Is a chronic urinary tract infection the same thing as a recurrent UTI? What does it mean if you get frequent urinary tract infections or have continuous UTI symptoms? Is there anything you can do if you keep getting UTIs?
These are just some of the questions we get on a daily basis. Below, we’ve answered these as best we can. We hope that after reading this, you’ll better understand what may be happening in your own body. And even better, feel more equipped to tackle it head on.
Jump To Section:
- Persistent UTI vs. recurrent or frequent UTI: what’s the difference? >>>>
- Why do I keep getting UTIs? >>>>
- The different types of chronic urinary tract infection. >>>>
- What causes chronic urinary tract infection (aka frequent UTIs)? >>>>
- Can you test for chronic or frequent UTI? >>>>
- When to see a doctor for chronic urinary tract infection. >>>>
Persistent UTI vs. Recurrent Or Frequent UTI: What’s The Difference?
 | A recurrent urinary tract infection is officially defined as three episodes of a UTI in the previous 12 months or two episodes within the previous 6 months. |
At the moment, it is generally accepted that recurrent UTIs occur due to either reinfection or a persistent infection.
| Reinfection refers to an infection where the pathogen is eradicated by treatment, then the same or a different pathogen ascends the urinary tract to cause a new infection. |
| Persistence means the pathogen that caused the UTI is not completely cleared from the bladder by treatment, remains detectable in the urine, and after treatment returns to a level that once again causes symptoms of infection. This cycle of persistence can repeat indefinitely, feeling like a new infection each time. A persistent infection is also called a chronic urinary tract infection. |
Evidence suggests that many recurrences of UTI may actually be caused by an underlying bladder infection that came about due to ineffective initial treatment.
Frequent UTIs caused by persistent bladder infection are also referred to as chronic cystitis or chronic urinary tract infection.
Note that while terms used for various urinary tract conditions may sound different, they could refer to the same thing. Check out our interview with Dr. Lindsey Burnett who shares insights on the clinical difference between acute, recurrent and chronic UTI.
When we refer to recurrent UTI in this site, we usually mean persistent infections; also called chronic urinary tract infections.
If your frequent UTIs are actually caused by an underlying chronic urinary tract infection, you need to pay attention here:
Whatever you’re doing to treat each occurrence of UTI is probably not working.
The fact that your UTIs keep returning should be enough evidence of this. But you may not know why chronic urinary tract infections are so hard to properly treat. Fortunately, we can explain it through super interesting science.
Why Do I Keep Getting UTIs?
While most uncomplicated UTIs either resolve on their own, or with a course of antibiotics, there is an increasing number of cases of chronic urinary tract infections that cause ongoing symptoms.
You get a UTI, you take the antibiotics you are given, the symptoms disappear, and everything seems normal. Then you suddenly find yourself with another UTI… You take the antibiotics you are given, the symptoms disappear, and everything seems normal, until…
It may sound like a broken record, but this is the situation more and more females find themselves in. To hear personal accounts firsthand, listen to UK reality TV star Marnie Simpson discuss her UTI experience and being misdiagnosed with recurrent UTIs.
“I’ve had recurrent UTIs for around 15 years. I take antibiotics when it gets really bad, and it seems to help, but I always get another one, and I always anticipate getting another one. I try my best to prevent it, but it seems inevitable.”
Statistics Around Frequent UTIs
While the statistics around chronic urinary tract infections are hard to find, we do know that:
- 30-44% of females with an initial UTI will experience a second UTI. And with each UTI, the risk of another UTI increases.
- Frequent UTIs may be caused by multiple organisms simultaneously.
- A significant proportion of our quiz respondents have suffered 7+ UTIs, with a recurrence every 1-3 months.
- Our own data indicate that most females who experience recurrent UTIs do so despite standard antibiotic treatment.
- Testing and treatment guidelines for chronic urinary tract infections are inadequate or do not exist in most parts of the world. This means even when doctors want to help, they generally don’t have the resources or guidance they need to be able to.
- One study found that 74% of females diagnosed with Interstitial Cystitis had previously been diagnosed with recurrent UTIs. Interstitial Cystitis (defined below) is a painful set of urinary tract symptoms with no identified cause and no known cure.
- 93% of the females included in the above study had also received negative test results after having their urine cultured (more on this in our testing guides).
In short, a significant number of females move through escalating stages of diagnosis as antibiotic treatment fails to cure them and testing fails to find a cause.
The Absence Of Recurrent UTI Guidelines
Because there are no guidelines on managing complex or recurrent UTI, primary care doctors are generally not in a position to help.
“Most UTI guidelines are aimed at management of simple uncomplicated UTI. It can be very difficult to successfully manage complex or recurrent UTI in primary care. If symptoms persist, or where there is diagnostic uncertainty GP’s will need to make a referral for specialist assessment."
For females that progress from a single UTI, to recurrent UTI or chronic urinary tract infection, or to a diagnosis of Interstitial Cystitis, there has historically been very little hope of effective treatment. We hope to help change this.
Different Types Of Chronic Urinary Tract Infection
Depending which country you are in, what your symptoms are, and which terminology your doctor is familiar with, you may have heard the following terms to describe different conditions of the urinary tract:
Chronic Urinary Tract Conditions: Different Names For The Same Family Of Problems
| Acronym | Term | Definition |
|---|---|---|
| RUTI | Recurrent Urinary Tract Infection (Specifically, persistent recurrent infections) | Three episodes of a UTI in the previous 12 months or two episodes within the previous 6 months. RUTI can be classified as a persistent infection or a reinfection. The open nature of this definition means there is no logical end to this diagnosis. Even after twenty years of UTIs, this definition can still apply to you. |
| cUTI | Chronic Urinary Tract Infection / Chronic Cystitis | A persistent infection of the bladder. As with RUTI, many females are diagnosed with chronic cystitis indefinitely. |
| IC PBS BPS | Interstitial Cystitis Painful Bladder Syndrome Bladder Pain Syndrome | An unpleasant sensation (pain, pressure, discomfort) perceived to be related to the urinary bladder, associated with lower urinary tract symptoms of more than six weeks duration, in the absence of infection or other identifiable causes. |
| HBS HSB | Hypersensitive Bladder Syndrome Hypersensitive Bladder | An umbrella term used in East Asia to cover conditions resulting in symptoms including, bladder pain, discomfort, pressure or other unpleasant sensation, and is associated with disorders such as a frequent need to urinate day and night and/or an urgent need to urinate. It encompasses Bladder Pain Syndrome. International Painful Bladder Foundation |
If you do a little research, you will quickly find there are also sub-categories within these conditions, with varying symptoms and levels of injury to the urinary tract.
It is not our intention here to imply these chronic urinary tract conditions are the same, or that they affect people in the same ways. But they do have an important thing in common – in the majority of cases, no cause has been identified, and the condition is therefore not curable. Treatment focuses on reducing symptoms rather than resolving the underlying issue.
“After about 3.5 years of chronic urinary tract infections, two doctors said they couldn’t help me further. A third said ‘maybe you just have irritable bladder or IC.’ That ‘maybe’ didn’t feel like a diagnosis. Why did my test results tell them nothing?”
So why do we mention these chronic urinary tract conditions?
There is strong evidence that many have been misdiagnosed with incurable conditions, when in fact they are afflicted with a chronic, embedded bladder infection that can be identified with appropriate testing, and treated effectively over time.
Let us explain…
What Causes Chronic Urinary Tract Infection?
This is where the science gets a little more complicated. (But fascinating too!)
We’ve talked elsewhere about what causes UTIs. And above, we explained that recurrent UTIs can be attributed to a persistent bladder infection that is not properly eradicated by treatment.
A persistent bladder infection can last for years in the form of a chronic urinary tract infection. For many females, the cycle of acute and symptom-free periods is never broken, and some move on to be diagnosed with the conditions mentioned above, such as Interstitial Cystitis (IC), or Painful Bladder Syndrome (PBS). More on that later.
Why has it been so difficult to detect and treat these infections?
There is a culprit here, so let’s take a closer look. Behind the misdiagnosis of hundreds of thousands (potentially millions) of people, are embedded chronic urinary tract infections that involve biofilms.
Biofilms And Persistent UTI
In the case of a chronic urinary tract infection, a biofilm is a community of bacterial cells that stick together and adhere to the bladder wall. These cells then produce a protective slime that shields the bacterial community from antibiotics and the natural defences of the body.
This goopy shield makes diagnosis and treatment very difficult. And while the bacteria are contained within their shield, the body is less likely to mount an effective response to their presence.
When bacteria are periodically released or escape from the biofilm, the body recognizes a threat. This triggers an inflammatory response, heightening symptoms of a UTI. This can be experienced as a cycle of acute symptoms, followed by periods of fewer or no symptoms.
“I get a UTI every month or so. In between each really bad UTI I would feel mostly better, but I’d often have sensations like another UTI was coming on. I was continually drinking water to try and prevent it, but, like clockwork, my symptoms would suddenly get much worse and I’d end up with another full blown UTI.”
We hear many people refer to this as a cycle of ‘flare ups’ or ‘episodes.’ This implies they believe it to be a continuous, chronic issue with both acute and symptom-free phases. Evidence shows they are probably right.
For those who suffer from a chronic urinary tract infection, the symptoms and ongoing pain can be debilitating, dramatically and adversely affecting their daily lives, as well as their overall mental and physical health.
How Biofilms Can Cause Your UTI Symptoms To Come And Go
Let’s compare the science of biofilms with the symptoms a sufferer of a chronic urinary tract infection may experience, using E.coli as an example pathogen:
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| Stage One | THE SCIENCE: • Infection and inflammation of urinary tract caused by invasion and multiplication of bacteria or other pathogen. HOW IT FEELS: • UTI symptoms, eg burning when urinating, urgency |
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| Stage Two | THE SCIENCE: • Free-floating bacteria form a weak attachment to the bladder wall • Antibiotics can still be effective during this stage HOW IT FEELS: • Without effective treatment, UTI symptoms remain as body continues to defend against the threat |
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| Stage Three | THE SCIENCE: • Bacteria establish a strong attachment to the bladder wall and a protective biofilm structure begins to form • Protection from antibiotics increases; treatment becomes more difficult HOW IT FEELS: • Without effective treatment, UTI symptoms remain as body defends against the threat |
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| Stage Four | THE SCIENCE: • Free-floating bacteria are flushed from bladder via treatment or natural body defenses • Biofilm remains intact HOW IT FEELS: • UTI symptoms decrease or disappear |
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| Stage Five | THE SCIENCE: • Biofilm community formation continues • Protection against antibiotics increases as the biofilm develops HOW IT FEELS: • No UTI symptoms, or low level chronic symptoms |
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| Stage Six | THE SCIENCE: • Biofilm detachment • Bacteria escape biofilm and enter urine as free-floating bacteria HOW IT FEELS: • ‘Recurrence’ of UTI • UTI symptoms return |
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| Stage Seven | THE SCIENCE: • New biofilm attachments may begin to form • Free-floating bacteria are flushed from bladder • Without appropriate treatment, the process repeats HOW IT FEELS: • A cycle of ‘recurrent’ UTI as the biofilm fluxes over time |
We should also note here that biofilms can be fungal as well as bacterial, and there may be more than one pathogen present in the bladder at any given time. In fact, biofilms can be complex and diverse communities of multiple pathogens.
 | “These organisms like to live in communities. Biofilms are like apartment buildings, and the longer that you've had this chronic infection, the more likely it is that you have more and more residents that have come to join the party. And they like to support one another, they live synergistically. It's sort of like a ball of yarn. You have to start pulling somewhere if we're ever going to unravel this big, knotted up mess.” |
For the sake of simplicity, and because bacterial infections of the urinary tract are much more common than fungal, we’ll stick to bacteria for our examples. But keep in mind, what causes a chronic urinary tract infection in one person is very likely different from the next person.
Bacterial biofilms can also be found INSIDE the cells of the bladder wall, forming intracellular bacterial communities (IBC). In fact, evidence of IBCs was found in about one fifth of urine samples from females with acute uncomplicated symptomatic UTIs.
Fascinated? A UK research team has put together a more in depth look at how biofilms and IBCs form for you to view.
Can You Test For Biofilms In The Bladder?
The presence of biofilms in the bladder is not far-fetched science.
The National Institutes of Health (NIH) estimates around 80% of all bacterial infections in humans involve biofilms.
Although the existence of biofilms in human infection has been accepted in medicine for decades, it is much more recently that attention has turned to their involvement in chronic UTI.
 | “In my opinion it's pretty clear that biofilms and IBCs are a true phenomenon, and it would explain why a given patient can get what seems like a perfectly appropriate antibiotic based on antibiotic susceptibility testing from cultured bacteria. Then as soon they stop taking the antibiotic, the same exact bacterial isolate comes roaring back with the same antibiotic susceptibility. Why wasn’t it wiped out? Well, I think sometimes it's IBCs, or biofilms. And then in other cases, it may be that they've reseeded themselves from their distal guts or their vagina as well." |
Traditionally, testing labs have focused on culturing and testing free-floating pathogens. If free-floating pathogens are identified, their susceptibility to antibiotics is also tested while they are in a free-floating state.
Once the susceptibility has been tested, it is possible to prescribe the right treatment.
The problem with these types of tests is that they do not specifically detect biofilm formations in the bladder. And therefore, they are not helpful in deciphering which treatments may be effective against microbes within a biofilm.
To figure out how to treat a chronic urinary tract infection that involves biofilms or IBCs, it would be necessary to test different treatments on any pathogens within a biofilm or IBC, rather than on free-floating, easy-to-target pathogens.
Newer UTI Testing Options
Some advancements in testing have been made. Researchers have been able to pinpoint indicators of biofilms and IBCs in the bladder. These include filamentous bacteria and exfoliated IBCs.
This isn’t as complicated as it sounds. All the first really means is bacteria that have taken on an elongated and/or branched shape as part of a bacterial community. Exfoliated IBCs refers to bladder lining cells that contain microbes and have been shed from the bladder into the urine. Both are signs of an embedded bladder infection.
Unfortunately, this area requires a lot more research. At the moment, tests to specifically identify an embedded chronic urinary tract infection are not available to the general public.
On a more positive note, there are tests available that are more accurate than standard culturing methods.
Tests that use DNA sequencing methods, like that offered by and MicroGenDX, have the ability to identify microorganisms in a urine sample, regardless of whether they are free-floating or were part of a biofilm.
You can read more about the issues with standard UTI tests, and how to find alternative UTI testing options in the next sections.
Treatment protocols for chronic urinary tract infection do exist, however, specialists who can administer these are few and far between. And this type of treatment requires regular monitoring to evaluate any improvement in the embedded infection.
Learn more about persistent UTI treatment approaches here.
Is Interstitial Cystitis Linked To Frequent UTIs?
We mentioned a study above, that found that 74% of survey respondents diagnosed with Interstitial Cystitis, had previously been diagnosed with recurrent UTI.
Research has also shown that a high percentage of females with Interstitial Cystitis may in fact have biofilms, IBCs, or both within their bladder, and that this is the cause of their ongoing infection and recurrent or continuous symptoms.
Interstitial Cystitis and associated conditions are considered to be incurable, however…
Interstitial Cystitis is a diagnosis of exclusion. This means IC is diagnosed in the absence of any other obvious cause. If a cause for your UTI symptoms is not identified by testing, a diagnosis of IC may be given.
Check out our expert video series to learn more about the chronic UTI and IC connection.
Reframing A Diagnosis Of Interstitial Cystitis
We shouldn’t think of IC as a specific condition, after all, those who have been diagnosed with it experience a vast range of different symptoms. And a cause for the onset of those symptoms has not been identified.
