to recover as I know the right treatment is different for everyone, and it doesn’t make sense to try someone else’s regimen without knowing what’s causing your UTI. Regarding your negative tests, have you read our article on why tests can be negative despite your symptoms? I saw you sent me an email too, so I’ll respond to that with further info. Melissa

Desiree says:

I have had recurring UTI’s for many years. I just turned 46 and this most recent UTI has lingered for over a month or two. I was on Cipro 500mg bid for 2 weeks, then on Macrobid 100mg bid with my last dose on 8/20/18. I went to my OB GYN today and my urinalysis results were negative, although I have the pelvic pressure and urge to frequently urinate. They sent the urine sample to be cultured at a lab to make certain that my urine isn’t too diluted (because I drink a lot of water) and there are no signs of bacteria. OB GYN is leaning towards IC because of the negative UTI results. I have my Urologist appointment next Thursday, 8/30 and am so terrified. Were you ever diagnosed with IC?

Hi Desiree, during the 5 years I suffered from chronic UTI, the label of IC was suggested to me, but as it is a diagnosis of exclusion rather than an identification of a cause, I chose to ignore it. In my case that turned out to be a good decision. If you haven’t already, you might like to read our info on why tests can be negative despite your symptoms. It’s a good place to start to find a different approach to this. You can reach out to me directly if you have other questions. Melissa

Kat Kam says:

Hi Melissa, I know how it feel. I’m 18, I have had utis since I was 15 🙁 I’ve tried cranberry pills, I’ve changed my diet, I’m hygienic, I take d mao., I drink a normal amount, I have vitiman C, I wipe the right way, I pee when I need to, I take so many teas… and not resolved. It’s affecting my physical and mental side or more simply my whole life. My relationship, my education, my money, everything. It’s like a curse. People stay stay away from antibiotics well they’re not making any difference staying away from them. I feel like a failed experiment. I feel like I’ll never be fully happy about anything again. I feel like I have to constantly stress about it everyday. When will this stop?

Hi Kat, I understand how you feel. Have you read our info about chronic infection, alternative testing methods and different treatment approaches? If you have and you have questions, you can message me. Melissa

Kim Devito says:

It brings me hope that you are healed. I’ve suffered for two months and two antibiotics later and I’m still not well. Seeing a urologist Friday. Cannot wait.

Hi Kim, I hope you’ve found a urologist who has experience diagnosing and treating chronic UTI – most specialize in male urology and urological surgery rather than chronic UTI. If this practitioner can’t help you, don’t lose heart, there are others out there who can! Feel free to send us a message if you’d like more info. Melissa

Betty says:

Tell my story you ask. Well, we would have to go back to childhood. No antibiotics back then. in the last calendar year I’ve had eight. Time to do something different…. But what?

Hi Betty, definitely sounds like it! I noticed you emailed me too, so I’ll respond to that now. Melissa

Destina Hall says:

This has been my life. How can we find out your regimen? I am in desperate need of some help. I can no longer live my life like this. I am only 22 and am completely miserable. Trying to be the best mom I can be to a 9 month old and my uti sypmtoms make me this wife and mother I don’t want to be. Always tried, in pain, and irritated! Also I would love to know what diet changes you made? Thank you so much. Sad you went through this but glad you decided to share your story. Some of us are really struggling out here.

Destina Hall says:

I want to burst out in hysterics after reading this. I have done research on top of research trying to find answers on why I can’t beat my uti. I haven’t been completely symptom free since I had my son almost 9 months ago. I’ve been to doctor after doctor and honestly I can’t afford another visit to the OB or urologist, both time and money wise. I’m at a loss and know I can not keep living like this. How can I find out what your regimen is? I will be forever grateful. I’m so desperate. Also, when you said you changed your diet did you cut out all sugar completely? I’m really to go do whatever it takes. Thank you again!

Hi Destina, I can understand your frustration! It’s difficult to find answers. I prefer not to share the details of my own regimen online as it was very specific to my own circumstances and it’s unlikely to work for the next person. If you send me a message directly I’m happy to let you know how I approached the issue, and why I did it that way. Melissa

Beth says:

I am starting to get UTI’s more frequently. It used to be twice a year but now every two months or so. A dip stick urine test always shows up an infection.

Hi Beth, sorry to hear that. I noticed you sent me an email, so I’ll get back to you there in the next day or so with more information. Melissa

Cassi says:

I was so happy to find this blog. I’m 19 and have been getting UTIs 2+ times a month for FOUR years. My first one was sophomore year in highschool and i didn’t get them as frequently back then, but starting my senior year I went from getting a UTI once every couple months, to at least one or two every month. I go to the doctor and they give me my antibiotics and it goes away for a little but always comes back. I’d love to talk to you and see what remedies you’ve come up with because it’s so frustrating having to deal with this so often.

Hi Cassi, I can understand how you feel! It might help to first read our info on why symptoms can come and go, despite treatment. Then if you want to ask any questions, you can contact me directly. Melissa

April Thomas says:

I am in tears reading your story. It’s me! Well except for the foreign countries! I’m big on gut health and feel like I do a good job with my supplements but I’ve been fighting a uti from &@)?! for 6 months and the anxiety is nearly as bad as the pain. I’m scared and overwhelmed. What can you tell me about your natural remedies and the things you did to change your situation? I’m miserable, embarrassed, scared and feeling hopeless. I wish there was a specialist near me that could help! (I’m in the Tampa area in case you know someone.). Thank you.

Hi April, once I started telling my story I was surprised by how many people related to it! We don’t recommend specific products on our site, but if you’d like to get in touch directly we can chat more about it. Some of the specialists listed on our site offer appointments by telephone or Skype, so you could reach out for more information. Melissa

Ally says:

I am 25 years old and I have been getting UTIs since I was 17 years old. I have been getting utis recently for the past year and a half. I have done everything to try to rid myself from getting them and do all of the right things. I talked to my doctor about it and all they prescribed he was an antibiotic to take after I have sex because I’m “just more prone” to them. I didn’t like that answer and do not like taking these pills every time as I’m sure it’s not the best things for you. I am currently in the bathroom as I had to rush home from leaving work because the pain is that bad. I don’t understand why I keep getting them even when I take precaution. This is ruining my life. Not even over the counter medication like azo works anymore to relieve symptoms. Please help.

Hi Ally, if you haven’t read it already, we have some info on why short courses of antibiotics may not be resolving your infection. We also have info on preventative antibiotics and why this may not be the best option. Feel free to get in touch with me directly if you have other questions. Melissa

Valerie says:

I am 58 years old and have had reoccurring UTI’s since I was 16 years old.Your story sounds like mine would if I were to write it. I am still going to doctors and neither of them have helped my UTI’s. I can sometimes get a RX for antibiotics if my cultures or strip tests show that I have enough infection to be considered and infection. After 22 years of the same kind of infections you would think I would be an expert on diagnosing myself but my doctors don’t share my opinion. I just gave up on a cure some years ago. After reading your story though I got some hope again. I would love to know what you used to help yourself overcome UTI’s.

Hi Valerie, I can understand your frustration. We prefer not to discuss specific products on our site, but I can share more information via email if you want to get in touch directly. Melissa

Eleanor Butcher says:

I have been getting these urinary tract infections more and more frequently as I age. This last test came back negative as you said. I also get the racking chills which I am able to handle now with Tylenol and an antibiotic. I have a urologist and I’m having another scope again. Its now every 6 weeks or so. Bummer

Hi Eleanor, sorry to hear you’re experiencing that. Hopefully your urologist can help. You may like to read about other approaches to recurrent and chronic UTI treatment, if you haven’t already, and how infections can become recurrent in the first place. Melissa

Elisa says:

I had gone off my contraception for several months multiple times, but the situation with my UTIs was not getting better. But then, as my hormonal profile allowed it, I decided to try out the mini pill (contains only progesterone replacement). And miraculously my UTIs and yeast infections were completely gone! And I am pretty sure that it is the mini pill and not just coincidence, as I have gone on and off the mini pill many times (mainly due to travelling around and changing the country where I live). Every time when I had stopped using it, UTIs were back and every time I started using it they completely disappeared.

Hi Elisa, it’s so great to hear you found something that worked for you too :). Melissa

Mariana Garcimarrero says:

Help me

Hi Mariana, I’ve sent you an email to see how we can help. Melissa

Ella says:

Hi Melissa, I am struggling with recurrent UTIs that the doctors just aren’t diagnosing. I have been to the doctors about 30 times regarding my cystitis, had ultra scans on my bladder, been given antibiotics and there is still no hope in finding out what is causing my recurrent symptoms. Recently I have been to the doctor regarding a strong bout of cystitis and there was no infection found. Could you please give some more detail about the home remedies you used? I have seen the home remedies page but am unsure on how to actually administer them myself or where I obtain the stuff for them. What did you use? PLEASE HELP!
I am 20 and have been getting this since I was around 12.