Instead, we should think of the term as a placeholder, while we wait for a specific cause to be identified.
A diagnosis of exclusion leaves a lot of room for misdiagnosis. Some researchers now believe the insensitivity of standard testing methods may have led to large numbers of unnecessary diagnoses of IC. Take a look at our interview with Dr. Roscoe Nelson, who discusses why accurate diagnosis is crucial.
| "...if the [dipstick] test is negative, the sensitivity is such that there is no justification for claiming you do not have an infection... if the culture is negative it is again wrong to claim this proves an absence of infection; the culture is too insensitive. For these reasons, negative tests are unhelpful and a cause of terrible suffering." |
And this isn’t just theoretical. Hundreds of females previously diagnosed with Interstitial Cystitis – that is, the absence of infection – have been able to receive better testing that has identified an infection.
With an infection identified these individuals have gained long term treatment that relieves their painful symptoms and has often led to complete resolution of the issue.
| “I am very careful about labelling patients with IC, I think a lot have occult UTI with difficult to culture organisms. By utilizing more accurate testing methods we are able to identify pathogens in many cases, and develop appropriate treatment.” |
When To See A Doctor For A Chronic Urinary Tract Infection
If you’ve had a UTI previously, you are in a much better position to recognize the symptoms, and you may feel confident in what action to take.
You may even be able to take this action at the first sign of a UTI, and prevent the symptoms from escalating. This doesn’t necessarily mean you have cleared the infection. If you’ve read the fascinating tale above about chronic urinary tract infection and biofilms, you’ve probably realized that by now.
For females with a chronic urinary tract infection, it’s not just about treating isolated symptoms, it’s about breaking the cycle and eradicating the underlying cause.
How UTI Treatment Should Look
The ideal scenario wouldn’t involve a UTI at all, we get that. But once you’re on that roller coaster, you really need to find a way off safely. This is what the ride should look like…
Symptoms → Test → Results → Diagnosis → Treatment → Cure
Anyone who has experienced a chronic urinary tract infection can tell you this isn’t always how it pans out.
Instead, for many females, parts of the sequence are missing, and a cure has been out of reach. There are a number of reasons for this, which we’ve covered in our article on UTI testing, so we encourage you to read that next.
Getting tested to discover the cause of your UTI symptoms is the best path to a permanent solution.
You should get tested if you:
- Have had more than 2 UTIs in the last 6 months, or more than 3 UTIs in the last 12 months.
- Have continuous or ongoing UTI symptoms, but haven’t received a diagnosis.
- Are uncomfortable taking antibiotics without knowing what exactly you are treating.
- Have recurrent UTIs and have never been tested.
And the best way to get tested is to see a doctor. Finding the right doctor, however, can also be tough. But first things first.
Now that we’ve convinced you to pursue testing, we need to tell you something…
Getting accurate testing for UTIs is extremely difficult.
So in the next article we’ll share some frustrating facts on why this is, and provide a few tips on how to get better UTI testing. It’s always best to arm yourself with information before embarking on a journey towards better health, and you’re in the right place.
Share your questions and comments below, or get in touch with our team. To get answers to commonly asked questions about chronic and recurrent UTI, visit our FAQ page.
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Comments
Hi, I would also like a recommendation for a good doctor for recurrent UTIs in London? I currently live in Cyprus and due to come to the UK in January. I’ve had 7 UTIs this year. Thank you.
Hi Kia, I’ve sent this information via email. Best wishes, Issy
Hi, would you be able to recommend a good doctor for recurrent UTIs in London? Thank you!
Hi Zofia, I’ve sent you an email with this information. Best wishes, Issy
Hello, in my case I have been suffering from urinary infections for more than 30 years, I have 56 years old now and from my childhood I had problems when urinating and I was diagnosed with urethral narrowness, I received 2 surgery in my urethra and I did not solve the problem. I continue investigating and at 26 years I was diagnosed with neurogena bladder and began intermittent catheterization until today, every month I need to treatment by urinary infection and discomforts associated with this, daily I take 1 tab nitrofurantoin when bedtime and thus I have managed to space the crises. Is the vaccine to treat the infection of the urinary tract here in the USA?
Hi Olga, we sent you some more information by email. You’re welcome to ask any questions you have there. Melissa
M having uti for almost 2 years nows doctor have prescribed me every antibiotics but i never get relief have tried every antibiotics but nothing works it comes again and again whenever i pee it starts burning after urinating as well burning and painn even tried pelvic floor exercise but nothing is working its starts coming and again every 1 week i feel burning before urinating and after urinating so what should i do?
Hi Zara, I have sent you an email. Please don’t hesitate to get in contact with any questions, Molly.
Hello,
Never had problems with UTI. My last is 20 years ago.
Last dec. I got problems with my bladder. Felt like an UTI but quick test was negative. Culture 4 weeks later as well. Took abx for sinnusitis (could also be taken for UTi) 4 days. Bit symptoms didn’t change. Since then I’m struggling with this.
Cystoscopy was done. Showed a red bladder floor and flakes in the urine. Dr.said it is an inflammation from an old UTI (20years ago?!). No culture was done or something. Been put on abx for 3 months and if it persists —biopsy.
I feel lost… could that really be an inflammation based on an 20 year old UTI
Or could it be that this issue in dec 2023 was not detected as a UTi and bacterias have caused the issues?
Thanks
Hi Tatjana, I’m sorry to hear this. I have sent you an email with some information, please don’t hesitate to get in touch, Molly.
Hello!
I usually do not get UTI’s and if I do it is mainly because of unprotected sex. The last time I got one was a year ago and antibiotics instantly cleared it up! This time I was prescribed antibiotics for UTI but symptoms came back 3 days later. I was put back on antibiotics but this time a 7 day course. Symptoms went away for a couple days but came right back. I’m just tired and depressed about this because I don’t want to go through this. My main symptoms as of lately is mild dysuria and discomfort. I’m lost and not sure what to do.
Thanks,
Malina Cureton
Hi Malina, I’m sorry to hear this. I have emailed you, Molly.
Please help me! I have long history of UTI and three weeks ago I was treated for one and the burning went away but urethral urgency and frequency are ruining my life. I’m in BC, Canada and healthcare is so terrible. Willing to travel. Had dealt with this for years in 2018 and now it’s happening again! Last time I did all IC treatments despite urologists believing I did not have IC. Instillations, amytriptiline, aloe, d-mannose, marshmallow root, pelvic floor physio, Valium, you name it. No relief. Please!
Hi Lily, I’m sorry to hear this. I have emailed you, Molly.
I’ve had a UTI for 4 months. I’m 5 months pregnant. 4 rounds of antibiotics. I’m sensitive to all antibiotics. going crazy here. what should I do
Hi Gabriela, I have sent you an email. Please don’t hesitate to get in contact if you have any questions, Molly.
In 2014, I had a UTI and two rounds of antibiotics. Still had symptoms. Was referred to a urologist, who tried a low dose antibiotics for 3 months, OAB medications, and testing. I tried diets for possible IC, and homeopathic tx. PT said I had vulvodynia and pelvic floor dysfunction. Referred to a specialist and was officially diagnosed. Oral, topical, and suppository medications and TPI. Relief after 2 years. I had one UTI in 2022 and kicked it with abx. Last November, had a UTI that was positive for Klebsiella oxytoca, had antibiotics. Same thing in Dec but with a neg cx. Today, I have another one. A culture at the lab showed nothing but my home tests are positive. Now I’m wondering if I have a biofilm of Klebsiella oxytoca bacteria. Are there any resources for me? I live in Portland, OR
Hi Stephanie, I’m sorry to hear this. I have sent you an email, Molly.
I have been suffering on and off and now persistent burning after urination. I have been to multiple doctors, urologists, gynocologists and one had chalked it up to Lichen sclerosus. The only thing is when I am perscribed antibiotics my condition goes away for a few weeks and then comes right back. I am at my witts end trying to figure this out with multiple creams and still no relief other than antibiotics. If anyone else has a similar story, please let me know if anything has helped.
Hi Theresa, I’ve sent you an email. Let me know if you have any questions, Molly.
Hi!
I’m Brazilian, and my mother, who doesn’t speak in English, saw this site about UTIs. She has suffered from constant crises of UTIs for about two years. I translated the information to her, and she appreciated all this good information. She frequently feels lonely here in Brazil because all the doctors have different perspectives, and no one solves the problem. She will test the laser treatment. Is there information that this is an effective treatment? Please, if you know a doctor who lives in Brazil who can help her, I would appreciate it very much. Thanks!
Hi Giulliana, I’m sorry to hear this. I have sent you an email, Molly.
Hi there, for several years now i have had severe UTI symptoms like pain, urgency, hot flashes with chills(the symptoms are unbearable), which seem to go away with antibiotics but my cultures always come out negative. Lately I’ve been getting these symptoms more often and i don’t know what else to do
Hi Daniela, I’m sorry to hear this. I have just sent you an email, Molly.
I wish I had found your website 7 years ago. I got this when I was only 16, after my first time. 7 years later, 2 fulgurations, 5 different antibiotics, I feel horrible. I don’t know what to do at this point, I’m so young and my life is already over.
Hi Mina, I’m sorry to hear this. I have sent you an email with some information. I hope this helps, Molly.
I have IC and had a catheter fitted due to associated chronic nocturia. I have now had a complicated uti for 2 years which antibiotics do not seem to help. I cannot work and have little quality of life. Urology here in Scotland is a disaster due to the breakdown of our NHS. I am desperate please help!
Hi Jan, I just sent you an email with more information that may be helpful. Melissa
Two years in and no treatment. They refused to look deeper into it. I need help
Hi Yolly, can you please send us a direct message and let us know where you are based? We’ll share any relevant resources we have. Melissa
Thank you for such an informative article! I’ve suffered with over 10 UTI’s in the past seven months, the pain worsening with each one. Antibiotics serve as temporary treatment before the next one comes on. Neither myself or any doctor I have seen, know how to stop it past this antibiotic cycle. Would love some guidance on what resource I could turn to next to potentially stop this, as it is worsening.
Hi Alison, can you please send us a direct message and let us know where you are based? Then we can share the most relevant information. Thanks! Melissa
Thank you so much for this really informative resource. I’ve suffered with UTIs on and off for about 6 years, had multiple courses of antibiotics and went through the process of specialist referral and a cystoscopy. My symptoms never seem to perfectly match the UTI criteria (persistent lower pelvic discomfort/pain, worse after sex/dehydration) and whenever I go to my GP the tests come back negative for infection. I’ve sort of accepted there’s no way to fix/cure my UTIs. I am based in the UK, do you have any recommendations for resources/specialists to see there?
Hi Roisin, I just sent you an email with more information. I hope it helps, Melissa
Hello! I have had so many UTIs since college that I’ve lost count (maybe 50+ in the past 15 years?). I think I have another one now but my symptoms have started to change. I used to feel the burning and urgency almost immediately, but now there isn’t any pain (yay!), just a feeling that I haven’t released all of my urine. Can symptoms like this change as we age?
I have never been diagnosed with recurrent UTIs, but after reading your article I feel this is exactly what I have. I am definitely one of those people who assume another one is always coming, and often jinx myself when I think “oh I haven’t had a UTI in a while.”
Anyways – this is a great resource and I’m glad I found it. Do you have any information on specialists in the Winston-Salem, NC area?
Hi Lauren, I saw you also sent us an email so I have replied there. I hope it helps! Melissa
‘ve suffered from UTI’s for almost 20 years. Currently I’ll be on my third round of antibiotics in 90 days – and I truly do not want to continue this viscous cycle. From what I’ve read here, and whole heartedly believe, this isn’t going to fix my problem. I see a urogynecologist who is actually also a teaching professor. She’s great, but we are obviously not getting to the root of this. I live near Greensboro, NC. Can you help?
Hi Diana, I saw you also sent us an email so we’ve replied there with more information. Melissa
Hello, I’ve been looking for help to solve my recurrent UTI. I asked my doctor if she could sign my NGS test, but she refused although I still have symptoms, pain, alternating positive-negative results. I then realized I would probably need to find other solution. I wish I can imagine that this can resolve at some point. I came across this page hoping it would help. Is there a way I could speak with someone in regards of my case?
Hi Jen, can you please send us a direct message and let us know where you are based so we can share relevant resources? Melissa
I’m so glad I found this website. I live in Houston and have suffered UTI associated with sexual intercourse. I don’t want this to ruin my relationship. I have had multiple urine culture test negative. Very frustrating. Is there a specialist I can talk to about this?
Hi Yiwei, I just sent you an email with more information. I hope it helps! Melissa
I have had it is come every month for a few years I’m on antibiotics when they come then off when they are done
Hi Glendora, sorry to hear that. If you have any questions you’re welcome to reach out to us directly. We’ll do what we can to share useful resources. Melissa
Cela fait des années que j ai envie d uriner très souvent toutes les heures.
Mon ucbu indique urine polynacteriennes et donc aucun traitement antibiotique.
Or quand je prends monuril je suis soulagée quelques jours puis cela revient en force.
Je crois que j ai un biofilm ultra résistant. Que faire pour le faire disparaître et qui voir. Aucun urologue ne connaît le biofilm.
Merci de m orienter.
Bonjour Carole, nous vous avons envoyé un courriel avec plus d’informations. Melissa
I have UTI 2 a year for the past 4 years. Sometimes my test doesn’t show any bacteria. But, 3 days ago it show up as E Coli I have an appointment to see a urologist in September. I am struggling.
I also have crohns disease and had my colon removed and on remicade infusion.
I am interested in the vaccine that you mentioned for e coli. Can you give me more information?
Thank you
Hi Anita, I just sent you an email with more information. I hope it helps, Melissa
J’ai des d’infections urinaires post coit depuis mes 18 ans. 2 pyelonephrites en 20 ans. J’ai ete opéré de brides d’hymenes. Les brides disparaissent au 1er rapport sexuel mais parfois non. Les reste de brides d hymenes favorisent l’accrochage des bactéries.
Après l’opération, j’ai été 4 ans tranquille. Puis, infections de retour. Mon urologue ne peut pas reoperer en cas de récidive.
Depuis 2 ans à nouveau infectée après chaque rapport sexuel.
Je ne sais plus quoi faire car même l’antibiothérapie que m’a prescrit l’urologue (de la furadantine après chaque rapport) n’agit plus.
Je bois beaucoup, hygiène ok après chaque rapport. Que faire de plus ? De la D. Mannose en continue pour prévention?Quels examens faire pr les biofilms? Audrey
Bonjour Audry, pouvez-vous nous envoyer un e-mail et nous dire où vous êtes basé afin que nous puissions partager des informations pertinentes ?
Thank you for your information about how difficult it really is to find out what to treat really is a constant burn can you help. God bless
Hi John, I’m glad you found it helpful. Please feel free to send us a direct message if you have any questions. Melissa
I have recurring UTIs. I’ve had at least 12 in the last 7 months. I’ve been on countless antibiotics. My bacteria is often different in each urine sample. I’ve had ultrasound, urodynamic, camera in my bladder, etc. My UTIs are not painful. My urine is cloudy and has an unpleasant smell. Sometimes I have pressure. I have been put on Flomax because I don’t fully empty my bladder but still, the UTIs persist. I’m so frustrated. I don’t want to keep going on antibiotics over and over again.
Hi Mara, can you send me a direct message and let me know where you are based so I can share appropriate resources? Thanks, Melissa
Hi! I am in need of some help and not sure where to go. I have had recurrent uti intermittently for the last 6 years. I’m the last year, I have had one every 2-4 months and sex definitely makes it come on. The bacteria has either been enterococcus or strep B but has predominantly been strep b. My doc is nice and tries to help but she just wants ti do cystoscopies which I have refused until now. I take urinarix, lysine, magnesium, vitamin c boswellia daily. I think there is some connection between yeast and my immune system. I can’t continuously use antibiotics in this way. There must be another solution. I’m considering candida diet but don’t want to do that to myself again…what advice have you? I live in NYC I know I can find some help and can Offer some suggestions. Thank yo
Hi Lauren, I just sent you an email with more information. I hope it helps, Melissa
After reading i def have chronic utis. I have been getting back to back since june. Been on lots of antibiotics. Usuaaly its ecoli but this time its klebsiella pneumoniae. Put me on ceftin. Didnt work. Now on augmentin 3rd day. Going to urelogist in dec. I take all kinds of probiotics and uqora. What can you suggest to stop this or is this going to be my life
Hi Robyn, I see you sent us an email, so we’ve replied there with more information. I hope it helps, Melissa
I am 33 & have had chronic UTIs for the last 10 years. My sympt flare up for 1 or 2 yr and then go away for 6 mo. For the first few yrs I often got neg results on urinalysis and fought with docs to get antibiotics which have always fixed. I got imaging done of bladder and found no evidence of scarring or recurrent infection and was dx with high tone pelvic floor dysfunction which treated with phys th. and that seemed to fix for about 3 yr. In the last 1.5 yr symp returned and urine is infected. Gets cloudy and odorous, This is diff than before. I have had infection ~every 30 dys like clockwork since Oct 2020 and given macrobid most and cipro if it returns. I have often suspected biofilm but cannot find a doctor who will investigate
Hi Annemarie, can you please send us a direct message and let us know where you are based so we can share any relevant resources? Thanks, Melissa
Please notify me
Hi Evalyn, can you please send me a direct message and let me know what information you’re looking for? Thanks, Melissa
My 78 yr old mother has had chronic UTIs for over a decade. (She has IC, Sjogren’s, and type II diabetes). Started estradiol ring two years ago and has had no *bacterial UTI. She has recurring yeast related UTIs now, (w/hematuria & pyuria).
9/2020 <10,000 cfu/ml yeast
10/2020 <1,000 cfu/ml mix organisms 5/2021 10,000-50,000 cfu/ml mixed organisms
7/16/2021 50,000-100,000 cfu/ml of non-albicans candida
She is being treated with the same antifungal as the 9/2020 infection, but I’m thinking it isn’t enough. I asked for a susceptibility test and am thinking of requesting an infectious disease consult. Thoughts? Thank you!
Hi Rachael, sorry to hear that. Are you able to send us a direct message and let us know where you/your mother are based so we can share appropriate resources? Melissa
I think I am textbook biofilm infection. I am 29 years old and have had 4 UTIs in 3 months since I got married. I am now getting them every two weeks. When I was not sexually active for two years before marriage, I never got them. When I was sexually active in my life before, I got them monthly.
I have treated my vagina thinking this is where it comes from but to no available I have treated my bladder with everything you can imagine, still comes back a couple weeks later. It’s affecting my career, my marriage and my life. I am losing my mind.
Hi Erin, can you please send us a direct message and let us know where you’re based? We’ll share any resources that may be helpful. Melissa
My mum is 68 years old and has had recurrent utis and yeast infections for two months, she has been on 5 rounds of antibiotics so far with one severe uti diagnosis after test and another a month later testing positive for cystitis. Doctor wont refer her to a specialist until she’s had 3 tests with diagnosis, which seems like until it goes to her kidneys they refuse to do anything about it! It’s completely deteriorating her quality of life, what sort of specialist should she see?
Hi Josie, sorry to hear about that. Can you please send me a direct message and let me know where your mum is based? Melissa
My UTI or cystisis is not goin away since 3 months. Even after taking Injections for antibiotics, Oral antibiotics. All medication has become resistant. How to cure this.
Hi, can you please send me a direct message and let me know where you’re based so I can share relevant resources? Thanks, Melissa
My mom gets a uti every 4 to 6 weeks if she is lucky sometimes she finishes 10 days of antibiotic and within 4 days she has another uti , the doctor does a culture every time and its comes back a different bacteria then the one she just finished antibiotics for the doctors around here dont want to give her more than 5 to 7 days of medication because they are afraid but she gets septic many times. She is 94 and is getting UTIs for 50 years. That is her only real serious health problem. Dont know where to turn for help. I can’t keep taling her to her every time she gets uti cause they just want to give her keflex. She gets a lot of iv antibiotics when pills dont help. Please help me.
Hi Carol, sorry to hear that. Can you please send me a direct message and let me know where your mother is based so I can share the most relevant resources? Melissa
Hello— Im a 35 year old woman and I have had about 4 UTIs in the last 6 months. Before that I’d get a UTI about 1X a year which seemed to be no big deal as antibiotics and some AZO would clear out the infection and help with the pain. Well now this current UTI I’ve had for about 2 weeks going on 3. I’m on my 3rd antibiotic with no ease in the pain. I’m getting very nervous that this pain will be permanent. I had an apt with a urologist this week and had a kidney/bladder ultrasound today. Waiting to hear back the results. This is so very frustrating and scary.
Hey Laura, please be aware if taking AZO long term.. I use to take AZO
(Phenazoprydine Hydrochloride) and recently discovered it caused large intestine cancer in rats during testings (no confirmed studies on humans) but it’s not a risk I’d want anyone to take! It’s unfortunate as it very much helped me with my symptoms.. There has been newly found studies on a vaccine spray containing the common UTI causing bacteria, E Coli. It is a spray you administrator under the tongue for 3 months to help your urinary track fight off any bacteria! Read up about it!
Hi Nicole, are you able to share any links to the rat studies you mentioned in case other readers would like the information? Melissa
Hi Lauren, I can sympathise. It can be very frustrating and scary! I saw you also sent us an email and we’ve shared more info there. I hope it helps. Melissa
I’m impressed, I have to admit. Seldom do I encounter a blog that’s equally educative and amusing, and let me tell you, you have hit the nail on the
head. The problem is something too few folks are speaking intelligently about.
Now i’m very happy that I came across this in my hunt for something relating to this.
I am 28 years old, I have had a UTI for 3 months now and my doctor told me she couldn’t help me. I’ve done a lot of crying…the antibiotic specific to the culture in my UTI my body is allergic to. I’m scared, tired of being in pain and I desperately need help…
Hi Miranda, you’re not alone in this. Can you send me a direct message and let me know where you’re based? Melissa
im an o.a.p with reoccurring E.coli infection antibiotics dont work anymore .
Hi Susan, can you please send me an email with more information, and to let me know where you are based? Then I can share the most relevant resources. Melissa
i have replied to your message thankyou
Hi! I’m 26 years old and I never really had an issue with UTI until after I had my daughter last year. After giving birth I probably had 2-3 UTI’s (one so bad I had a fever) within the first 6 months. I chalked it up to my hormones changing so much. I finally got rid of them and then just this year they have returned. I had one 4 weeks ago and doctor put me on antibiotic. It seemed to go away, but now it seems to be back again! I don’t get why it is coming back again? Help!!
Hi Sarah, we hear many similar experiences and you’re not alone. Can you send me a direct message and let me know where you’re based so I can share the most relevant information? Melissa
I had my first UTI when I was in college at 19. The symptoms started as a burning sensation and eventually got worse. I wasn’t able to sit or sleep in the right position, I wasn’t able to empty a full bladder, and had a sudden urge to constantly want to pee. This lasted for a couple of weeks until I was given antibiotics. That didn’t work as it eventually came back. I have had 5-6 UTIs in the past year, however, the symptom I have is discomfort and not burning sensation but rather something different this has been continuous. I am now 21 and worried that this has become chronic. This pain has worsened my anxiety and health. What should I do?
Hi Abbie, sorry to hear you’re experiencing this. We hear from many people that it was helpful to work with a UTI specialist to investigate deeper, if you’re interested in this approach, you can send us a direct message and include your location, and we can share some names and resources with you. Susy
I had my first UTI in April, did 2 rounds of antibiotics and still had cramping for about a month after. Even was checked by a urologist who said the infection was gone. Then 8 months later (about 1 week ago) I got another one. Another round of antibiotics and now the infection is gone from my urine but my symptoms still persist.
Hi Molly, you might like to learn more about why your UTI may be negative, despite your symptoms. And if you’d like more assistance or have any questions, you’re welcome to send us a direct message. Melissa
So what do you do if you’re someone who has been told you have chronic UTI, has IC, and constantly has bladder pain and weird symptoms (like passing white stuff while urinating, etc) and doctors just keep not helping. I’m pretty sure I have a fungal infection and I’ve had it for years.
Hi Alyssa, we hear from many people with similar stories, you’re not alone in this! We also hear from many that finding a chronic UTI specialist to work with marked a turning point. If you’re interested, send us a direct message (include where you’re based) and we can share some names we know of. Susy
Hi,
I’ve had about 8 UTIs in the past two months. I’d never had them till now. I’ve been given several types of antibiotics and the last dose of nitrofurantoin seemed to work for a couple of weeks, but I’ve just been hit by another infection. I’m on the waiting list for an ultrasound but would like to know more about other options as I don’t want to leave things to get worse! I’m in the U.K.
Hello my name is daksha and I am from India .. I had my first UTI 2 years ago . But now I am having it again and the problem is it has occurred twice in a month . I have tried any treatment haven’t taken any antibiotics yet because it was gone just by drinking excess water that’s it but now it has occurred again .
Hi Daksha, it’s important to note that antibiotics have been shown to be the most effective treatment for uncomplicated, acute UTI. Given this, it’s essential to speak with a clinician about possible treatment options. Getting the right treatment early can help prevent future recurrences. If you have any questions, you’re welcome to respond to the email I just sent you. Melissa
Hi Charlotte, I just sent you an email with more information. I hope it helps. Melissa
I have had utis for16 years now. They were manageable at first but over the years have gotten worse, especially since meeting my husband. I am now allergic to the antibiotics they prescribed and the pain is so intense I can’t get out of bed and need an ice pack between my legs. I don’t know what to do because it is disrupting my work and family. I am in the us
Hi Christine, can you please send me a direct message and let me know what state you are based in? I can share more information by email. Melissa
Hey there, I’m a 19 year old male and I have had 5 UTIs in the last 5 months. I got married back in July and the infection has been happening ever since. As a newborn I had a urethral diverticulum surgery but after seeing multiple doctors and giving this info to them, I keep getting antibiotics that don’t seem to 100% do the job. The infection always seems to return anywhere from 2 days to 2 weeks after concluding my antibiotic prescription. I’ve been told this is very uncommon for someone my age, just searching for answers as I am growing very tired of this vicious cycle.
Hi Brandon, can you send me a direct message and let me know where you’re based so I can share relevant information? Melissa
I am 22 and for the past 2 years i have suffered recurrent uti and for now i have a constant one and my culture show no bacteria i am in too much pain please help me .MIREILLE FROM RWANDA
Hi! I’ve always been prone to UTI’s, but they usually get cleared up with antibiotics. About three weeks ago I thought I got one, got tested, and it was negative. They put me on antibiotic anyway and it cleared it up for about a week and then symptoms came back. They prescribed another round, it helped, but I’ve had the symptoms for 2 weeks and they got stronger whenever I have alcohol. So frustrating. It’s been miserable. I have a ultrasound and appointment with a Urologist scheduled this coming week, but if you know anyone in the Missouri area, I would appreciate it! I’m a single mom with two kids, working full time and this is really impacting me, I just feel awful all the time.
Hi Jennifer, I’ve just sent you more information by email. I hope it helps. Melissa
Hi Ishimwe, sorry to hear you’re experiencing this. I saw you also sent me an email so I’ve just replied with some information there. Melissa
Im a 25 year old female and got into a new relationship in June. Within a few weeks I got a uti. Due to Covid i was unable to get a gp appointment and had to settle for a phone call appointment with a 2 week wait. I got a 3 day course of antibiotics which seemed to clear up the infection but a week later it was back. It’s now been 5 months and the gp’s have been useless, I wait 3 weeks for an appointment for them to say my urine samples have come back negative and they won’t give more antibiotics. Repeat. I am waiting for a urology appointment but it will take weeks. My symptoms flare up around once a week and between this I have mild pain every day. Any advice would be wonderful, I feel helpless. Thank you
This is my current exact experience. I’ve had UTI’s before but the pain has returned 3 times now in a month, with urine samples testing negative for infection. Just overwhelmed by what to do to solve this and really effecting my mental health.
Hi Kirsty, I just sent you an email with some information that I hope will be helpful. Melissa
Hi Robyn, I just sent you an email with some information that I hope will be helpful. Feel free to ask any questions there. Melissa
I am a 70+ male. I am having UTI since 2017, may be 3 to 4 in 2018, 4-5 in 2019, in 2020 UTI comes back within 3 to 4 days after I stop antibiotic. I had antibiotic for 90 days at a stretch. I had cystoscopy, bladder scan a\nd other tests but no adverse findings. Need Help
Hi Mani, can you please send me a direct message and let me know where you are based? Then I can share any relevant information we have. Melissa
Had infection since 13 September 2016. Definitely many more than 3 infections a year. Had cyscostopy and recently signed off. Still getting them. New doctor now delving deeper. Live in hope. I may be in my 80’s but am a keen walker where there are no toilets or convenient bushes around.
Hi Margaret, I hope your new provider can help. If you have any questions, you are always welcome to send us a direct message. We’ll do what we can to help. Melissa
my mum went and got tested recently for a UTI the nurse described her urine as sludgy green +++ and that by the looks of the colour you definitly have an infection, the dipstick test picked up blood and pus in her urine but when she got the lab results back the bacterial growth was negative there was nothing or under the threshold??
my mum suffers serverly with UTI all the time and nothing ever works!!
could this be a case of chronic UTI with bacteria in the cell walls?
Hi Hayley, sorry to hear your mum is experiencing that. It is possible this is a sign of embedded infection, but there is also a serious problem with the accuracy of standard UTI testing methods. You can learn more about why it may be negative despite infection, and then send me a direct message if you have questions. Melissa
Started dating my BF one year ago and bam, a UTI followed by another and another, then BV, yeast, rinse and repeat. I have now counted 8 UTI’s in 10 months. I am looking for the best urologist in the US who specializes in recurrent or chronic UTI’s for healthy post-menopausal women. I understand that the biofilm might have grown so deep and widespread that antibiotics are doing nothing. I fantasize about a bladder transplant….I have had it! Thanks!
Hi Chris, I can sympathise somewhat. Can you send me a direct message and let me know which state you’re based in? Melissa
Thankyou so much for this research and this article. I have been suffering with UTI’s and UTI symptoms for the past 5 years and my doctors have not been able to help much. I felt like I was crazy as they did not find any live cultures in my urine when it was tested. I almost constantly have acute symptoms until it starts getting really painful and I have to go to get antibiotics again. I hope you continue your research and eventually find a cure – to all the women suffering with this, stay strong!
Hi Ellie, thanks for your positive feedback! If you have any questions, you’re always welcome to get in touch with us directly. Melissa
Hi, really love what you guys are doing. I’m writing from Kenya. I’ve been having recurrent UTI’s for 3 years now and my gyno has been the one treating me.I have been told by my gyno that the reason for the burning sensation is too much acidity in the urine.Is that true?
Hi Melissa, this question comes up a lot and research suggests it’s possible that the ideal acidity/alkalinity of urine may depend somewhat on what organism/s is/are causing your UTIs. We’ve covered some of this in our article on vitamin C and UTI, which you may like to read. Some people do say that a diet that avoids certain acidic foods helps with their symptoms, but this does not necessarily mean it is addressing the problem. Feel free to send us an email directly for more resources. Melissa
Hello. I am 32 years old and have had around 10 UTIs in the past year and a half. My husband and I are also trying to have a baby. Could this be contributing to our infertility issues? How do I get these to stop?