Hi Ella, I understand your frustration! I’d love to chat to you more about this. You can reach me directly via our contact form. I may be able to share some helpful resources. Melissa

Alba says:

When I was reading this, I couldn’t help but think I was reading my own history. Scarely acurate. I tought I was the only one that remember moments in my life for my UTIs. I remember my first UTIs as a small kid, sitting in the toilet while my mom calmed me and my father went to emergency care to pick a urine test tube and bring it back to the doctor so he can send me treatment. it was the early 90s. I remember not passing my last year of high school because I was constantly ill with utis and not being able to go class. Getting it while on a super tiny adorable remote village where a friend was from and where the nearest hospital and pharmacy were hundreds of km away. Getting them in my 23h trip to Japan, and having 2 while the 20 days I was there. Last time I got a horrible recurrent flare was in 2014 and I had them intermitently for 2 years, montly. The constant fear of knowing that a next one will come sometime. I got to the point I woke up at night, sleepwalking (my boyfriend saw me constantly) to drink glasses of water and went to the toilet.
I’m a registered dietitian so appart from the pharmacological treatments from my doctor and running all the tests under the rainbow including a MRI (non of them showed nothing) I scanned all the medical research available, even histology of the urinary system, and the dietary changes and supplements I could think of. Finally, after 2 years, they went away to never come back. Until now, that I got them back last week after been 3 years free of them. I’m SO DONE WITH THIS. Seriously. Researchers of the world, please, do f*king research of WHY they happen, HOW to treat them (the freaking antibiotics don’t work) and HOW TO PREVENT THEM.
I love your site 🙂 you did a great job with the web looking awesome and providing great info about a shady and hidden topic no one wants to talk about but the sufferers…

PS: those genetic tests look so promising???? I don’t know if I should consider one…

Hi Alba, it does sound like you’ve shared many similar experiences! I feel your pain. For those of us who have or have had chronic UTI, the research can’t come fast enough. People are starting to find answers, some of them via next genetic sequencing, so we hope we’re reaching a tipping point. If you want to discuss anything in more detail, or have any questions, you can reach directly via our contact form.. Melissa

Chris snell says:

Constant urge to pee,with about a teaspoon being passed and deep pelvic pain and discomfort is horrible.
Never had this in 65 years now had two bouts in less than a month.
HELP

Hi Chris, sorry to hear you’re experiencing that. It’s always best to head straight to a doctor for advice on what’s causing your symptoms, and to rule out anything more serious. If you’re looking for other specific information, you can also reach out to us via our contact form. We’re happy to point you in the right direction, if we have resources that might help. In the meantime, I hope you’re feeling a lot better.

Dear Melissa says:

Hi Melissa I am on my fourth lot of antibiotics for this UTI , which did not show up as a UTI on standard tests at my GP surgery . This UTI is affecting my life and I cannot sleep or work really.
I have gone to a private doctor who has informed me yesterday that the sample she took last week showed a mixed growth indicating lots of bugs and she is thinking of prophylaxis moving forward , I am worried Inwill develop a biofilm and become resistant doing this . The antibiotics has not worked at all and I am now on cephalexin. What do you advise?
Thankyou for sharing your refreshing life story of dealing with this terrible debilitating condition.
Thankyou Kind Regards Rosy

Hi Rosy, we have some info on a few of the topics you raised, that might help. Why urine culture tests may be negative or ‘mixed growth’ despite your symptoms, the research for and against prophylactic antibiotics, and different approaches to recurrent UTI treatment. You can also message me directly if you’re after more info about practitioners. Melissa

Yagna Nag Chowdhuri says:

Could you please provide some more information on the specific vitamins and herbs to use?

Hi Yagna, we have shared some more information about home remedies for UTI and why it’s really important to figure out what’s causing your UTIs in order to choose the right treatment. While certain things worked for me, they may not work for you. We’ve created a wrap up of some popular approaches in our home remedies section, and the info about what causes UTIs could also be useful. These are a great place to start. And feel free to get in touch with us directly with any questions or suggestions!

Catherine Williams says:

Hi Melissa,
I’ve been suffering with chronic cystitis for 18 years. Currently on long term antibiotics and I’ve come off the contraceptive pill 3 weeks ago. Could you please help me with a diet plan? I’m struggling with this side of it. I also take vit c, d mannose, NAC, grape seed extract, freeze dried aloe Vera. Magnesium, zinc, high strength probiotics. Thank you, Catherine

Hi Catherine, I can’t recommend a specific diet plan, but I can share more information about my own approach, if you get in touch via email. Melissa

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