Hi Sarah, you might like to read our article on UTI and pregnancy, which covers the possible association with infertility. If you have further questions, you can always get in touch with us directly. Melissa
I am 23 and have been on three rounds of antibiotics in the past two months. I resonate with this article because it seems like my symptoms never clearly go away. My nurse midwife says I may have to do a low dose of antibiotics for longer period of time until we completely get rid of this. I personally never choose the antibiotic route, until now because I’m desperate. I have taken d mannose, And cranberry But not seeing results. Looking for answers.
Hi Anna, we’ve covered antibiotic treatment, including the pros and cons of low dose antibiotics. We’ve also covered various approaches to recurrent UTI treatment. If you’ve read those and have questions, please feel free to send us a direct message so we can help further. Melissa
Hi!
Thank you very much for this article and all the comments here. I am so glad that I’ve found your website. I’ve been dealing with an UTI for 6 months. I never had recurrent infections before. Even though there is no bacteria in urine, inflammation doesn’t go away and I also have hematuria. I’ve been going to a gyno, infectious disease expert and urologist, they can’t make a clear explanation rather than prescribing antibiotics if we get any bacteria in vaginal culture. I feel frustrated. Overall, it is too difficult to have this type of illness during the pandemic since doctors are also very exhausted.
Hi Ezop, can you send me a direct message and let me know where you’re based so I can send you any relevant resources? Melissa
My reoccurring infection is in the bladder. I don’t get the painful urinary infections. My ursine just has a foul odor and testing shows bacteria and white blood count is slightly elevated. Is there a cure for this?
Hi Tina, a UTI can be in any part of the urinary tract (urethra, bladder, ureters, kidneys) and symptoms are often very different for each individual. It’s very important to find a clinician that is familiar with diagnosing and treating recurrent UTI. If you’d like more information about that, you can send me a direct message, and do let me know where you’re based. Melissa
I am an 82 year old woman, who is desperately seeking relief from constant UTI’s. I’ve had them for years, but they come back again just a few days after I finish my antibiotic now. My Dr. says Cipro is the only antibiotic that it will respond to. The Urologist says the same thing and has me take it for another 5 to 10 days..then it starts all over again! I’m doing everything they tell me to try, including probiotics and cranberry pills….nothing works. I’m interested in the Biofilm you mention, but at my age, I don’t know where to go to have this done. Please help!
Hi Marylyn, I just sent you an email and we can discuss further there. Melissa
Hi! I am grateful for your site and your research but I am not clear on solution. I got a UTI 6 weeks ago after a Pap smear and gyno exam. super annoying. I am about to start my fourth antibiotic as urine culture did not grow because I started on antibiotics first. I am taking Dmannose 1000mg and drinking cranberry and taking wellness formula and even did a two week anti inflammatory diet. I am 51 and frustrated. would love your advice! thank you!
Hi Jen, you might like to read more about the limitations of standard UTI testing, which may be relevant to your experience. I also just sent you an email, so we can discuss further there. Melissa
I had a kidney stone a little over a year ago and couldn’t afford to see a urologist afterward. A couple months ago I got my first uti in ages which I didn’t think much of, but now I fear I am getting another one. I only recently started having sex with men but I have good hygiene and always owe afterwards. I notice a small amount of pink in my Urine and slight burning, pressure near my bladder that almost feels like a kidney infection sometimes. For the last one I had, it took several antibiotics before one worked. I really don’t know where to turn as I’m unemployed due to covid and on a high deductible plan.. I can’t afford frequent UTIs!
Hi Melissa, I just sent you an email. We can discuss further there. Melissa
I get a UTI every month. The culture usually show a different bacteria each time. Urologist put me in hospital for 6 days for IV Antiobiotics and to be treated by a Infectious Disease Doctor. Still get UTIs every month. Have a bad reaction to most Antiobiotics and currently Amoxicillin is the only one I can tolerate. Dr has done cysticscope several times, ultra sound and DNA testing. Everything comes back negative. Getting very frustrated. Uribel takes the edge off but does not get rid of the UTI
Hi Judy, Would a fistula show up in the testing that has been done? https://www.urologyhealth.org/urologic-conditions/bladder-fistula
Hi Judy, we hear from many people with similar experiences. I can sympathise with your frustration. If you have any questions, please feel free to reply to our latest email conversation. Melissa
Hi. Thank you so much for your article. There is a lot more than I had originally thought about my recurring UTI’s. I had no idea about embedded UTI’s and biofilm. How would I go about find one of these specialists and specialized tested information you mentioned? Thank you for your time and help.
Hi Caoimhe, can you send me a direct message and let me know where you’re based in case I have information that may help? Melissa
Hi, Melissa! Thanks for your article. My journey started with a UTI in June 2019 that was treated with the wrong antibiotic for about a week before it was corrected. Since then, I’ve had probably 7-8 diagnosed infections and the urge to urinate symptom really would never go away even though I was told the infections were cleared up. I’ve been to a urologist who referred me to pelvic floor therapy. I’m honestly not sure if that helped or not because I got pregnant and weirdly enough the UTIs stopped. At 2 weeks postpartum, I had another infection (ugh) and am back to struggling. This is taking a huge toll on my physical health and mental well-being and I’ve been frustrated with the nonchalant way doctors have handled it. Any thoughts/advice would be greatly appreciated. Thanks!!
Hi Elizabeth, I just sent you an email with some more info and a question. I’m happy to help if I can. Melissa
Hello, it’s so great how informative your site is. I’m wondering if the same would apply to the elderly regarding embedded uti. Doctors keep mentioning that it’s not being able to pee fully and urine is left in bladder and causes uti. My mom has been getting a new strain every 2-3 weeks. She takes her week antibiotics everything is fine then bang the cycle starts up again. If you have any suggestions or any information that can help would be so appreciated!
My daughter has recurring UTIs and is now pregnant and has had 2 UTIs in 9 weeks. After 20 days of antibiotics it will go and within a few days it starts again, this has been happening for 8 months since a new partner. At her wits end as affecting her work and life. Scans done nothing amiss
Hi Jill, I just sent you an email about any resources you would like. We can discuss further there if we can help. Melissa
Hi Carla, yes, it appears that chronic infection is possible at any age. I just emailed you with a question so I can more resources there. You might also like to read our information on UTI and menopause. Melissa
Hi Melissa,
I have been struggling with UTIs (on and off) for about 2 years now. I got chlamydia around 2 years ago, and not too sure if it affects, but I have been getting recurrent UTIs ever since. It also gets worse during my period, especially after a heavy flow.
I have tried citravescent/cranberry pills. Those work in the short term but it always comes back. I live in Singapore and would love to know if you have any suggestions.
My story is identical to Meredith. It’s frustrating to keep having to take antibiotics for something that just comes back. Super painful. My Gyno referred Me to a urologist today
Hi Jane, I hope your new urologist can help. I sent you an email in response to your other question. Melissa
Hi Meredith, I just sent you an email with more information. Please check your spam if you don’t receive it. Melissa
Hello Ladies,
Im based in SG too. Having this recurring Uti is so frustrating for me as well. Can Jane & Meredith give me some updates on how treatments/Urologist have worked for you please?
Hi Kate, I saw you also sent us an email so we’ve replied with more information there. Perhaps Jane and Meredith will see this and respond here too. Melissa
First off, I really appreciate this article; there is a bit more to UTI diagnosis and treatment than I originally thought.
Secondly, I am 19, believe I have good hygiene, and I always always always pee after sex. Basically, I feel like I’m doing everything I’m supposed to in order to prevent UTIs. However, I got my first one a little less than 10 months ago, and now I’m having my fourth or fifth UTI. Along with that, the infections are usually pretty bad (I think). I always have super bad pain, almost always have what seems like a significant amount of blood in my pee, and today I peed out my first ever blood clot, which felt HORRIBLE.
I guess I’m mainly curious if this sounds serious? I don’t want to just keep taking antibiotics to keep going through this.
Thanks so much:)
Hi Emma, we hear from others who experience similar symptoms to those you described. It’s always best to see a doctor about this, but where recurrent or chronic UTIs are concerned it helps to work with a recurrent UTI specialist. I may be able to send you some information about how to find one, if you send me a direct message and let me know where you’re based. Melissa
I am in a current cycle of UTI’s, seemingly monthly or more. I have had a cystoscopy that showed nothing abnormal. The urologist can only keep suggesting prophylactic antibiotics which don’t make me feel good overall. I am located in Tampa FL, do you have any suggestions? It really negatively impacts my family life, my job, and my mental health.
I’ve had reoccurring utis for 9 years, Living in and out of the emergency room. Just for them to tell me the culture has no bacteria, but your urine has some white leukocytes and that means infection. They tell me to go see a urologist, I’ve been the best here in Nevada and he told me that nothing else he can do for me. To seek a second opinion and homeopathic remedies . I need answers and not a bandaid; please help.
Hi Angelica, I just emailed you some information that may help as a starting point. Feel free to send back any questions you have. Melissa
Hi Meredith, I just emailed you with some information and a few questions. Check your spam if you don’t see it. Melissa
Hi Melissa. I am post-menopausal but I have been getting UTIs frequently for years. They slowed down a bit last year, but now they’re back. The last time I ended up with a kidney infection because I hardly get symptoms anymore and I wasn’t paying attention. Sometimes it’s embarrassing to keep going back for the same thing over and over again because they start to look at you like you’re doing something wrong when I know I’m not. I live in Neptune, NJ and was wondering if you have information on someone who specializes in chronic UTIs.
Hi Elaine, I just sent you an email with more information. You also might like to read our information on UTI and menopause. You shouldn’t feel embarrassed! You’re not alone in this, and what you’re experiencing is very common (something we’re trying to help change). Melissa
Hi there. I have had 2 different cultures for my UTIs come back negative, but I DEFINITELY have symptoms exactly as a UTI. I have had 4 in the past 7 months. Can you please direct me to more information on how to get better testing done? Thanks
Hi Kait, we’ve covered many of the different testing options in our article on UTI testing. If you have questions after reading that, you can send me a direct message and I’ll help however I can. Melissa
Hi, I have had over 3 UTIs and yeast infections in the past 6 months. I’m very active, I take my vitamins and I eat a plant based diet. I have gotten tests back negative and my issues ignored until I was in so much pain I couldn’t even walk. In the past I had Chlamydia and ever since I’ve had trouble with sex and the fear and anxieties that come along with it..I would love to know the regiment the really helped you so that I can close this chapter and feel free again. I’m so glad I found you and I’m looking forward to you response. Take care, L xx
Hi Lily, I’m not sure where you’re based, but I sent you an email just now with more information. I hope you find answers soon. Melissa
Melissa, I live in the metrowest part of Massachusetts. could you email me if you recommend a doc in the area me.
Hi Jane, I emailed you some info. Please check your spam if you don’t see it. Melissa
Hi Milssia,
I’m long time Chronic UTI Sufferer and at this point of my life (70 years old) having UTI’s almost all the time. Can you help me to find a doctor who has experience in treating and testing UTI’s? I live in Atlanta GA.
Hi Anna, I saw you also sent us an email so I’ve just replied that with some more information. I hope it helps. Melissa
Hi Melissa,
I’ve had 2 UTI eposides in the past 6 months and I think I’m having one right now. I get stressed everytime I have it and when it goes away, the anxiety of it coming back drives me insane. It has really affected how I live.
Can you please share your remedies? I read in your other post that you stopped taking antibiotics entirely. How does that work? I really want to make my UTI go away for good.
Thank you.
Hi Bernisse, I saw you also sent me an email, so I’ve replied there. Melissa
My situation is very similar to Fiona’s; I’ve been in lockdown with my boyfriend and have never been very sexually active before this. I’ve never had a UTI before, but now I’ve had 3 in the past 2 months that don’t seem to totally clear up with antibiotics. Only one has has tested positive for the UTI despite having all the symptoms. I’m very hygienic, pee after sex, drink enough, etc. and take probiotic and cranberry extract vitamins. What should I do, and should I get tested for the biofilm? Thank you so much.
Hi Emily, can you send me a direct message and let me know a little more information, including where you’re based, so I know what information is most relevant? Melissa
Hi
I have been seeing white particles in my urin accompanied with mild cramping just around my abdomen .
I and my sister (2 yrs older then I) both get recurring UTIs and have for many years now. My GP doesn’t have an answer. Seems the Kaiser urologists doesn’t either. Tried multiple herbal remedies and on Marobid now. I don’t think it ever really goes away. I live near Salem Oregon. Can you recommend anyone , so I can know what test to purchase etc?
Hi Jan, I saw you also sent us an email so I’ve replied there with more info. I hope it helps! Melissa
Hi Fatima, I sent you an email last week. I hope you got it. If not, can you check your spam? Melissa
I am a 55 yearly male who has now had 4 UTI infections since Nov 2019, taken four different types of antibiotics which help from 1 week to 5 weeks and then it returns. All urine and future test ar negative so this has to a biofilm . As a man there is little constructive advice from my urologist and I work 1000 miles away from the nearest medical facility . I just hav etc get this resolved it is affectingly life to a point I can no longer work. When the UTI returns it is extremely painful. How can I get tested for the biofilm?
Hi Jim, I got your email too and have replied with more information there. Melissa
Hi! I’ve had a UTI since November and have been treated with two different antibiotics since. The first one seemed to work but then it came back and I got a second prescription that according to the doctor, took away bacteria (they did a culture test). However, my symptoms have not ceased. I have the same amount of pain and I’m very scared for my future. I want to take action as soon as possible, what do I do?
Hi Lovisa, I saw you also sent us an email, so I’ve replied there with more information. Melissa
I had 7 uti’s last year and that includes a 6 month uti free period where I was prescribed nitrofurantion to take post intercourse. It worked for 6 months. Unfortunately this changed after Christmas (more alcohol was consumed than normal and less water) and the post sex antibiotic wasn’t enough to prevent a uti. An out of hours visit later I was prescribed a different antibiotic (trimethoprim) for 7 days and by the 5th no change. Another out of hours visit and I was prescribed ciprofloxacin for 5 days. After 2 weeks, the uti disappeared. Any advice on which products that prevent uti’s? I take 3 cranberry extracts and drink 3L of water daily. I also have d-mannose capsules on standby and my GP prescribed more nitrofurantoin for post sex (not every time).
Hi Ali, I can sympathise with much of your experience! We’ve shared some tips on preventing UTIs after sex in Juliet’s Story, and the science behind different home remedies. I can also share more about specific things that helped me, if you send me a direct message. Melissa
Do you have sources for this article? I want to show my urologist but I want to make sure she thinks it’s credible…
Hi Jo, many of the sources are hyperlinked within the article (highlighted in pink). If there are other sources you’re after, can you send me a direct message so I can share them via email? Melissa
I have had 4 UTIs in the last 6 months, with one episode resulting in hospitalisation from a kidney infection, misdiagnosed as kidney stones.
I have been on a range of antibiotics but the infection just comes back again. I want to find a urologist who will test my urine despite there being only “trace” amounts of pus cells and blood as I am worried I have something causing this recurrence in my urinary tract or bladder.
Hi Harriet, I saw you also sent us an email, so I’ll share more information there. Melissa
Hi Dr I have been treated with uti since last year and Dr said it is chronic and send me home, I have been going through more test but all they say is normal while I still feel pain when urinating and wake up seeing my penis tip swollen, I have been only given short term untibiotics , I really don’t know what is going on. Is this infection cureble or not. Please help me Dr
Hi Erastus, sorry to hear you’re experiencing that. We aren’t practitioners so we can’t provide specific advice. We may be able to share more helpful resources though, if you get in touch directly and let us know where you’re based. Melissa
Some of you might research lomatium and uti treatment. It seemed to really work for me when nothing else at all did. It’s an amazing herb for all sorts of sicknesses. Also getting hormone, mineral, and vitamin levels tested by natural practitioner. We have a local professional who does it for about $250. Then start finding out how to get what’s missing in diet will help. Along side of that learning about fermented foods and replenishing probiotics throughout the body can definitely benefit. Home made sauerkraut, fermented wheat berries, kombucha, kefir, clabber, all are wonderful. Especially if you’ve been on antibiotic treatments. It’s more work than taking pills but it’s worth it!!
I’m female turns 29 this year. I got my first UTI when I was in Elementary school, the next was senior high school. Since then I got it pretty repetitively but still ok, like maybe after 2 years each.. then in 2015 i got it again, and i mostly just drink a lot of water and the symptoms were gone. But it’s just getting worse since 2019. I got it maybe thrice or more a year, and i just drank a lot of water. The latest test results showed that there weren’t any infections. As I wrote this, i got another episode. I noticed i got it pretty easily when i drink less water (this less water is normal amount people should take daily). Some website stated that STI may have a role. Is it possible when my last intercourse was more than 2 years ago? or maybe IC or biofilms that cause it?
Hi Raylee, you might like to read our information on UTI testing and how inaccurate it can be. It’s possible you have had an unidentified infection for a longer period of time. Some STIs can cause symptoms similar to a UTI, and it is often suggested that STI testing is done, if only to rule it out. If you have other questions, you can always get in touch directly. Melissa
Hi Kali, it’s great that you’ve found something that works for you. I hope it has provided long term resolution! Melissa
I am in a new relationship and have had x3 UTI’s in 4 months. They clear after antibiotics but it hasnt felt like its 100% gone. Have been on Dmannose which has been very helpful, but i have run out ,and it seems to be out of stock everywhere. In 4 days the UTI is back full blown,i have another doc appt later today. I am extremely careful about cleanliness, pee after sex etc etc. Have had only 1 in my life prior to these happening,its a big problem.
Hi Fiona, I can sympathise. Can you send us a direct message with more information on where you’re based so we know what resources may be helpful? Melissa
I am wondering if there’s any idea how long a biofilm takes to form? I’ve only just started having reoccurring UTIs as of the past few months, and am just a little worried if I’ve already left it for too long.
Hi Denise, we haven’t seen any conclusive research into biofilm formation in the bladder with regard to how long it may take. Biofilms form naturally in the body and elsewhere in the environment, and are not necessarily negative. There may be many variables involved, including the types of organisms present. Melissa
Hi, I get recurring uti’s. I had a whole year without any recently that I thought I had beaten it. But Ive had 2 in the last 2 months. Antibiotics cleared the first one but obviously I now know that it prob hasn’t really cleared it & I could have biofilm. I’m in New Zealand in a provincial town with little specialists. I have been taking d-mannose for my current flare up & I thought I was getting better, only to find last night all the symptoms came raging back. I’ve ordered lauracidin from amazon & I’m going to order the biofilm defense too & add that into rotation. If it is a biofilm will I get worse before I get better? Ie, will the release of the biofilm cause a strong uti once u start taking the defense?
Anyone else feel like they can just never have sex because of UTI’s? I’m pulling my hair out over them and having so many sick days from work I’m worried about my employment!
Hi Jodie, I can sympathise! I saw you sent us an email too, so I’ve replied there with more information. Melissa
Hi Hannah, as yet there are no studies that look at the impact of biofilm dissolvers in the bladder – we don’t officially know if they have any impact at all, or whether they are safe to take. Some practitioners do use them as part of a treatment approach. If you haven’t already, you may like to read our recent article on Ruth Kriz and her approach to chronic UTI and IC – it mentions her use of biofilm dissolvers. Melissa
I’m super frustrated by the email I received by you. I already know a lot about UTIs and how to prevent them, I want to know how to heal. I feel like “Melissa’s” story was all about how she ultimately healed but I’m not getting any information about HOW I COULD HEAL. This is super frustrating. If you took certain supplements and changed your diet for a lifetime, please lay that out explicitly so I can do the same.
Hi Hope, I don’t have any record of emailing you, or of receiving an email from you. Did you use a different email address? As I mentioned in my story, some of the supplements I took were to address deficiencies that were specific to my own body, and this does not apply to others, so I don’t lay it out explicitly online. If you have sent me an email under a different address, can you reply to that again so I can address your questions? Melissa
This is no laughing matter. I drink over 2
4 oz.. of water, do not drink coffee or pop. Take 1000 mg vitamin c ,take 1800 cranberry vitamins , drink cranberry juice ,wear plain white cotton panties, urinate before and after intercourse, wipe front to back, wash myself after everytime going to the bathroom, use plain white non scented toilet paper, don’t take baths just shower, at this point I would rather go in a colostomy bag. And by pass my bladder.
Hi Jennifer, you’re right, recurrent and chronic UTI are serious problems that have a significant impact on quality of life and they need to be better addressed. If you have any questions or if there are any resources we can share, you can get in touch with us directly. Melissa
It’s not just women who get these! I’m a 49 year old male in UK suffering from what appears a chronic UTI, there don’t seem to be any guidelines on chronic UTIs in males,so as soon as my recurrent UTI came up, the talk has been about my prostate, when it was normal on examination, and they seem astonished that a UTI could keep coming back in this way like it’s never happened before in the history of humanity!!
I’ve long suspected a biofilm ( doctors don’t seem to actually think about things and if there’s no guidance, they have no idea so just keep prescribing what the guidelines say for an acute UTI!). I hope that the specialist I eventually see will have some idea of what to do, but I will certainly be using some of the science from the site whenever that consultation happens!
Hi Rob, you are right, males and females are both affected by recurrent UTI, and there are no helpful clinical guidelines for either. If you’re looking for a UK based specialist, I can share some information that may be useful. Can you get in touch directly and I’ll share by email? Melissa
Thank you that’s very helpful of you! I have sent a message via the form 🙂
Hi Melissa,
I’ve been with my husband for 10 years now. Because we are trying to have a baby, we started having sex without condoms. And boy, does this UTI come like crazy. Pretty much each time we have sex, UTI comes and bite me in the ass… He wash, I wash. Go to loo before and after, I even wash after too… And anyways, no luck for me in that department. I saw you mentioned in a previous comment you have info on a specialist. If you can share the information with me, that’d be much appreciated!!!
A
Hi Amily, can you send me a direct message and let me know where you’re based so I can share more information? Melissa
Florida. Chronic UTIs. 1 right after another. older adult.
Hi Jill, can you get in touch directly with any questions you have? I’m happy to provide links to any resources that may be useful. Melissa
I’ve had a recurrent UTI for 4 months now. First i started with my family doctor prescribing antibiotics 3 times and that didn’t clear it up. That let me to find a Women’s Urologist, but my experience hasn’t been better there. I’m on round 9 or 10 of antibiotics. I’m being treated with Cipro, and previously Keflex, and macrobid. I’m frustrated…I feel like the PA is just giving me the run around. I’m suppose to get a cysto but haven’t because I always have an active infection. I hate how aside from the UTI symptoms all the antibiotics are also causing a vaginal infection. I have two types of infections, i think. I have staph and urea plasma.
Hi Cynthia, sorry to hear you’re experiencing that. If you’d like specific information on testing, or information about recurrent UTI specialists, can you send us a direct message and let us know where you’re based? Melissa
I have had recurring UTIs for almost 20 years. I now pretty much constantly feel like I have a UTI and find myself popping urinary tract pain relievers almost daily. I am desperate to find help to end this terrible cycle of antibiotics that never truly cure the infection, and to determine why I continually become infected. No doctors I’ve seen have yet been able to provide any real help.
Hi Lila, we hear from many people with similar experiences. You might like to read our information on UTI testing, and treatment. If you have any questions, you can also send us a direct message. Melissa
I have dealt with UTIs most of my growing up years I was told that it was because of after sex I can recently discovered after not being in a relationship I was not getting UTIs and I got in a relationship and about six months in I got a UTI I was treated by the doctor’s three times in a row right after 1 it would come right back and do it up to the third time I was just recently treated for that third time and I still feel that I am not better I am wondering what else could it be and what else should I do to get rid of this after saying is a UTI because when I do the urine test at the doctors office they say it comes back I UTI I am sitting here afraid to wonder why it’s not going away what do I do next
Hi Elaine, if you’d like information about finding a recurrent UTI specialist, you can send us a direct message. You also might like to read our article on UTI testing. Melissa
Desperate for help. 2 1/2 years of intermittent daily pain and frequency. I’m in California and just ordered MicroGenDX but how do I find a local doctor that will help me
Hi Claudia, the best approach is to reach out to MicroGenDX directly to ask for a referral to a practitioner in your area. If you have any other questions, you can send us a direct message. Melissa
I had chonric BV for 4 to 5 months which has transitioned into chronic UTI’s for over a year and half now. I have seen multiple urologists, obgyns, endocrinologists, GI specialists, none have been able to help me. I have taken every antibiotic that they can prescribe me (sometimes for three months straight). I wear cotton underwear, keep everything clean, take D-mannose and have taken other UTI cleansing supplements in order to try to flush out a potential biofilm. I constantly hydrate and drink dandelion teas in order to keep my system flushed. After years of seeing specialists, antibiotics, supplements, lifestyle changes, etc., I still have a UTI that seems to never clear up.
There is at least one scientific study on using hydrogen peroxide (douche) for BV. I’ve had BV in the past and when it felt like it was coming on, plus a UTI, I quickly used the peroxide and both went away immediately. My teenage daughter with history of chronic UTI also used this method once and experienced the same. There is no doubt in my mind that many UTI’s are coming from some type of overgrowth in the vagina and migrating (and not from wiping incorrectly from the anus). Do they think we are that stupid?
Hi Julie, we hear many similar stories, and I can personally sympathise. Can you send us a direct message with info on where you’re based so we can share appropriate resources? Melissa
Hello I am a 56 year old female that has been suffering with chronic UTI’s and kidney infections. Since 8/28/2017 after a neck surgery. I average 1 or 2 per month. And when the infection goes into my kidneys it takes antibiotic shots for 2 weeks for a short term cure. I have done the low dose of antibiotics twice and as soon as the antibiotic is finished I am back at doctors with another infection. This is really effecting my life. Any suggestions appreciated
Hi Laronda, we hear many similar experiences – you’re not alone! Have you read our information on better UTI testing, and treatment options? If you have any questions after reading those, you can always send us a direct message. Melissa
Hello,
I am a 31 year old female who has had roughly 10-11 UTIs this last year. I found this site and was relieved when I started taking D-Mannose and was UTI free for a month. Then, they came back. I have an appointment with a urologist next week. I am terrified I am just going to be prescribed antibiotics with no real solution. Any leads on a practitioner who specializes in this issue would be much appreciated.
Hi Alexandra, can you send us a direct message with more info on where you’re based so I can email you about this? Melissa
I have been told I most likely have Medullary Sponge Kidney because of reoccurring UTI’s and over 20 kidney stones, I have only passed a couple. I am now antibiotic resistant as well as allergic to most antibiotics except for a few types. I’m looking for an ID doctor who understands biofilms, I am so tired of being sick and tired.
Hi De Anna, can you send me a direct message and let me know where you’re based so I can share any relevant info? Melissa
I received an MRI with contrast (gadolinium) in September 2017. Prior to the MRI, records indicated I hadn’t had a UTI since 2010. The next month after the MRI, I began having chronic, monthly bacterial UTIs. Cystoscopy showed nothing. 90 days of low dose antibiotic did not resolve the problem. I have edema now in my vagina area. If UTIs are being caused by a heavy metal toxin (gadolinium), which cannot be chelated out, how do I stop and/or prevent the UTIs? Have tried d-Mannose to no avail. Thank you.
Hi Deborah, many people report that the turning point for them was finding the right practitioner. We may be able to provide some info to help with that, if you can send us a direct message and let us know where you’re based. Melissa
Since May, I’ve had 2 negative and 1 positive test for UTI and have been on 2 different antibiotics. Have not had any relief. Current docs won’t treat anymore without a positive test. Any docs in Philadelphia, PA you would recommend? Am really suffering.
Hi Diane, I just sent you an email with more information. Melissa
My problem has been going on for about 4 years. After an extensive course of antibiotics, I started getting UTIs nearly every time I had sex with my husband. After about 10 in a year, I saw a urologist, who performed a cystoscopy and found no underlying cause and to take Hiprex for 6 months. At the end of the six months, I stopped taking the tablets and the infections started again. This wound up causing anxiety to the point where I am taking antidepressants. After a psychologist convinced me to try again earlier this year, I got another infection on our second attempt. No sex, no UTI. I am in my mid 40s and can’t figure out why, if my body could flush out bacteria for decades, why it can’t cope with it now.
Hi Jules, you’re not alone in that experience, we hear from many people with similar stories. There could be a number of reasons this is happening, and it may be helpful to speak with a recurrent UTI specialist. You might also like to read our information about recurrent UTI treatment. Melissa
I have had issues since giving birth 2 years ago. I had 2 catheters during child birth and the first was installed incorrectly. I am not sure if this is what sparked my issue. However i have multiple UTI’s most often occurring monthly. Often times i have gone to the hospital just for them to say there is nothing wrong. My question is, Are there any sites for more information in Ontario or even Canada? This is where we live and i have been unsuccessful finding information seeming from our location.
Hi Sarah, I’m not aware of any specifically Canadian sites around recurrent UTI. We have some information that might be helpful. You can send us a direct message if you’d like more detail via email. Melissa
I suffer from 5 to 6 uti yearly, recently, they found no bacteria growing. Went to specialist and he said low white blood cells which means there is an infection. I’m confused. one dr says I don’t have UTI and the other said yes. they want me to take 2 months of antibiotics. I don’t want to take them anymore, they hurt my stomach and make me sick. How can I go further into seeing what is causing the UTI?
Hi Lauren, you’re not alone in that experience. Standard UTI testing has been proven to be very inaccurate. You can read more about why this is the case, and different types of testing you might like to try, here. If you have any questions after reading, feel free to send us a direct message. Melissa
I have had a UTI for a year now. My doctor and I just began using Microgen and I’m on my 4th round of antibiotics. What else can I do? This is also new territory for my doctor .
Hi Madison, I’ve sent you a couple of emails, but I’m not sure you’re receiving them. Can you check your spam? Melissa
I know I have a biofilm infection and I often feel hopeless and like I’m only going to get worse. Is there any urologist in or near Philadelphia that is well versed with biofilms in the bladder or that often use microgen?
Hi Elizabeth, I sent more information in response to your email. Melissa
Are there any Doctors in Southern California that get this? Anyone who doesn’t just throw antibiotics at a 91 yr old who is otherwise in pretty good condition for her age EXCEPT for these UTIs and the effects of the meds they throw at her?
Hi Lalla, I also received your email so I’ve sent you some more information there. Melissa
I have had UTI for six months and on my ninth lot of antibiotics but have not taken them.
Hi Sheila, I received your email so I’ve replied with more information there. Melissa
I have interstitial cystitis but suffer more with uti’s. I’ve had MRSA in my urine after an op. 2016 I had 28 in that year. Stage 3 kidney function. Now there back. 4 from beginning of May. Can this make my kidney worse?
Hi Margaret, it’s always best to talk to a doctor about these types of questions, as symptoms can quickly escalate. If there are any resources we can share, feel free to send us a direct message. Melissa
I get pretty vicious UTI symptoms first thing in the morning, about once every two or so months. 100% guaranteed if I don’t urinate post sex. I usually chug a ton of water, and take ACV shots alongside Ginger extract capsules. I can usually subside the worst of the pain by this tactic, and deal with other symptoms slowly. I do this because taking antibiotics means guaranteed yeast infection, along with a flare up of my rheumatoid arthritis. Does having an autoimmune disorder mean treating my recurrent UTI’s is just something i’ll have to take as it comes? Hoping to find some help with certain tests I should be asking for to help guide my daily supplementation to keep my body feeling at least somewhat decent!
Hi Paris, can you send us a direct message with some info on where you’re based, so we can email you any resources that may be useful? Melissa
Is there a connection between autoimmune disorders and IC or UTIS?
Hi JG, there is a theory that there may be a connection for some people, but research has not yet proven this one way or the other. Melissa
I remember when I first encountered UTI was in my early 20s. Had it here and there. Back then I did as the doc said but it would still come back. I don’t know how I stopped getting UTi for maybe about 7-8 years and recently I have encountered UTi more than 6 times in just the one year. Some times, it’s bearable and I can not need to rely on antibiotics, but some times, as soon I feel the slightest symptoms, the symptoms will just amplify within an hr or so and i need antibiotics!! I actually don’t know why my body is like this now when I’ve done all the ‘prevention’ advices. Please advise what I should do.
Dear Melissa I m based in Hungary (38 years old) and I m suffering from recurring UTI which always come after intercourse. The pain is terrible and it starts to impact my well being. I ve been tested for STD and my partner as well and we got negative results however I m getting symptoms almost after every intercourse. I m starting to be hopeless. Please advice!
Hi Nora, have you read the information on our site about UTI testing? You might like to discuss different options with your doctor. If you have specific questions, you can always get in touch directly, and we’ll help however we can. Melissa
Hi Esther, you’re not alone in that experience. Many people share similar stories. Many also say it helped significantly to find the right practitioner – one with experience on the topic of recurrent UTI. If you’d like more information, you can always send us a direct message and let us know where you’re based. Melissa
I get a UTI about every 3-4 weeks, sometimes bacteria shows up and sometimes it doesn’t. I’m constantly on antibiotics but it always comes back and I’m afraid of losing my job. Ive had a cystoscopy, pap and ultrasound and nothing showed up. What should my next step be?
Hi Rae, you are not alone. I am just like you and have UTIs every 2-3 weeks. I’ve gone to three urologists, my gyno, family doctor. No one has any answers. Sometimes I have bacteria and sometimes I don’t. I know how you feel.
Hi Rae, you might like to read our information on recurrent UTI treatment, and UTI testing. Then if you have questions, you can always get in touch. Melissa
i have had a few uti’s, but most are not that uncomfortable for me…just a dull bladder pain. however, recently the pain seemed a little more acute and more bothersome, so i saw a doctor who cultured my urine and said i had strep b. i was given a 7 day course of amoxicilin after which time, i still felt i had the UTI. i was re-tested 1 week after finishing the antibiotics and, despite the still existing symptoms, was told my urine when cultured was negative for bacteria. at a loss…any advice?
Hi Jules, sorry to hear that. We’ve provided some information on why test results can be negative, despite your symptoms, if you’d like to read it. You can also get in touch directly with any questions. Melissa
I’m so sorry to read all these comments of people suffering this condition over and over! But I will say that it makes me feel less alone in this to know that we are all going through it together and that hopefully soon we will all get the answers and treatments we need to be finally being fully healthy again. My issues basically came out of the blue a couple months ago. 3 bouts within 6 weeks…The first 2 times my doctor prescribed Macrobid. This last time there was no infection found. Doctor commended that I go see a urogynocologist as this frequency of occurence is beyond my doctor’s scope. I never get uti’s so why did this all of the sudden come on? Are there conditions of the urethra that could cause this that aren’t bacterial in nature?
Hi, I have been suffering from
UTI symptoms for about 4 months now. I’ve done everything to try and keep it away. I went to see a urologist in early July and they do DNA testing, but here we are August and 2 antibiotics later and nothing is resolved. I read monolaurin and interface plus can help disrupt these bio films that you mention. I just want relief I’ve already had a renal and bladder ultrasound along with X-ray those came back negative. I’m just waiting on symptoms to subside to do a cystoscopy.
Hi Anna, I saw you also emailed us, so I’ve responded there with more info. Melissa
Hi Elle, the short answer is that yes, there are a number of things that can cause UTI-like symptoms, so it’s always best to continue discussing your symptoms with your doctor. On the other hand, if your symptoms are caused by a UTI, the standard testing used may be failing to pick up the cause. We’ve covered more on how this can happen here. Melissa
I am 43 years old and have been having persistent UTI since my early twenties. Recently I had one where the only symptom was the horribly foul odour of my pee. Foolishly I ignored it for months. I was prescribed Macrobid, but the infection and blood were still present, then Amoxicillin which did absolutely nothing, then back on Macrobid and now 7 days of cephlexin. The odour went away with the initial treatment, now though I have urinary frequency, and stabbing type pains in my lower abdomen. I am so stressed about this. I’m waiting for my appointment with a urologist, it has been a very difficult time thinking the worst. Have you heard of only having pain after the uti is treated as I have experienced?
Hi Jackie, we hear many similar stories, and the symptoms that each individual experiences can be very different to the next. Many people describe pain alone, but of course, it’s always best to discuss symptoms with your doctor. If you’d like more information, can you send us a direct message and let us know where you’re based? Melissa
I have had a urine culture done which which shows mixed skin and/or urogenital present. I have been given Macrobid, but did not get rid of the infection. MY symptoms are pressure, soreness, sensitivity,and feeling of sweliing in the pelvic area after urinating. Don’t know what is good for it.
Hi Nel, we’ve covered UTI antibiotics, and how they are selected, here. If you have any questions, you can always get in touch directly. Melissa
I am female. Live in US. I got a UTI in October 2018. First treatment seemed ok but when infection seemed to have been resolved, got another within ten days. Was advised to take low dose antibiotics. Trimethoprin. No help. Have had UTIs off and on since and have taken different courses of antibiotics. I guess I would say I have recurring UTIs. Since I took a few pills before going to doc in order to function, test often negative, so now I cannot get any more antibiotics after this course . So I hope to resolve it this time with intensive treatment then low dose for a few days.One Macrobid. Also advised to use Estradiol. In meantime have discovered a urology practice associated with a nearby hospital that has 4 docs specializing in UTI treatment. Will make an appointment.
Hi Barbara, I’d love to hear more about the UTI specialists. Can you send us a direct message with more information? It may be helpful for others too. Melissa
Diagnosed with IC 2015. Wake up to void EVERY single hour for 4+yrs. Can’t take the pain or sleep deprivation any more! Need a Northern NJ doctor who will treat with Kriz or Malone Lee protocol. Help!!!!!!!
Hi Kyle, can you send us a direct message with this same information so we can share some more information? Melissa
Thank you for the enlightening article! I’ve had constant infections for years and nothing has helped. I was hospitalized in March with an antibiotic resistant infection.
I have had about 7 UTIs in the past 5 months, Have been on several antibiotics, but the infection always seems to come back. I am seeing a infectious disease dr. Are there any doctors in NE specializing in UTIs?
Hi Joyce, at the moment we don’t know of any recurrent UTI specialists in NE. I can share some information about possible telemedicine options. If you’re interested, you can send us a direct message. Melissa
Hi Linda, I’m glad you found it helpful. If you have any questions, you can always send us a message. Melissa
In the last 2 years I probably have had 8 UTI’s. I would do to the Dr’s and get antibiotics and it would clear up for a month or so, but would come right back again. I stumbled upon a blog when I was searching the internet for some answers and the author advocated taking powdered D-Mannose with water before and after sex.
I figured why not give this a try since nothing else seemed to work keeping UTI’s at bay. I’ll tell you what- I haven’t had one in over 6 months since starting! If I ever start to feel that awful sensation, I take a double dose and it seems to knock it right out before it gets bad. Seriously a life saver!!
Hi CJ, I’m happy to hear D-mannose has helped you. Studies show that it may be useful for prevention of UTIs caused by E. coli, and there is some speculation that it may also be helpful for other gram negative bacteria. There is no suggestion at this stage that it may be beneficial where other bacteria are involved, so it’s important to identify the cause of your UTI. We’ve covered D-mannose and the research into it, here on our site. Melissa
Hello, I’m a female that has had chronic UTI’s since 2010, I’ve had several cystoscopy’s and told nothing found, within the past 6 months I’ve been hospitalised due to gross hematuria with hemaglobin dropping to 5.2-6.0, given a blood transfusion with 2 units each time, had positive cultures was treateated with iv antibiotics in the hospital and P.O. antibiotics upon discharge, finish antibiotics and symptoms srart all over again with the hematuria, this finally end up with me in the ED from the clotting of blood resulting in not being able to urinate, this has a cured every month for the past six months, any suggestions?
Hi Keri, I saw you sent a direct message as well, so I’ve responded there. Susy
I have had “some infection” since jan 2019…. been told it’s candida, , etc. Put suppositories for candida and taken cranberry tablets …. symptoms
Disappear and reappear! Currently get a burning every other day, urine is cloudy and smells very acrid and when I need to pee I have to go instantly! What could it be and what can I do? Thank u
Hi Neel, can you send us a direct message with more info on where you’re based, so we know which resources may be most helpful? Melissa
I got my first UTI in November 2018 and have had 6 (incredibly painful ones) since then. I recently found out I am allergic to Macrobid which is the only antibiotic I’ve been prescribed since my first diagnosis. What are other common antibiotics that actually work to cure UTIs? Is anyone else allergic?
Hi Samantha, we’ve explained the use of antibiotics for UTI here, if you’d like to read more. There is no specific antibiotic that will cure every UTI – it always depends on the cause, and different antibiotics are effective for different bacteria. If you have any other questions, you can always get in touch directly. Melissa
Hello
Do you have any opinion of Copper IUD´s possibly increasing the recurrence of UTI´s due to the E-coli bacteria attatching them to the string of the IUD?
I have had 5 UTI´s since the beginning of 2019.
Hi Roberta, we haven’t seen any conclusive studies into the possible connection between copper IUDs and recurrent UTI. We’re always on the look out for new information though, so if you come across anything, we’d love to see it too. If you have any other questions, you can get in touch directly. Melissa
I’ve had 6 UTI’s since Jan 2019. I’ve seen a urologist and he said I might have IC. I’m currently keeping a food log and eliminating foods that cause flare ups. I have a follow up appt on May 15. I had a culture done in April when I had my 5th positive UTI. It was negative. I’m planning on asking for the camera catheter test for the IC. What other things do I need to ask for (test wise or other) when I have my appt. I wasn’t prepared the first time and I want to be the second time.
Thank you
Hi Mary, it’s great that you’re taking steps to prepare. If you could send us a message directly, we can share some more info that way. Susy
Would be great if you guys could respond publicly as a lot of these questions apply to us all.
Hi Mags, while a lot of people have similar questions, everyone’s situation is very different. We welcome comments, but we don’t make recommendations, as per our community guidelines. That said; we can occasionally share more info via email, if we think it’s useful specifically to the person requesting it. In the meantime, we do have a little information on our site here about speaking to your doctor and we’re working on materials to better help with this. Thanks for understanding 🙂 Susy
I have a UTI that won’t go away. I am on my 7th round of antibiotics and still have symptoms. I’ve also been diagnosed with IC. The UTIs have been confirmed with cultures. I’ve tried so many things in addition to antibiotics: herbal remedies/teas, diet changes etc. I am suspicious of a biofilm after reading your blog. I see a urologist but she doesn’t seem very versed on it. Do you have any recommendations?
Hi Julie, can you send us a direct message so we can share more info via email? Melissa
What is the cure for the chronic or re-current UTI? I have tried many methods like cranberry juice, vitamin C and staying hydrated, however nothing seems to prevent them. What is the best course of action?
Hi Lisa, every infection is different so there is no one cure. It’s important that each person find out what is happening in their own body in order to address their individual issues. We’re told by many that finding a specialist who has experience diagnosing and treating recurrent UTI marked a turning point for them. If you’d like more info, feel free to send us a message directly. Susy
At age 68, I have approximately a new UTI every 3 weeks. I was diagnosed with MS 10 years ago. My UTIs began infrequently, and now they are out of control. I have been on so many antibiotics. About four years ago, I had bladder botox to try and relieve my incontinence. Didn’t work, made things worse. Went into retention for a few months, miserable time I might add. Since that time seems my UTIs increased. I have been hospitalized a few times for severe UTIs which in turn cause my MS to flare up. Currently being treated for my UTI …did a 6 day injection of Gentamicin and am following up injections with a daily treatment of Nitrofurantoin.
Hi Kathy, sorry to hear you’re experiencing this. If you have any specific questions, you can always reach out to us directly. Susy
Thanks for your article. I am a man aged 34 and I get UTIs once every couple of months! I have tried anti-biotics but the UTIs keep coming back. I have gone for kidney / bladder scans and done several urine and blood tests to confirm the UTI wasn’t caused by STDs, diabetes, etc. I found that the best solution for me was to avoid sugar and drink lots of water. However, if I don’t, the UTI predictably occurs.
Sorry to hear you’re having this experience. Feel free to get in touch directly if you’d like any specific info. Susy
I am what appears to be a healthy, toned, speeding bullet of a 64 year old woman. Friends all ask what I am doing so they can do the same.. but I have a dark secret. At 18 I peed blood a day after having sex for the first time and the downward spiral began. If I didn’t have sex I seemed to hold my own by alkalizing my system with d-mannose, baking soda before and after sex. Now in my 60’s without sex, I seem to get a UTI if I drink coffee without the required two glasses of water! Can’t even sit in a hot tub and the symptoms kick in followed my pink urine. What is going on? Help! Please!
I am 80 years old and have had UTI all my life but lately they are coming about every 8 weeks or so go on antibiotics for 5 days every time been to 3 really good drs down here in Fl but they keep coming back I take cranberry pills and probiotics for females for UTI still I am still getting them what else can I do so tired of hurting all the time
Hi Sandra, many people say the turning point was finding the right practitioner. If you’d like us to share some info on that, you can send us a direct message. Melissa
Hi Sylvia, sorry to hear you’re experiencing this. Many people tell us that finding a practitioner experienced in diagnosing and treating recurrent UTI marked a turning point for them. You can get in touch with us directly if you’d like more info on this, or anything else in particular. Susy
Do you know of any cases where surgery has been the answer for chronic UTI? I have been getting 5 per year plus for many, many years and now it is becoming un-bearable. Basically every time I have sex with my boyfriend I have a flare-up. It is having a major impact on our intimacy and my everyday life. I have been told by my OBGYN that I have a short urethra and bacteria can more easily enter. I take so many herbs everyday (d-mannose, cranberry, urdva usi, goldenseal, garlic, oregano, probiotics) basically bathe in antibacterial soap before and after sex, of course pee before and after sex, and even have my partner clean his area with antibacterial soap before. Nothing works, I’m really, really at the end of my rope. Any advise you have would be greatly appreciated.
Hey Renae,
I’m in exactly the same boat! Seeing a Urologist for a follow up consultation next Friday so will let you know the outcome but I’ve set myself the task of finding someone experienced in the reoccurring issue from reading this page.
Hi Renae, sorry to hear you’re having this experience, we understand how incredibly frustrating that can be. It’s important that each person find out what is happening in their own body in order to address their individual issues in the best way. We’re told by many people that a turning point for them was finding a practitioner that has experience diagnosing and treating recurrent UTI. If you’d like more info about this, or anything else specifically, please send us a direct message and we’ll get back to you. Susy
I am 68 and have had recurrent UTIs for the last 25 years. I would get 3-5 a year. Now since October I have gotten one every month. My Urologist does not have an answer as to how to stop this cycle
Hi Lynn, if you’re considering seeing another specialist, we may be able to share some useful information. Can you send us a direct message? Melissa
I am 57 and just got my first UTI. I went to the doctor and was prescribed antibiotics. It got better after a couple of days but I haven’t even finished the antibiotics and it came back with a vengeance today! What do I do? Just go back to the doctor?
Hi Lisa, it’s always best to return to your doctor if your symptoms return. If you have any other questions, you can always send us a direct message. Melissa
How to get better UTI testing? Doctors you recommend in Portland, OR area
Hi Karen, we have some information about alternative testing methods here. If you’d like more information on practitioners whose names have been shared with us, you can send us a direct message. Melissa
Could you tell me the herbal medications you took that stopped your uti and yeast infection. I have been battling with m recurrent uti and yeast infection. But I started taking probiotic and the symptoms have reduced but I am still feeling uncomfortable down there.
Can you tell me about the herbal med for Uti’s
Hi Tessy, can you send me a direct message so I can provide more insight via email? Melissa
Can you recommend anyone in Australia to assist me?
Hi Sophie, can you send us a direct message so we can share some Australia-specific info via email? Melissa
Hi, I have suspected interstitial cystitis- I refuse to have invasive treatments down but my urologist thinks it’s probably IC. Every urine test I’ve had since November 2018 when this began has been negative. I had UTI’s years ago but they always cleared up straight away on antibiotics. It’s strange how I was fine one day- and then the next this torture began…?
Hi Georgina, what you described is an experience shared by many – negative tests that result in a diagnosis of IC. You may be interested in reading more about why standard urine tests can be negative, even when an infection is present, and alternative UTI testing methods that may provide more accurate results. Melissa
I’ve had frequent UTI’s for the past five years. I’ve been given the suggestion that I should see a urologist to better understand the source of these infections. In your experience, would a urologist be able to identify if I have an underlying problem? Or would I simply be told, “it’s common to get multiple UTI’s a year” despite the gut feeling that this isn’t something that ever REALLY goes away? I’m on a very limited income and am trying desperately to avoid being brushed aside for another whopping, waste-of-time medical bill. Thank you.
Hi Kaytie, whether a urologist can help really depends on the urologist, as with any type of practitioner. Most urologists do not specialize in recurrent UTI. If you send us a direct message and let us know your rough location, we may be able to share some helpful info. Melissa
I have had 5 UTI’s since December… presently on 850 mg of amoxicillin for 14 days, have 4days left of medication and there are still times in between doses that I have symptoms that UTI is stlll there. I do have an upcoming appt with an Urologist . I’m greatly interested in receiving information on how to treat biofilms. Your assistance would be greatly appreciated. Thank you.
Hi Sherry, we have some information about different recurrent UTI treatment approaches here. If you have specific questions, you can always send us a direct message. Melissa
I’ve had three UTI since December and started to get symptoms that would come and go last month which resulted in a kidney infection last week. Before he kidney infection I had gone to my doctor multiple times and she informed me that my urines samples were fine. Even after a strong dose of ten day course of ciprofloxacin I am still getting recurring burning. I honestly can’t live like this anymore I have so much anxiety regarding getting a UTI after sex and take all preventions but it doesn’t work. It’s affecting my mental health terribly I’m so tired of it.
Hi Penny, I can sympathise with everything you wrote. Have you read our info about why standard UTI tests may be negative, despite your symptoms? We’ve also provided details on different types of testing you may want to try. Any other questions you have, you can send via a direct message. Melissa
I have recurrent uti’s. I have been on many courses of antibiotics and the UTI keeps coming back. I am tired of so many antibiotics.
Hi Judy, I can sympathise with your frustration. If you have any questions, you can always send us a direct message. Melissa
Have been suffering with recurring UTIs, UTI symptoms over 4 years. Recently diagnosed with IC after a negative cystoscopy, urodynamic testing, MRI. Haven’t responded to PT, Tibial nerve stimulation and am currently receiving bladder instillation treatment. Have had 6 treatments and thus far no drastic improvement. Any advice would be helpful?
Hi Nadia, you may find it useful to review our information about why standard UTI testing is unreliable, and alternative testing methods you could consider. We’ve also covered some treatment approaches. If you have specific questions, you can send us a direct message. Melissa
My almost 5 year old daughter has been diagnosed with recurrent UTI’s as she had 3 since December. She was given three different antibiotics but none helped her or made the e-coli bacteria disappear. She was now prescribed a strong antibiotic, which I am not sure I should give her, due to the side effects. (Nitrofurantoin). I am looking for any suggestions as I am very worried for her. She’s not even 5 and has already had so many UTI’s. And pumping her with antibiotics apparently doesn’t help her at all. She is due for an ultrasound scan to see if there is something that causes the UTI to come back.
Hi I had this problem as a child as well they found reflux which is urine backing back up into the kidney instead of voiding out through bladder. Am hoping things for well with doc but don’t give up if they brush it off keep pushing for an answer.
Hi Simona, I saw you also sent us a direct message, so I’ve emailed you some information. Melissa
I have had a UTI a couple of times now in the past 6 months. Both times cultured E coli. I have a sulfa allergy so have been treated with Macrobid. Symptoms continue to return. What is the next step and what kills a biofilm?
Hi Anne, you might be interested in reading our info about recurrent UTI treatment and alternative testing methods. Hopefully these will provide insight into avenues you may want to consider. Melissa
I want to know the best treatment of UTI persisted for more than one year and three months
Hi Francisco, there is no single treatment that will work for recurrent UTI. There are many factors to consider. You might like to read more about testing options, and different treatment approaches. Then if you have any questions, you can send us a direct message. Melissa
My 4 year old daughter has bee recently diagnosed with Recurrent UTI’s – she’s had 3 UTI’s in the last 4 months. The culture came out e-coli twice. She was given antibiotics, and recently a stronger one as she did not respond well to the treatment. She’s having accidents every single day and we’re looking for any solution as we can’t just pump her little body with so many different antibiotics. Thank you.
Hi Simona, sorry to hear that. If you have any specific questions, you can send us a direct message and we’ll respond via email. It’s also helpful to know where you’re based so we know which resources may be relevant. Melissa
After 6 rounds of different antibiotics, i still have a UTI infection. My doctor can’t help and the consultant wasn’t particularly nice and just ordered a ultrasound scan, which I’m still waiting for. I have been E&R twice but after negative cultures I just get given another round of antibiotics, which is a two day course of apparently strong antibiotic, but symptoms are coming back. Very worried, I’m only 32 years old and never suffered before with UTI. Any suggestions please.
Hi Carla, if you haven’t already, you may like to read our info on why test results can be negative, despite UTI symptoms. You can also send a us a direct message if you have any questions. Melissa
I’ve had hundreds of UTI’s since I became sexually active (14 years ago.) I’ve been prescribed a low dose antibiotic to take after intercourse. It’s helped, I had only 1 UTI in 9 months – a record for me. I have done everything, the antibiotics, I drink 4/5 Liters of water a day (naturally, I’m just a thirsty person) I go to the bathroom after sex, I take the cranberry tablets, I shower at least twice a day, I know how to wipe front to back…I have literally done everything. And STILL I have just had an infection, finished 2 weeks of antibiotics…1 week later, feel like it’s come back. What else can I do? I’m so sick of pumping my body full of these medications and half the time they don’t work.
Hi Alex, I can sympathize. It sounds as though the information covered in the article above may be useful for you, given what you’re describing. If you have any questions about it, you can send me a direct message. Melissa
I have had recurring UTIs for the last 3 years…EVERY 6 WEEKS! Some culture out as e.coli, others do not culture at all. I have tried antibiotics when it became unbearable and after the prescribed course ended, 6 weeks later – another UTI. The urologist recommended a 6 month course of low dose antibiotics and I succumbed. Felt great for 6 months with hope that the cycle would be broken. 6 weeks after finishing the antibiotics…another UTI!
Researching alternative treatments is overwhelming. Considering taking Interfase Plus or Lauricidin as a biofilm disruptor. Any advice on how to proceed with either a biofilm treatment, or a practitioner that could guide me would be appreciated. Obviously, antibiotics are not solving the problem and I would prefer not to take them. Thank you!
Hi Andrea, can you send us a direct message with this info and let us know where you’re based? We can share any useful resources via email. Melissa
My Mother is 83 and has had Chronic UTI for 6 months now. Not getting better and I am afraid she is getting real tired. It’s gonna kill her. Dr. keeps giving antibiotics and they make her so sick. Never completely clears up. Should we be looking for a specialist to get this figured out.
Hi Sheri, many people say the turning point for them was finding the right practitioner to help. We may be able to share some useful information if you can send us a direct message and let us know where your mother is based. Melissa
I have had Recurrent UTIs for the past year. I had at least six episodes within four months and then I managed my symptoms. When I drink coffee, alcohol, or consume I have to be mindful and drink so much water. This is exhausting, Im very interested in getting my urine tested for biofilms. I have seen a urologist and had so many tests done. People start to think your crazy or practice bad hygiene but recurring infections are a real thing and I would love nothing more than to treat the underlying cause
Hi Maricela, we hear many similar stories, and it’s a very frustrating situation! We’d love to hear about any progress you make, and if there’s any resources you’d like us to share, you can send us a direct message. Melissa
I never had a uti until I got pregnant with my second baby, in 2017. I probably had about 10 uti minimum I can remember. I felt miserable. After he was born uti symtoms fade away. Until now that he is 14 months. I got another Uti. Was given two sets of antibiotics and i just feel I’m getting another one today. I really like to get tested for biofilms. Please can u send me information. Thank you !
Hi Ana, I got your direct message too, and have replied with more information there. Melissa
Hi, I have a yeast infection of the toenails, dysuria, and cystitis. I’m a 27-year-old male so the doctors said it was rare for me to get a UTI. I told the doctors that I might have got the UTI when I was rubbing the shaft of my penis in the show because it then became inflamed and I had to use the toilet. Now that I have the UTI I have difficulty starting a urine stream and the doctors can’t figure it out. Do you think its obstruction or a bladder muscle injury that’s causing the urine to not come out in a strong stream? Please let me know what you think and if there is anything or anyone I could see to fix it. Thanks in advance.
Hi Joe, can you send us a direct message with more info on where you’re based so we can share more information via email? Melissa
Very sorry I did not tell you but I am in Raleigh North Carolina
I found your article interesting. I was diagnosed with IC many years ago. I suffer with symptoms all the time if I drink coffee ,white wine ,etc. One thing you did not mention is the diagnosis of IC after having a cystoscopy and having the Hunar ulcers identified. Honestly, I would love to not have IC, however what do you do and where do you get different types of urinary testing?
Thank you, Ruth
Hi Ruth, you’re right, we have not mentioned Hunner’s ulcers and this is mainly because most specialists we speak with indicate that much more research is needed before we truly know whether these ulcers are linked to infection or something else entirely. We hope to cover this more in the future. We have some more information about alternative testing here, but if you have specific questions about it, please feel free to get in touch with me directly. Melissa
On-going problems with this. Hoping to get help here.
Hi Mary, can you send us a direct message with a little more info, so we know better how we can help? Melissa
Hi,
My vagina is dry from inside it has shrunk in size from one side i feel as if something leaks in a small amount from it but i do not get any odor and colour of the discharge. Should i still be worried?
Hi Sheher, it’s always best to see a doctor to discuss any symptoms that concern you. If there any UTI related resources we can help with, you can send me a direct message with any questions. Melissa
I have been on at least eight antibiotics since October. As soon as I’m done with antibiotic I have a reoccurrence within a month. I am also a metastatic breast cancer patient. It’s so frustrating. How do I get tested for biofims
Hi Heidi, are you able to send me a direct message with more info on your location so I can share details via email in response? Thanks, Melissa
My daughter lives in Las Vegas and has been diagnosed with IC. She hasn’t been able to find a good urologist for her. Can you recommend someone. Thank you. Valerie Swift
Hi Valerie, can you ask your daughter to send me a direct message, if she hasn’t already? I can share more info with her via email. Melissa
I requested a referral to a urologist this week. I live in the greater Philly area. Would you happen to recommend a provider in this area?
Hi Shanna, at the moment we don’t know of any recurrent UTI specialists in PA, but we can share some info regarding telemedicine options, or surrounding states, if you send us a direct message. Melissa
Are there any uti specialists in northern Colorado? I have been to the UC Health Urology Clinic and seen several different doctors there. None of them seem to know much about this condition. They just want to keep throwing different antibiotics at it which make me feel very sick.
Hi Terri, if you’d like to get in touch directly, I can share more information. Susy
I’m on the UTI rollercoaster. Have been diagnosed with IC, but antibiotics are the only thing that make me feel better. I’m sure it’s chronic and due to biofilms. Any specialists in Canada you can recommend to address this?
Hi Vanessa, if you’d like to get in touch directly, I can share the info we have so far. Susy
Are there any uti specialists in northern Indiana (South Bend or nearby)?
Are there any specialists around Indiana or surrounding areas you know of? I’m desperate
Hi Casey, I hope the information we shared by email was useful. Melissa
Hi Mary, at the moment we don’t know of any in that region. I can share more info about possible options via email, if you send me a direct message. Melissa
I have had over 300 UDoTIs over the past 52 years. I have my own regimin plus macrodantin daily, but have had 3 infections in the past 3 months. I am exhausted. My urologist has run out of ideas. Can you refer me to someone in NW Washington?
Hi Nancy, can you send me a direct message so I can share more information via email? Melissa
I am a 43 year old woman at my wits end.I’ve suffered for 25years with persistant UTIs.I had a much needed break from symptoms when I had my children then out of the blue 3 years ago they came back with vengeance.I have had about 10 utis in 2018.A lovely GP put me on vagifem and I’ve had a 3month break from symptoms untill today.I cannot function with this.I just want to have a normal life.I have read so much info over the years and been referred twice to urologists who didn’t have answers.
I’m in the uk.Please could you recommend a urologist to help me?
Hi Nicky, can you send me a direct message so I can share more UK based information via email? Melissa
I am 68 yr old. I have been having what I would consider to be chronic uti’s for about 15 yrs now. Especially the last 6 years. I did have a 10 month relief for some reason last year but it’s back with a vengeance. My current one started in October. I’ve had Cipro, Bactrim, 3 Rocephin shots, and currently on my 6th day of 100 mg Macrobid twice daily with no relief. I have an upcoming appt with a urologist who 2 years ago told me “I don’t know what you want me to do” so I’m not looking forward to returning. I’m weary and mentally and physically drained. My head hurts every day as well as the uti symtpoms. Can you suggest anything?
Hi Johnnie, it’s very frustrating when it feels as though no one can help. Can you send me an email so I can share more resources that way? Melissa
This is for my 82 year old grandmother she has been getting uti for about 20+ years or so, at first she would get them every couple of years then every 6 months and now she gets them every 1 to 3 months sometimes sooner, I need to know about doctors in northern california. thanks!
Hi Matt, sorry to hear your grandmother is experiencing that. I’ve sent you an email with some more information about practitioners. Hopefully it helps. Melissa
I am a paraplegic with neurogenic bladder and self cathe for the past 12 months every 30 days I get a painful and sonsickninjabe to be hospitalize . Klebsiella is the bacterial been taking invanz iv and it goes away but makes so sick to my stomach I can’t eat and the nausea and pain is unbearable at this point it has taken over my life I have no enjoyment but suffering and pain . Seen a neurologist and they said it’s chronic and I have to keep taking the same meds cause I am allergic to penicillin. Please help me o am at my ends and I have hit rock bottom with the grace of god I hope you can help me . I live in Hawaii.
Hi Mahea, I saw you also sent me a direct message, so I’ll respond now via email. Melissa
Hi, i’ve had recurring UTIs for the last two years. At some point I would get them every 3 weeks. I thought it was because i also have piles, so I started cleaning myself thoroughly after poop. I actually had a 4 month break after that! But the cycle seems to have started all over again. I’m fed up hearing about hygiene and drinking more water from doctors, I mean, I should know better than not to drink lots of water… i have read your article about biofilms. How do I get treatment in case these biofilms are the culprits?
Hi Sarah, I can sympathise with your frustration over being told basic things that clearly make no impact for you. We have more information about recurrent UTI treatment options here. We may also be able to share names of some practitioners, if you provide further information via direct message about your location. Melissa
I have started having back to back UTIs, with E Coli being the culprit. I took 2 weeks of Cipro, and it never really cleared. 2 days later, I started back with the symptoms. I am a diabetic on Insulin. Could this be the cause, and what do I do now?
Hi Linda, research indicates that the risk of UTI is higher in individuals with diabetes, so it’s possible it is a factor. It may be helpful to see a practitioner that specializes in chronic UTI, to discuss this with them. We may be able to share some names if you send a direct message with more information on your location. Melissa
Where to find doctors in or near East Tennessee.
Hi Pat, so far we haven’t had any recommendations for practitioners in Tennessee. I can share some names of practitioners who offer telemedicine, if that interests you. If so, you can send me a direct message and I’ll provide these via email. Melissa
Hi, I could really use your help if you have any names of doctors in my area. The last doctor (a male) I went to basically laughed at me and told me it was all in my head. I have been suffering for about 20 years. Antibiotic after antibiotic and nothing. Calms it down but never gets rid of it. Anything you can help with would be really appreciated. Thank you
Shannon
Hi Shannon, so sorry to hear you’ve also experienced the dismissal of being told this is in your head. We hear far too many stories about those types of comments. Can you send me an email with more info on where you’re located so I can share any info that may help? Melissa
I am currently with professor malone lee and in a support group on Facebook.
I thought I had read you cannot get an acute uti on top of a chronic one but someone on the page said they have been to gps and had ecoli come back from the lab and clarithomycin she is on didn’t touch it so she had to take seven days of trim on top of her antibiotic.
So can you indeed have an a cute uti on top of a chronic one? Many thanks , laura
Hi Laura, theoretically, (and based on current research) there’s no reason you couldn’t get a new infection in addition to an existing infection. Having said that, chronic UTI specialists would most likely suggest that the flare of symptoms and the positive test results may be part of the normal cycle of an infection involving a biofilm. We’ve explained this concept here, above. As a biofilm erupts periodically, it may cause symptoms to worsen, and the bacteria that escape my be identified by testing. I see you also emailed me, so I’ll respond there too. Melissa
My mother has had chronic uti for the past 4 years. She has seen so many doctors but no help. It seems antibiotics are not working anymore. Where can we find a specialist that deals with chronic uti in the Tampa bay area of Florida?
Hi Diane, are you able to send us a direct message, so I can share further information via email? Melissa
How do I know if I’m seeing the right practitioner? I have an appointment with a urologist but don’t want to continue being treated unsuccessfully with antibiotics. Is there a list of recommended providers in the Maryland / DC Metro area?
Hi Kelley, there’s no specific criteria for finding the right practitioner, a lot of it comes down to personal preference – whether you feel as though you are being listened to, and how confident you are they can help. I can share a few names in the area you mentioned, if you send me a direct message. We don’t publish names on our site as we don’t recommend specific practitioners. We collect information from other recurrent UTI sufferers who have found someone helpful, then pass them on if requested. Melissa
I have had reoccuring UTIs for the past 7 years. They would get tested and come back positive I would be given antibiotics and the problem would go away. They would come back I would get tested it would come back negative yet the symptoms remain.I read the article and I did not see any answer as to how to detect and get rid of them. I’m in the comment section because I just finished reading the article. it is stated in so many different places that there are no real answers yet as to how to get rid of them.Are there any doctors that have knowledge of this in either Washington State or California or possibly Montana, where I reside?
Hi Maria, at the moment we don’t know of any chronic UTI specialists in Montana. There are a few who offer telemedicine if you’re interested in this option. We may be able to share some useful information regarding Washington State and California. If you’d like further details, you can send us a direct message. Melissa
I have been suffering with these since March, and each time I stop the antibiotic they come back. I am getting fevers and chills when they come back that are even more miserable and seem to be worse each time. I’m seeing a Cleveland Clinic doctor soon, they are supposed to be #1 in Urology so I’m hopeful they can help?? Any idea if they do this type of testing?
Hi Angie, the type of testing used tends to vary by doctor as well as clinic, so we’re unable to shed any light on this. If you have any other questions, feel free to reach out directly. Melissa
I have experienced 5 UTI “like” symptoms since December last year. 3 times the UA came back positive & treated with antibiotics. The last 2 the UA came back negative but I was prescribed antibiotics and the symptoms went away. I live in Roseville, CA but currently on vacation in Sheridan MT & will return home this Saturday. Trying essential oils in water & Tylenol to the lessen the symptoms to get me home.
Hi Tammi, as you may have read, negative UTI test results are not uncommon. Standard testing is significantly inaccurate. If you’re after more information about specialists in CA, or any other resources, you can send us a message. All the best for your travels in the meantime. Melissa
I have been getting a UTI for what seems almost every 2-3 months, and I really have no clue what is causing it. I have been tested for STD’s and I drink plenty of water.
Hi Madison, you might like to read more about UTI testing, and recurrent UTI treatment. This could shed some light on what you’re experiencing. If you have any questions, you can always get in touch directly. Melissa
I have had chronic uti for more than 50 years with very little relief. I now have a severe case of Pancytopenia. As you can imagine I have had most antibiotics known to man. Could the Pancytopenia be related to the chronic infection? I am currently receiving two to three blood transfusions per week. Help!
Hi Faith, that’s a very interesting question, and one I would love to know the answer to as well. It’s probably best asked of a recurrent UTI specialist. If you’d like some suggestions on how to find one, feel free to send me a direct message, with more information on where you’re located. Melissa
Hi Melissa,
I have had a persistent Ecoli UTI for a year now..I an currently resistent to all but two oral medications and neither of those get rid of this infection. Is there anyone in Connecticut?
Hi Debra, can you send me a direct message so I can share more info that may help you find a practitioner? Melissa
I have been having recurring bladder infections for over 2 years. I am on my third urologist, one moved out of state. Is having a serious impact on my quality of life and my ability to work. I’m afraid to drink before traveling to work or before leaving to go home. How do I find a specialist I live near New York City please help.
Hi Sharon, at the moment we don’t have any specialists on our list that are based in NYC, however, I can share some info via email that may help you find one nearby. Can you send me a direct message if you’d like me to send further details? Melissa
Sounds like my issue. Can you recommend a doctor in north Jersey?
Hi Tracy, I can share some more info via email, that may help you find a doctor in Jersey. Are you able to send me a direct message with a little more information? Melissa
Count me in. Is there anyone in Ontario Canada that specializes in this. Seen two different urologists with two completely different treatments. Neither treatment permanent.
Hi Margo, at the moment we don’t have any practitioners on our list who are based in Canada. We’re working on it. There are a few based in the US that offer telemedicine if you’re interested in that option. If you’d like further details, you can send me a direct message. Melissa
I just finished Bactrim (after switching from Macrobid) for my UTI and was fine for a day and symptoms are slowly creeping back. It’ll be two weeks soon. How should I proceed? Waiting on culture results.
Hi Dominique, it’s always best to discuss returning symptoms with your doctor. If you feel they are unable to help you further, it may be best to look for a practitioner who can. I can share further information via email, if you send me a direct message. Melissa
I have read quite a bit of the information on this site. If i am understanding what i have read correctly the information is saying that if my urine culture comes back negative that doesn’t necessarily mean i dont have a UTI? I havethe symptoms and i know what it feels like and my when they do they urine dip test etc it always shows i have a UTI but cultures come back negative.
Hi Gibran, that is correct. Standard urine cultures have been shown to be very inaccurate. We have an article about this topic specifically, if you’d like to read it. Many people who reach out to us have received negative culture results despite their symptoms, so you are not alone in that. Melissa
I’ve had 12 uti’s in 8 months and my friend told me I may have bladder cancer as the thing happened to her
Hi Karen, many people experience multiple UTIs in the space of months and have no identified physical abnormalities, but it’s always best to speak with your doctor about recurrent UTI, to rule out other causes such as this. If there’s anything we can help with, you can message us directly and we’ll get back to you asap. Melissa
I have been searching for a specialist who can treat chronic uti’s. I am in northern Indiana. Can you suggest someone, please.
Hi Mary, I saw you sent us a direct message too, so I’ve replied to that with some further information. Melissa
I have had the same experience as the last poster and would like to ask the same questions! Chronic uti specialist and biofilm locations
Hi Doreen, are you able to send me a direct message with more info on where you’re based and any other specific questions you have? Melissa
I have been dealing with the same infection for over six months and I’m starting to become resistant to abx. Where do I find a chronic UTI specialist?? Or someone that works with biofilms?
Hi Elise, sorry to hear about that. Can you send me a message directly with more info on where you are based so I can check whether we have any relevant info for you? Melissa
I have been having chronic UTI for 3years now,at first I went for test but nothing was found, doctor gave m injections and some drugs then but now it came back,I have taking so many antibiotics, it keep on appearing and disappearing, frequent urinating and pains while urinating pls what do I do? I need ur help
Hi Gift, if you haven’t already, you may like to read more about why your test results may be negative despite your symptoms. If you’re considering seeing a chronic UTI specialist, you can send me a message and let me know where you’re based. Then I can share further information that may help. Melissa
I have suffered for 4 yrs with uti every month. Not always the same bacteria. Had cysto..ct etc. Can you have biofilm if the bacteria is different each time? Does a bladder wash that the dr performs help? I need something!
Hi Jane, biofilms are very likely to contain multiple types of bacteria – both good and bad – so it is possible a biofilm is involved when test results return different microorganisms. I’m not sure what type of bladder was you’re referring to. You can send me message directly with more info if you like. Melissa
16 years ago I suffered constantly with uti, urine came back negative for infection I was put on antibiotics but symptoms returned. I went private and had a urethral dilation nothing for 15 years. 2 weeks ago it came back, went to my GP they put me on a course but symptoms were still there throughout so went back was put on a different course but same thing!! Do you think I need another urethral dilation? They say the operation is performed because the urethra has experienced trauma. When I was 11 I was misdiagnosed an ovarian cyst, it grow rapidly to the size of a football sat on my bladder so I peed myself. When I had it removed it had crushed one half of my Fallopian tubes and ovaries but never had a uti until 11 years later so what do you think? I live in the uk and I’m 38.
Hi Maria, can you send me a direct message with more info about whether you’ve had testing that has identified the cause of your recent symptoms? I can also share more info about getting treatment in the UK. Melissa
I’ve had uti’s in the past for a couple years not but since March they have been really bad. My gynecologist tested my urine and told me I have biofilms and has been treating me for the uti but it’s exhausting. I went 3 months straight on different antibiotics and it messed up my stomach so i’ve taken a break. My symptoms have flared up again so i’m Thinking about getting tested again. However, I’m wondering if maybe I should see a urologist instead? Any suggestions would be greatly appreciated!
Hi Helen, a urologist may not be the best option – it depends whether they have experience (and an interest) in recurrent and chronic UTI. If you like, you can send me a direct message and let me know where you’re based. I may be able to share more information about chronic UTI specialists you can access. Melissa
I have been having Chronic UTI’s for 40 years. Crazy sounding, I know, but I simply bounced from Urologist to another, to Infectious Disease Doc to another Urologist. I now have Chronic Kidney Disease as a result of the years of infections. Each month I have about 1 week symptom free. The rest are different stages of the UTI. I take a 2 week course of antibiotics to lessen the symptoms. I now believe the bacteria are embedded in my bladder wall (thanks to this and other websites). I live in the U.S. and doctors look at me like I’m crazy when I bring up this research. Any treatment resources in the U.S. would be so helpful. I’m losing hope that I will ever be well.
Hi Mindy, it doesn’t sound crazy to me. I have spoken with many people who have suffered from recurrent or chronic UTI for decades. You’re not alone in that! Can you send me a direct message so I can share more info about specialists that may be helpful? Melissa
I’m 28 years old I’ve been getting uti’s for 10 years but since I’ve been married they’ve been non stop, in the last year I’ve been hospitalized 2 times for Kinney infections in the ICU. I’ve been to several dr’s none of which can tell me what’s going on just more antibiotics. I’m sooooooo tired of being sick! I have just found out that my fulopian tubes are blocked and I just want to have a baby :’ ( The dr. Wants to do exploratory surgery to see what’s going on inside. I would just love answers and to be healthy again so I could get pregnant!!
Hi Randi, sorry to hear you’re experiencing that. Can you send me a message with more info about where you’re based? I may be able to share some useful resources. Melissa
Everything you have written is exactly what I have experienced since April 2018 and before.(my first UTI occurred 10 years ago) It has been on going, from one doctor to the next.
Although the last doctor prescribed some addition meds.
I still have a UTI .
Hi Dolly, the problem is far too common. So many people share similar experiences. Hopefully you’re able to find a resolution to your symptoms soon. Melissa
I’m 23 and I’ve been getting UTIs for years I get them some years once a month other times it’ll be every 2 months I think the longest I’ve gone without UTI within the last 5 years is 6 months MAX! I can’t afford a urologist so have to go to the ER for antibiotics just to get me over ! And I hate taking antibiotics bc they come along with yeast infection
Hi Amber, you’re not alone in that experience, and it can be very frustrating! If there are any particular resources you’re looking for, you can send me a message directly and I’ll share anything I can. Melissa
Hi! Im 35 years old and I started having UTI’s when I was 20. I would get them back to back for months then nothing and that cycle continued until I started having babies. My first pregnancy I had gotten a kidney with no prior signs of a UTI. 3 more pregnancies go by with no issues. Im no longer having babies and low and behold they rear their ugly heads again! I’ve heard 3 UTI’s since March! Grrr. I finally have a referral to an oncologist (I think that’s the right word) and I really want any info that can help me on this journey to figuring this all out. I would felt appreciate any and all info, so I can go loaded with info. Also a side note, I have not been referred to a specific doctor yet. Thank you!
Hi Brandy, sorry for the delayed response. There are a couple of resources you may like to share with your doctor – I can email these to you if you send me a message. I may also be able to provide some info on chronic UTI specialists if you’re still looking. Melissa
HI! I am 54 and have had UTI’s most of my adult life. I found the information on biofilm fascinating and affirming of what I have experienced. Is there a practitioner in Maryland who might be helpful. Also..is seeking care from a urologist recommended. Thank you!
Hi Sheila, most urologists specialize in complicated UTI and surgery, and are not experts in chronic UTI. Regardless of the type of practitioner you seek out, it’s always best to do some research into whether they have experience diagnosing and treating chronic UTI. I can send you some more info by email if you get in touch here. Melissa
Hi! I’m 20 years old and had my first UTI less than a month ago. I got it treated, but now I’m having symptoms of another one already! I’m nervous I’m going to be getting them all the time now. I don’t have the money to be treating them every month!
Hi Marina, it’s possible the treatment was insufficient or incorrect, and it’s always best to return to your doctor to discuss your options. We also have some info on recurrent UTI treatment approaches that may be helpful. If you have specific questions, you can reach us directly here. Melissa